posted
Has anyone seen any abstracts, peer-reviewed articles, or any information at all on a connection between Lyme/Babesia/Bartonella and Crohn's Disease?
Posts: 246 | From south florida | Registered: Mar 2010
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nefferdun
Frequent Contributor (1K+ posts)
Member # 20157
posted
I haven't. I just wanted to tell you that they did a study at Penn State University using Low Dose Naltrexone for Crohn's. 2/3 of the people went into remission and nearly 90% benefited.
As the infections can cause auto immune diseases, it is very likely that they could be causing it - sometimes. So could a lot of other things. Protomyxzoa Rheumatica is strongly linked to auto immune disease.
-------------------- old joke: idiopathic means the patient is pathological and the the doctor is an idiot Posts: 4676 | From western Montana | Registered: Apr 2009
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Three of my brothers, now in their 50s and 60s, have Crohn's and arthritis. They have had mainstream treatment and have been ill all their lives since their late teens.
My son got terrible arthritis starting at age 19. He is now almost 23 and has been in a complete remission for two years. He had Lyme treatment as well as antibiotics for what his doctor considered a subclinical Crohn's disease.
His doctor is , as she says, "a Georgetown-trained autoimmune specialist rheumatologist who never believed the autoimmune theory."
She believes that if you get the infectious load down in the body with antibiotics, antiparasitics, antivirals and antifungals, you can get rid of the inflammation.
My son is well. I'm not sure who you can go to in Florida, but Dr. F in CA and Dr. Z in Virginia are good choices for getting antibiotic treatment for Crohn's.
You could also ask for a doctor on roadback.org.
My son's doctor started with oral Vancomycin for infections in the gut, and also did rounds of antiparasitics.
Good luck.
-------------------- Son, 26, Dx Lyme 4/10, Babs 8/10 Had serious arthritis, all gone. Currently on Valtrex Daughter, 26,bullseye 7/11 arthritis in knees, cured and off all meds. . Self:Lyme, bart, sxs gone, no longer treating. Posts: 496 | From Washington, DC | Registered: Jul 2010
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Razzle
Frequent Contributor (1K+ posts)
Member # 30398
I believe I was misdiagnosed with Crohn's as a teenager. I had a bleeding fistula, inflammation, and severe diarrhea. I was also told I had an amebic parasite.
After treatment for the parasite stopped my symptoms and healed the fistula, I have never had another recurrence of those same symptoms.
And extensive scans (for functional GI symptoms, gastroparesis, etc.) showed no evidence I had ever had Crohn's, according to a major/well-respected medical facility.
While I still have gut inflammation, it always tests as "non-specific" which means they can't point to a specific cause.
Found out that rare cases of amebic parasites can cause the fistula & inflammation like I had as a teenager.
I believe that many cases of "autoimmune" diseases are really ongoing inflammatory symptoms caused by chronic stealth infections such as Lyme (& coinfections).
posted
I am always amazed at the wealth of information here and so very grateful for your caring hearts, thank you.
Posts: 246 | From south florida | Registered: Mar 2010
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posted
That citation from Razzle (the one from canlyme) also has a discussion on page 20 of persister cells and how they contribute to chronic lyme. That is the work of Lewis at Northeastern University that Rday mentioned in his post in the General topics forum.
Lewis is working on finding ways to kill off the persister cells.
I think this is going to be helpful for a lot of illnesses that are caused by chronic bacteria.
-------------------- Son, 26, Dx Lyme 4/10, Babs 8/10 Had serious arthritis, all gone. Currently on Valtrex Daughter, 26,bullseye 7/11 arthritis in knees, cured and off all meds. . Self:Lyme, bart, sxs gone, no longer treating. Posts: 496 | From Washington, DC | Registered: Jul 2010
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D Bergy
Frequent Contributor (1K+ posts)
Member # 9984
posted
I have Crohns Disease.
So far I have identified four pathogens that contribute to the disease.
Mycoplasma. This could be the reason the disease starts to begin with, but any pathogen, such as Borellia that weakens the immune response could start the ball rolling.
Mycobacterium tuberculosis subspecies Avium. (MAP). This pathogen is probably the most suspect with Crohn's disease. Probably causes most of the damage although mycoplasma did a number on me also.
Some strain of E-Coli is involved from my amateur testing. Not sure what strain.
H-Pylori was involved with my Crohns. I am not sure if this is always the case but it was for myself.
My hypothesis is a pathogen infection first has to alter the immune response. It may not always be the same pathogen, but probably limited to a handful.
Then, if you are exposed to the MAP bacterium your ability to eliminate it is compromised. Then you reach a point of continuos inflammation from the immune system always trying to kill the infection, but unable to do so. The MAP bacterium secretes mannose which feeds E-Coli and increases it presence beyond the norm until it also is causing inflammation.
There may be other pathogens involved also as once the immune system is compromised it leaves you wide open.
I have reduced or eliminated all the above pathogens, except the E-Coli, with a Rife machine. I take no medications any longer as they did not work anyway. I am probably not cured but I am one heck of a lot better than I was.
I have more to learn, but once you are symptom free, the learning comes to a stop. I am hoping other people with Crohns will try replicate this method to further refine it. So far not much interest.
Dan
Posts: 2919 | From Minnesota | Registered: Aug 2006
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posted
My dd was misdiagnosed with CD/UC before finding Dr. Fried's work, finding this group, then being diagnosed and treated properly for 1 1/2 years.
She now can eat anything. She did SCD for over 5 years while I figured this all out for her.
-LAXlover
-------------------- LAXlover Posts: 371 | From Northern Baltimore Area | Registered: Apr 2010
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