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» LymeNet Flash » Questions and Discussion » Medical Questions » IV therapy help

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Author Topic: IV therapy help
Gisele
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Member # 32250

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I have been on IV therapy since Oct of 12. I feel

about 20% better. I take 1GM IV flagyl 2x/day, 2GM

IV ceftriaxone, augmentin 875mg 2/day, fentanyl

patch 75mcg, oxycodone, lyrica, and lots of other

meds & vitamins. After being basically bedridden

since Nov 09, I find the length of this illness is

slowly making me lose hope. I was so happy when l

first started antibiotics and it stopped the disease

from progressing. I've heard of the clinic in

Arizona, but I have only heard horrible outcomes.

PLEASE HELP [confused]

--------------------
Homebound with Lyme since Nov 1, 2009. Diagnosed with Lyme & confections in July 2011. IV antibiotic therapy for 4 & 1/2 years still on oral. Originally ill in '97 with arthritis that quickly spread to all my large joints, then CFS & fibro.

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GretaM
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Don't lose hope!

Have you been treated for coinfections?

Personally I had terrible pain control with "Heavies". They just didn't work for my neuro lyme pain. Didn't even touch it. And they made me feel super dopey and even more unmotivated than usual.
Granted I just used IV hydromorphone and liquid morphine. Not the ones you're on.

Is there anyway you can talk to your doc about weaning off even one of those? Maybe finding a different method of pain control?

Did you symptom track when you first started IV? If you could find those notes, maybe you could compare to where you are now.

20% isn't too bad, but I know what you mean...50% would be better.

Perhaps if your doc hasn't addressed coinfections after a year...it may be time to talk to your doc about it.

I wish I had some better suggestions. Others with more experience will chime in soon.

Take care.
[group hug]

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GretaM
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I hope I don't sound patronizing-I am in the middle of an IV and can feel neuro herx coming on.

I am trying to get this ideas out before I crash.

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lax mom
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Have you read Dr H's book: "Why Can't I Get Better?"

Maybe you can find some of the other things that Lyme has messed up that are keeping you sick.

--------------------
♥ ♥ ♥ ♥ ♥
(aperture)
http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=1;t=115161;p=0

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poppy
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I too would be wondering about your coinfection status and whether you have been treated for any of them.

In the book by Dr. H he says if you have nails in your foot, you can't just pull out one of them to get better, have to pull them all out. So, seems like you need to be determining what other nails you might have also.

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Gisele
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Thanks for your ideas. My Dr recently increased some of the Abx. I only wish there were a faster way so you don't lose your mind during the process. [shake]
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