Topic: Mitral Valve Problems involves hormones in the Brain
Annie C
Frequent Contributor (1K+ posts)
Member # 14
posted
They are names Catecholamines. These involve epinephrine and dopamine. I think there are a couple of others. I just can't seem to copy and paste the many site pages.
Its been over 30 years ago when was diagnosed when I was 20 years old. The only reason for the echocardiogram was because I was having pain. I grab my chest because it hurts so fast and bad.
Pain that could lift me off my feet. Or while sitting its the sharpest pain I can describe and it's with each heart beat. 2 nights ago it happened 12 times Ina row. It usually is only 3-5 times.
I've not had much pain in a very long time. So when it started hurting again. In fact it's been a few years that's bothered me. So I looked it up and learned about the Catecholamines and it's comforting to learn more about them and what they do.
And the Dr said " You can't believe everything you read on the Internet " which is true to a point. He refused to accept my word for it. Even tho I've had it for over 30 years.
-------------------- May God Bless you every day. And Never say never and do not give up no matter what. We need you to help others. Posts: 1288 | From Tetons Wyoming | Registered: Oct 2000
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Annie C
Frequent Contributor (1K+ posts)
Member # 14
posted
I'm such a Duh. I mean Mitro Valve Prolapse. My brain is out to lunch so now I'm hungry too.
-------------------- May God Bless you every day. And Never say never and do not give up no matter what. We need you to help others. Posts: 1288 | From Tetons Wyoming | Registered: Oct 2000
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lax mom
Frequent Contributor (1K+ posts)
Member # 38743
posted
Do you have POTS? My norepinephrine triples when I stand and it means I have POTS.
Annie C
Frequent Contributor (1K+ posts)
Member # 14
posted
What is POTS Disease. Is it related to or from Mitral Valve prolapse? What tests do I need to learn what you're describing. And are there any other tests.
I know I need a stress test do to fainting weakness and even more fatigued on top of Lyme.
Thank you for your help.
-------------------- May God Bless you every day. And Never say never and do not give up no matter what. We need you to help others. Posts: 1288 | From Tetons Wyoming | Registered: Oct 2000
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- Annie,
in one post you say: ". . . I mean Mitro Valve Prolapse." (end quote)
You were right the first time, it is Mitral Valve Prolapse - although I do think most of hear "mitro" and that's what I thought it at first.
As we know, the HPA-axis can just get clobbered with lyme.
- by Connie Strasheim - Townsend Letter - July, 2010
be sure to scroll down past a section of ads that looks like the end of the article. This is a four-page article.
Excerpt:
. . . Cortisol allergies produce all the signs and symptoms of adrenal insufficiency, but often, adrenal function in people who have these allergies is normal.
Many patients with cortisol allergies cannot tolerate cortisol replacement until they are desensitized to these allergies. . . . -
Posts: 48021 | From Tree House | Registered: Jul 2007
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- Wilson's book here is also of great help:
EXERCISE INTOLERANCE is (partially) explained in the article: "when exercise doesn't work out" (and what we can do about that)
ADRENAL, CARDIAC, MITOCHONDRIA & MYELIN SUPPORT - that all helps movement better work for us
Specific nutrients that help, too. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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Annie C
Frequent Contributor (1K+ posts)
Member # 14
posted
Thank you I will look into the posted web sites. I've been so tired and with blood pressure 89/ 37 which explains the fatigue. Lyme has also been taking me down too. I'm not sure if they are connected or not. And a lot of both of my big toes are numb, feels like there's a tight rubber band at the base of them. And now the other toes are going numb.
How can I get my Dr to do a blood test for POTS and or the Catecholamines ???
-------------------- May God Bless you every day. And Never say never and do not give up no matter what. We need you to help others. Posts: 1288 | From Tetons Wyoming | Registered: Oct 2000
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- I'm not sure you need a test for POTS if it's so hard to get out. I think it can be pretty easily detected just by paying attention to how your body reacts uprise arising from lying or sitting -- and how you do when standing for a while.
Do you have a LLMD you can call? There might be some things they could suggest for relief. Every LLMD is very familiar with POTS and NMH, so many with lyme have those as a result.
A LL ND would also have other avenues to explore, likely the adrenal supports.
Certainly, about numb toes, if you have a LL doctor, you should call today - or tomorrow and let the office manager know this. It's important for them to know this.
It certainly can come and go with lyme, magnesium could help, massage could help but still, it's important that the doctor who is LL and has been treating you -- or used to do so -- is asked what he / she thinks about all this. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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Annie C
Frequent Contributor (1K+ posts)
Member # 14
posted
I can't believe I just lost a whole lot of info. Man oh man am I p'od.
I've been having problems saying what my brain wants to say And I'm on my iPhone cuz puter has like 30 viruses!!!!
And my last Drs appt. they put me on a 48 hour monitor. Cuz of fast heart rate while sitting or get more juice or tea.
I'm rambling and can't stop. LymeToo is a Peach. She's been there here for everyone and birthdays etc...
About six weeks back I had cellulitis on my leg. So when I was at the Drs office I pointed out for him to look at it. And before I could say see how great it looks. He thought I was complaining about 2 little red dots.
I mentioned a out the Micro Valve Prolapse a d the hormones Catecholamines and he told me not believe you read on the Internet. I'm trying to see if it's all connected to Lyme. Drs here don't believe there is Lyme here.
So get this I went to an accupuncturist she told me there are many many people here and they are doing it natures way homeopathic. And there is a Face To Face Lyme Meetings. I've not been yet. But I will keep you posted. As to how it is and I'm very curious as to how many people and their ages.
I'm posting this before I lose it all again.
-------------------- May God Bless you every day. And Never say never and do not give up no matter what. We need you to help others. Posts: 1288 | From Tetons Wyoming | Registered: Oct 2000
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Annie C
Frequent Contributor (1K+ posts)
Member # 14
posted
Mitral I'm starting to like my Duh'drom symptoms
-------------------- May God Bless you every day. And Never say never and do not give up no matter what. We need you to help others. Posts: 1288 | From Tetons Wyoming | Registered: Oct 2000
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