posted
Last night I had a very severe herx that lasted for hours including loss of limb use, face burning, dehydration and lots of vomiting. (I also ate some dried fruits (Sulfites)about 30 minutes before it all started). Normally after an episode like this I pass out asleep right away, this time I was up all night and didn't fall asleep until 6, but I also accidentally took my night meds (depression/anxiety) twice-don't usually make this mistake.
Also being treated with Deplin and B12 for MTHFR double mutation.
I have been ramping up dosing on a 'biofilm braking' protocol (last week), that caused more herxing than prior months and yesterday was my first abx day. But I had been feeling quite tired and weak the day before, and now the smell of food makes me sick to my stomach, my normal body temp is 97.1 and it running in the 99s right now. Maybe I have the flu too? Can't this make our herx's worse...perfect storm?
-------------------- When you reach your "wits-end" remember this: "Peace I leave with you, my peace I give you. I do not give as the world gives. Do not let your hearts be troubled and do not be afraid." John 14:27 Posts: 397 | From Loudoun County Virginia | Registered: Mar 2007
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- "Loss of limb use" and other symptoms of your experience all sound very severe. I think you should call your LLMD about it if you sense it's connected to your treatment.
Or your GP if you think otherwise. Does not sound necessarily sound like a reaction to sulfites but that could vary. Also consider: Food poisoning?
Still, I hope you will connect with a doctor about that.
A herxheimer reaction does a lot to a body. As I understand it, some (maybe a lot) of that is due to what they call a
CYTOKINE STORM
And, yes, absolutely, positively, without a doubt . . . anything ELSE that the body has to deal with that also causes a cytokine storm will certainly intensify a herxheimer reaction that was already in action.
Best to ask your LLMD if it might be good to just lie low (or lower) on lyme / TBD treatment during a flu. Address the most acute matter. The body can't do it all at the same time. It just can't.
Even separate from lyme, TBD, "herxheimer" sometimes with a tough flu, it's the cytokine storm action that can do so much damage, so much. So all efforts in "taming" that are important.
1: AVOID ACETAMINOPHEN (see next post)
2: Employ Liver & Kidney Support -
[ 02-12-2014, 03:33 AM: Message edited by: Keebler ]
Posts: 48021 | From Tree House | Registered: Jul 2007
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- Acetaminophen dangers are detailed is in this set.
Magnesium is very good to help tame cytokine storms.
The herb, STINGING NETTLE may serve to compensate for the reaction by calming the the cytokine storm that is often part of a herx reaction. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- I hope this soon passes and it is just a "blip on the screen" There are some things here you might want to have on hand, such as ELDERBERRY EXTRACT, etc.
posted
Thanks Keebler. This is not 'very' unusual for me, just hasn't been like this for quite a while (seizure and limb loss use were common side effects, although scary, of my neuro lyme). That's why I'm thinking flu, exacerbating.
I sent a message to my LLMD, waiting to hear back, she'll probably lower the Deplin dose is my guess, since it also causes all sorts of 'fun'. The interesting thing is that usually 1/2 dropper of Pinella, Burbur and Sparga will lessen and shorten the episodes, not this time.
I take 1200mg of Magnesium a day , so good there. Milk Thistle for liver (?). 5000 B12, Rx for Vit D 50,000 IU twice weekly, 1000 Vit C. I'll read through what you cited. Thanks.
-------------------- When you reach your "wits-end" remember this: "Peace I leave with you, my peace I give you. I do not give as the world gives. Do not let your hearts be troubled and do not be afraid." John 14:27 Posts: 397 | From Loudoun County Virginia | Registered: Mar 2007
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Razzle
Frequent Contributor (1K+ posts)
Member # 30398
posted
Part of this very well could have been a sulfite reaction... I get anaphylactic symptoms (head pressure/light-headed, nausea, vomiting, diarrhea, flushing, muscle spasms, asthma, etc.) from sulfites.
Vitamin B12 binds directly to sulfites, rendering them unable to trigger reaction symptoms.
If you have a CBS mutation and are taking Deplin, you absolutely need to be taking Molybdenum, Magnesium and Zinc (& Iron, if deficient) to support the overloaded SUOX enzyme. Deplin will just make the mutated CBS process even MORE through the sulfation pathway, overloading SUOX even more. Thus the nutritional support for SUOX is essential in the setting of CBS mutations.
-------------------- -Razzle Lyme IgM IGeneX Pos. 18+++, 23-25+, 30++, 31+, 34++, 39 IND, 83-93 IND; IgG IGeneX Neg. 30+, 39 IND; Mayo/CDC Pos. IgM 23+, 39+; IgG Mayo/CDC Neg. band 41+; Bart. (clinical dx; Fry Labs neg. for all coinfections), sx >30 yrs. Posts: 4166 | From WA | Registered: Feb 2011
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Lymedin2010
Frequent Contributor (1K+ posts)
Member # 34322
posted
I have experienced exasperation of Lyme symptoms when getting what others were sick with around me. Flu like & stomach issues. Even a trip I took to Mexico.
Everyone else was sick for a day or two, but it took me weeks to fight the torture of aggravated symptoms. All sickness accompanied increased head & neck pressures & felt like an onset of encephalitic.
Surprisingly the immune kicks in one way or another and eventually mops up the severest of symptoms, even this one time where it felt like I was being paralyzed from my neck.
Posts: 2087 | From NY | Registered: Oct 2011
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