posted
I knew the day was coming but I am terrified of this drug! What are your experiences? Is it ok to start super slow? I am supposed to be on it for 3 weeks.
I make it through rifampin which I was scared to take as well. I think I stared at the bottle for a few weeks before diving in.
I think the permanent csn damage has me worried the most!
Posts: 33 | From Southern Indiana | Registered: Feb 2013
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posted
This was the best of all the drugs I had to take for helping me. I didnot have any side effects.
Posts: 124 | From Mound City MO USA | Registered: Sep 2004
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posted
Ok, here's what happened with me and what to watch out closely for.
After the 2nd infusion of IV Flagyl, I felt pins and needles in the bottom of both feet. I should have stopped, but when I told my LLMD and nurse about it, they said go on. Well, at the end of my 7th infusion, I had pins and nedles (Neuropathy up to my knees and finger tips and up my arms. Also felt like I was being stuck with pins all over the truck of my body.
It was very painful for a few months and after 4 months it was almost gone and now it has totally gone away.
I would have to say that if you feel any Neuropathy to stop and ask your dr. and reevaluate your dose at least. My experience scared me to death and ruined my summer, but I am very lucky it resolved.
Posts: 319 | From Mass | Registered: Feb 2010
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posted
I too never had a prolem with Flagyll...'cept that i couldn't have my glass of wine with dinner, due to all the warnings about flagyll and alcohol! yes, i know, we're not supposed to...
Posts: 277 | From NY | Registered: Jun 2005
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posted
I have taken Rifampoin twice and currently on for the past 11 months and have had zero side effects. It has been one of the easiest meds for me.
Posts: 319 | From Mass | Registered: Feb 2010
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Kudzuslipper
Frequent Contributor (1K+ posts)
Member # 31915
posted
I loved Flagyl the first time I took it for a month. It made me feel very happy...almost euphoric.
But when I pulsed it for two weeks every two weeks every time on the 4th day I became very depressed and it lasted for the remainder of the pulse. Once I understood it was the drug, I was able to deal with the depression better.
for me too, the worst thing was thing was not being able to have a glass of wine with dinner.
we're all different, I couldn't do rifampin, even a tiny dose. I lasted 4 days. I was so wired, and weak at the same time.
Posts: 1728 | From USA | Registered: May 2011
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canefan17
Frequent Contributor (5K+ posts)
Member # 22149
posted
Flagyl has helped me just as much as any other abx. Definitely start slow. The first time I ever took it I didn't start slow and I had one of the nastiest frontal headaches I've ever had. Was brutal.
Also - it will cause herxing... I use ginger tea to relieve the herx. Works everytime.
Posts: 5394 | From Houston, Tx | Registered: Aug 2009
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posted
Thanks everyone! I worked up to 450mg of Rifampin for 6 months. It was the one that knocked out my body/bone pain! Anything over that amount made me have terrible insomnia. I herx on it so I went very very slow. My rashes came back and I had a fever for 24 hours. It was strange! Now that I'm off of it I hope the Bart doesn't come back.
I need to get ginger tea!
Posts: 33 | From Southern Indiana | Registered: Feb 2013
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posted
FYI, my LLMD told me about a drug called Alinia, that's like Flagyl, but without the toxic side affects.
Maybe inquire about that?
-------------------- RI Posts: 440 | From New York | Registered: Sep 2005
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Razzle
Frequent Contributor (1K+ posts)
Member # 30398
posted
Tindamax (tinidazole) is another drug that's like Flagyl but seems better tolerated...
Anyway, I've been on Flagyl for a long time and it is the best med for me...I feel horrible when off it just a few days.
To avoid the peripheral neuropathy side-effect, make sure you are taking B Complex vitamins.
-------------------- -Razzle Lyme IgM IGeneX Pos. 18+++, 23-25+, 30++, 31+, 34++, 39 IND, 83-93 IND; IgG IGeneX Neg. 30+, 39 IND; Mayo/CDC Pos. IgM 23+, 39+; IgG Mayo/CDC Neg. band 41+; Bart. (clinical dx; Fry Labs neg. for all coinfections), sx >30 yrs. Posts: 4166 | From WA | Registered: Feb 2011
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randibear
Honored Contributor (10K+ posts)
Member # 11290
posted
I'm starting 1500 per day. Omg!!! I know it will killllll me...
-------------------- do not look back when the only course is forward Posts: 12262 | From texas | Registered: Mar 2007
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Abxnomore
Frequent Contributor (5K+ posts)
Member # 18936
posted
Why not take Tinadazole? It works the same way and is usually better tolerated.
Posts: 5191 | From Lyme Zone | Registered: Jan 2009
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Razzle
Frequent Contributor (1K+ posts)
Member # 30398
posted
Start with a small amount... When I started Flagyl, I started with 1/4 tablet...and only increased by 1/4 tablet after a few weeks (once herxing & symptoms stabilized).
-------------------- -Razzle Lyme IgM IGeneX Pos. 18+++, 23-25+, 30++, 31+, 34++, 39 IND, 83-93 IND; IgG IGeneX Neg. 30+, 39 IND; Mayo/CDC Pos. IgM 23+, 39+; IgG Mayo/CDC Neg. band 41+; Bart. (clinical dx; Fry Labs neg. for all coinfections), sx >30 yrs. Posts: 4166 | From WA | Registered: Feb 2011
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Lymedin2010
Frequent Contributor (1K+ posts)
Member # 34322
posted
I took it twice for 4 months at a time. Like most ABX, it has no herx effect on me.
I did feel better after the 4th month, slight more energy, but by then the LLMD's take it away.
Posts: 2087 | From NY | Registered: Oct 2011
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posted
Keep your magnesium intake HIGH while you are on Flagyl. It may protect your nerves and prevent neuropathy, etc.
Just be aware.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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canefan17
Frequent Contributor (5K+ posts)
Member # 22149
posted
Timidizole did not have the same effects as Flagyl in my case. Flagyl hit BLO for me and probably other mess in my gut.
Posts: 5394 | From Houston, Tx | Registered: Aug 2009
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lymielauren28
Frequent Contributor (1K+ posts)
Member # 13742
posted
Flagyl has been one of the best drugs I've ever taken. Just made me feel better and better.
-------------------- "The only way out is through" Posts: 1434 | From mississippi | Registered: Nov 2007
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posted
It took me several months to build up to oral flagyl 3 x/day. I started with 1/2 a pill/week. After 15 months on oral, I started IV Flagyl 2x/day. Go slow & listen to your body and back off when herxing is bad. Good luck!
Posts: 51 | From Chicago | Registered: Jun 2011
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posted
I've never felt anything on flagyl. Started taking 3x/day right out of the gate, and they could have been sugar pills for as much as they affected me.
Posts: 306 | From Brownsville, PA | Registered: Jul 2007
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