nefferdun
Frequent Contributor (1K+ posts)
Member # 20157
posted
Mine aches almost everyday. When I lay down, the aching goes away.
I see a new LLND next week.
-------------------- old joke: idiopathic means the patient is pathological and the the doctor is an idiot Posts: 4676 | From western Montana | Registered: Apr 2009
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steve1906
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posted
Well Neff I'll tell you this....
I just got in from shoveling over a foot of snow, and my damn back is killing me (5 & half hours). I hate the winter....
Steve
-------------------- Everything I say is just my opinion! Posts: 3529 | From Massachusetts Boston Area | Registered: Jul 2008
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steve1906
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posted
Also, I have the same problem, even without snow...
Steve
-------------------- Everything I say is just my opinion! Posts: 3529 | From Massachusetts Boston Area | Registered: Jul 2008
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GretaM
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posted
Standing even for 5 minutes sends one side into charly horses.
I am so excited you are going to an LL!
Hurrah! Posts: 4358 | From British Columbia, Canada | Registered: Jun 2013
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GretaM
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posted
I forgot to add laying down helps mine too
Posts: 4358 | From British Columbia, Canada | Registered: Jun 2013
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randibear
Honored Contributor (10K+ posts)
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posted
I have bulging discs tbroughout lower back and daily pain. I vet down and cant get up. Its every day nonrelenting pain.
But I aint never having back surgery. No way.
-------------------- do not look back when the only course is forward Posts: 12262 | From texas | Registered: Mar 2007
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Razzle
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posted
My back pain is the opposite - hurts more lying down than sitting or standing...
Sounds like muscle spasms & weakness...if you can find someone who can do gentle massage, that may help...as might some stretching exercises (gentle).
-------------------- -Razzle Lyme IgM IGeneX Pos. 18+++, 23-25+, 30++, 31+, 34++, 39 IND, 83-93 IND; IgG IGeneX Neg. 30+, 39 IND; Mayo/CDC Pos. IgM 23+, 39+; IgG Mayo/CDC Neg. band 41+; Bart. (clinical dx; Fry Labs neg. for all coinfections), sx >30 yrs. Posts: 4166 | From WA | Registered: Feb 2011
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posted
Like Steve, I had the same problem too, with no snow here...
Turns out it was only when I put myself on oral clindamycin that the constant back pain lessened to almost zero, so I vote for yet another ongoing Lyme symptom in need of treatment.
The Equalizer massager is the best massager I've found to "vacuum" the back and take the pain down.
Here's what I used to do, because it was tedious talking to everyone out there about nonstop back pain:
since I was lying down, I used to tell everyone I was writing a book on ceilings. Then the person would look up and start to discuss the ceiling with me, which took the focus off of me!
Posts: 13116 | From San Francisco | Registered: May 2006
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nefferdun
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posted
Steve, I would have pain all over if I was shoveling that long! In fact, I would be out of breath and stamina just doing the steps. I groomed 5 of my horses yesterday, while the farrier was here, and that made me feel sick afterwards. It was good I could do it though.
Robin, writing a book about the ceiling? That is funny too. Some ceilings are very interesting like in old houses. I remember imagining things out of the cracks like you would imagine things in cloud shapes.
In 2006, after I was bitten and didn't know what I had, one of my trips to the doctor was because of back pain. He found nothing wrong but because it was connected to my back charged me a huge amount and gave me pain killers.
I went to a chiropractor too. Nothing was out of alignment but she said my muscles were in knots. Deep tissue massage hurt like heck and did not stop it. You know how borellia moves from place to place. My pain shifted to something else - Then I diagnosed myself in 2008.
When I had babesia, my back would seize up with cramps. This is just aching. It happens when I am standing a long time doing something like cooking. If I am active I don't notice it.
I sure hope the LLND I am seeing has some positive feedback. I have had such bad luck with doctors. I also have a lot of headaches. If I don't take imetrex right away they get bad real quick and give me nausea.
-------------------- old joke: idiopathic means the patient is pathological and the the doctor is an idiot Posts: 4676 | From western Montana | Registered: Apr 2009
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Catgirl
Frequent Contributor (5K+ posts)
Member # 31149
posted
I love the snow! We got over 10 inches, and more tomorrow. It's a great workout for me (sweating makes me feel better). :)
Neff, back pain can also be lyme or even heavy metals. My back pain went away when I got my amalgams out.
Also, my headaches are yeast/proto related. Maybe there is a new form of protomyxzoa or the two live together (yeast/proto)? Cut the fruit/sugar and your headaches might go down (less of them). That's how I keep them at bay.
I know you've had bad luck with docs, but that's in your past. Re frame your thinking to the positive, and you will attract it and make it happen (I can see in your post above you've already started to do this). Tell yourself it's going to be worth finding your new doc (beneficial experience). :)
-------------------- --Keep an open mind about everything. Also, remember to visit ACTIVISM (we can change things together). Posts: 5418 | From earth | Registered: Mar 2011
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lpkayak
Honored Contributor (10K+ posts)
Member # 5230
posted
A lot of back pain can be relieved by strenthening the abdominals
This can be done by almost anyone...even if you are bed bound
The easiest exercise is justtightenig the muscles-make sure your butt is tucked under an tighten your abd muscles-try to make your navel touch your backbone-hold, let go, rest and repeat
When this becomes ez look up back ex on net-there are progrrssive programs all the way to crunches wit weights
When i am in hospital i get terrible back pain after being in bed a few days if i dont do this...if i do even a few i am fine
Also be sure you walk with your butt tucked under...the opposite will give yo lower back pain
-------------------- Lyme? Its complicated. Educate yourself. Posts: 13712 | From new england | Registered: Feb 2004
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nefferdun
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Member # 20157
posted
Thanks Ipkayak but I have good posture. I had to engage my abs and tuck my butt under to be able to ride a warmblood. But I learned to engage my abdomen when I was a young woman and someone thought I was pregnant. A lot of people just let their abdomen flop out and it is no wonder their back hurts. I learned the hard way that it just isn't attractive either.
Singer have to engage their abx, dancers and almost anyone doing a sport. It is your "core" where all your energy comes from in Marshall Arts.
I found this about Bartonella Quintanna on a government site: "Bone pain, mainly in the shins, neck, and back"
From a blog, this is bart Q. "Sudden with high fever, chills,severe headache, back pain. The symptoms may reappear at five day intervals and thus the disease is also called five day fever." I didn't know that.
That site has an extensive list of symptoms if anyone wants to see it. It lists tooth and jaw pain, which I thought was just PR. Anyway please ignore the remedies they are promoting will cure you. I tried oils in 2009 - doesn't work.
-------------------- old joke: idiopathic means the patient is pathological and the the doctor is an idiot Posts: 4676 | From western Montana | Registered: Apr 2009
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lpkayak
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posted
I forgot you rode dressage or wouldnt have gone into so much detail Im lucky that still keeps my back pain away cuz my xrays look awful-the whole back but lumbar is worst-they are not pushing any kind of surgery-and im pretty sure i would refuse it unless life threating or something I havent ridden in about 3 years-getting back on horse is probably the strongest thing that keeps me going My posture is not good now-i shuffle and bend forward at the waist...riding 3 times a week-even only an hr at w/t keeps my core so much stronger...i walk better and everything is better
-------------------- Lyme? Its complicated. Educate yourself. Posts: 13712 | From new england | Registered: Feb 2004
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lpkayak
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posted
When i was riding grooming was very painful cuz of arthritis in my hands...i figured it out...for one horse a few times a week...but i could never do six I forget if you still ride. I had to sell my horses-well some i gave away to be sure they were in a good place-when i started treatment. There was no way i could treat work raise 4 kids and keep the horses Now i have trouble finding the right barn to lease at and a really quiet horse
Thanks for the memories...my heart rate goes down when i think about horses. Hope you figure out what to do about your back.
-------------------- Lyme? Its complicated. Educate yourself. Posts: 13712 | From new england | Registered: Feb 2004
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nefferdun
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posted
Another horse person!! I ride less and less. I kept up with it the first couple of years of treatment but I had 3 horses to ride then. One died in 2010 and I retired the warmblood when I had babesia with all the dizziness and vertigo.
The babesia also made me more anxious and I just couldn't handle his episodes. I got to the point I would just get on him and then start crying. He threw bucking fits though and broke my spine and arm way way back and I was haunted by that memory.
It is sad to see part of your life that you deeply love taken away. I have one horse left that I am responsible for riding. He spooked last summer when I was riding him bareback and sent me flying flat on my face. Whatever I have causes tremendous anxiety and it has been really hard to let go of my fear of getting hurt. This horse is pretty calm so that doesn't make much sense. I actually could ride him without anything on his head and now I am just through the roof nervous. I hope I can get some aggressive treatment so I have a life again.
I still ride him but not as much. Everyday I ask myself, is this the end? Very depressing. I don't have arthritis but my stamina is very low. Yesterday I groomed all the horses and then practically collapsed. Most of my horses are old, some very old, and I will probably never own another one. But I never thought I would give up with my favorite in his prime.
I had a very good idea to ride a mare instead of him for a little while as she has never done anything to unseat anyone. She is essentially a child's horse and that is what I need right now. I am 67, which doesn't help.
I just have to get rid of this infection. My appointment is Tuesday.
-------------------- old joke: idiopathic means the patient is pathological and the the doctor is an idiot Posts: 4676 | From western Montana | Registered: Apr 2009
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posted
We have horses too and ride western. Haven't be able to ride in a long time but I am hoping to this spring.
-------------------- Faithful
Just sharing my experience, I am not a doctor. Posts: 2682 | From Colorado | Registered: Oct 2009
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nefferdun
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posted
I hope you can too fateful. I notice you live in Colorado. We used to live in Loveland. I haven't been there in almost 20 years. There are some very beautiful places in Colorado for you to ride, if you can do it. There is nothing like spring in the mountains - so beautiful.
-------------------- old joke: idiopathic means the patient is pathological and the the doctor is an idiot Posts: 4676 | From western Montana | Registered: Apr 2009
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lpkayak
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posted
Im 64 and am not anxuous around horses but i am very picky about who i will ride. I know i cant move fast to get out of the way and cant deal with spooks at all. That said it is really hard to find super quiet sensible horses and riding is sorta like riding a bike...once im on its hard not to "ride right" and that is what gives me the good exercise that helps my core and reduces pain...so when ppl see me on they push me towards green horses with potential to get free training...and it is hard for me to walk away.
I find quarter horses by far the most sane and unfotunately warmbloods and ponies the craziest-i gave up on TBs years ago cuz i couldnt afford to feed them. And i found appys pretty ornery too.
also need a big mounting block so i dont have to use stirrup to get on. At one point
-------------------- Lyme? Its complicated. Educate yourself. Posts: 13712 | From new england | Registered: Feb 2004
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lpkayak
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posted
There was problems with my block and i had to dismount without it and even tho i tried not to land hard on my feet i did and i think that is why my fake knee broke
I have ridden a few quarter horses, a big draft/paint who bolted terribly and i found out it was pinched nerve after surgery and one of those little palamino colored draft ponies...cant think of their name. I started working with a 4-5 yo mare and the only thing she had done was pull a cart and compete in jousting tournaments! She had two speeds; go fast and stop.
She was really going good after. six months or so and i was really feeling good...but the work muscled her up and one time when cooling out on long rein she just jumped up -all four feet off the ground and gave a twisting buck at the top and i was off.
I know why she did it but she was just being stupid. I didnt dare ride her again tho.
But im 5' and she was only 13.2 and she had no trouble carrying me and i felt safe being so close ti ground
Theres a handicap riding place near here that teaches driving fir those who cant ride...i wonder if i could do that. It seems more realistic than riding. That or an ex western pleasure old man who will babysit me and be good to my joints
You guys are so far from me. Horses are very expensuve to havearound here if yo dont have your own barn
-------------------- Lyme? Its complicated. Educate yourself. Posts: 13712 | From new england | Registered: Feb 2004
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nefferdun
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posted
I agree with you about warmbloods. I have only had one and he was given to me. He is half TB with a very reactive personality. It is so nice to not have to every deal with that craziness again. I became very good at riding out bucks but I sure didn't like it.
The horse I have left is a foundation bred QH. I had not come off a horse in 9 years so that was a big shock. There was a pigeon in the indoor that hit a window and fell to the ground unconscious as though it were dead. Before it hit the window it flew right into his face, missing him by inches. I was very impressed he did not spook and thought he was invincible.
So the next time around the arena I was sitting sideways, looking at the pigeon that had come to and begun to wiggle around. I was wondering what was wrong with it. I was bareback on a really lose rein. Suddenly the bird flew up and the horse startled.
Because I was sitting off to the side, I went flying. As I was in the air I was thinking "no problem, the sand will be nice and soft" but the arena was compacted and hard as cement.
After that I was completely paranoid of pigeons and I still am. I am sure bartonella (or whatever) set off this anxiety. It is really sad to me.
I got to see the doctor tomorrow. I hope I get an answer to what this is. The alinia and bactrim I have been taking has helped tremendously. I believe I will exchange horses with my daughter because her horse 23 years old and really quiet. I just need to ride around quietly for awhile.
My back still aches but I am pretty sure it is bartonella.
-------------------- old joke: idiopathic means the patient is pathological and the the doctor is an idiot Posts: 4676 | From western Montana | Registered: Apr 2009
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lpkayak
Honored Contributor (10K+ posts)
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posted
Haflinger! Thats what she was...when i went off her it was my first fall in 28 yrs...but i didnt ride 10 of them cuz of lyme 23 sounds like a good yr to me!
I guess im talking too much about horses on a "back" thread
You,me faitful and i think catgirl do horses...i wonder who else
-------------------- Lyme? Its complicated. Educate yourself. Posts: 13712 | From new england | Registered: Feb 2004
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nefferdun
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posted
- Ipkayak, faithful and cat girl all ride. Faithful just told me and I'm sure cat girl has too.
I assumed you meant Haflinger - unless Fjord. Haflingers are beautiful. WHen the warmblood cracked my spine I started riding again on a POA - sweeties dearest little girl. We still have her and she is 35 years old.
I want my life back! My mental emotional sense of well being. I also want to remember.
-------------------- old joke: idiopathic means the patient is pathological and the the doctor is an idiot Posts: 4676 | From western Montana | Registered: Apr 2009
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lpkayak
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posted
My favorite horse will be 34 this spring. Im not positive hes still alive. Years ago i gave him to a woman with a farm who gave lessons and took kids to shows. The kids loved him and did well at shows...mostly wbt and cross rails. I have been back to see him a few times he has the run of the place now. The farm is a mountain top-rare around here. There are fenced paddocks around perimeter...and the only way out is a long drive. It isnt gated during the day but he stays close
One of my biggest sadnesses from this stupid disease is that i couldnt keep him and one other older grade pony until the end. Im pretty sure the ppl i gave them to will do the right thing and not let them suffer. But at times i still cry over it-like now.
Kids get older and stronger and more independent but pets get older and weaker and need us more.
Actually...it must be really hard for those with lyme who are responsible for aging parents. My dad died young but i had a taste of that with my mom. There were six of us...so another sibling took over when i got sick
STUPID DISEASE !!!
-------------------- Lyme? Its complicated. Educate yourself. Posts: 13712 | From new england | Registered: Feb 2004
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