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» LymeNet Flash » Questions and Discussion » Medical Questions » still unsure lyme

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Author Topic: still unsure lyme
Jake Hembree
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First western blot had done in Nov. igm p23present that was the only band that showed up the test was equivocal.

Still am having funny symtoms everything from anexity, flushing face and chest red and hot at times, cant focus, mood changes, insomnia or some times super worn out, half foot went numb,

knees hurt and raising heart all day 24/7 hot flashes then ice cold& dizzy off balance, sweating underarm even when I am cold, legs feel like jellow at times & loss of appeite and loss of weight..

the tick was on me back in may of 2013 and left a quarter size pink mark that was there for a good month didnt take a pic. But believe it just has to be that.

Another doc. Ran a western blot for the sec. Time and it can back negitive! Unsure if I should go to a llmd or not. I have always been super healthy and now I have alot going on.

................................................

Breaking this up for easier reading for many here -

[ 02-12-2014, 03:05 AM: Message edited by: Robin123 ]

Posts: 24 | From Kanaka city | Registered: Feb 2014  |  IP: Logged | Report this post to a Moderator
Judie
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My question would be: What makes you think you don't have Lyme?

If it's the tests, the tests aren't reliable at all.

I didn't believe this until I got infected twice.

The first time I had no obvious debilitating symptoms, just the rash and I had a CDC positive tests.

The second time I had the rash and RAGING Lyme symptoms. I have not been able to get a CDC positive test this time, but I have 8 bands on my Igenex test (the CDC discounts the ones that were used for the Lyme vaccine, which I NEVER had).

A friend who had a bulls-eye rash and everything didn't get a positive test until her 5th test!

The test only sees if you have antibodies which mean your immune system must be able to detect and make antibodies.

Lyme cloaks itself from your immune system, that's why it can create so much damage. Also, the people with the WORST Lyme infection will get negative tests just because the body gives up and doesn't have the strength to make antibodies anymore.

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droid1226
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It can ruin your life and get much much worse. You're still at a very treatable period in this.

Everything you say is how mine started. And most others.....

Most Lyme patients don't meet the CDC criteria for a positive.

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http://www.youtube.com/user/droid1226/videos?view=0&flow=grid

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steve1906
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Jake Hembree, It sounds like lyme to me and maybe Co-infections...

Judie told you everything you need to know, get an LLMD....

Keep asking questions......

Steve

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Everything I say is just my opinion!

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Jake Hembree
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Judie, well I was thinking I dont have lyme due to about 6 doctor's telling me I dont but cant put there finger on whats going on with me. I have had one doc. Tell me I do have lyme but she said my case was to complicated and no longer seesme I only went to her once too.

In 3 weeks I have a llmd that I will be seeing I hope she wil get to the bottom of it all iam still living at home and stuff and my parents just dont think I have it so its been a rough battle on trying to tell them not everyone's test comes back positive.

But it only makes the most sence I had a red quarter size mark on me 2 months later started having anexity attacks and so on..

[ 02-12-2014, 03:06 AM: Message edited by: Robin123 ]

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Jake Hembree
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Thank u for all the post back
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Judie
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I'm glad you're seeing an LLMD.

Here's an article on the psychological effects of Lyme:

http://www.igenex.com/psychological_effects.htm

Going to a regular doc to treat Lyme is like going to a gynecologist to treat a foot problem.

They may have good intentions but really have no clue on how to treat that area.

I one time had knee pain and an acupuncturist with good intentions brought out her pilates book. She was suggesting exercises that my physical therapist told me NOT to do (and from my prior experience made the pain worse).

Don't mistake good intentions for good medical care!

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Robin123
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Many doctors think even one positive Lyme band showing up, ie your IgM 23 band, is enough to indicate an infection.

I guess you know that tests for Lyme and co's do not always come back positive, and that Lyme-treating doctors treat clinically, by history and symptoms. Sometimes after some treatment, people test positive as their antibody response becomes stronger.

Most doctors are not trained to recognize Lyme and co's nor wish to treat us for them. You need to be seeing a knowledgeble LLMD.

Judie has good advice for you - ditto what she's saying.

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