nefferdun
Frequent Contributor (1K+ posts)
Member # 20157
posted
I had to quit Rifampin because of side effects. My brain fog and depersonalization is better, anxiety almost gone and I am even sleeping.
But my feet are still sore in the morning when I first get up and walk, although it only lasts a couple of minutes. I also still get headachs at night.
A doctor (not an LLMD) gave me Nortrytyline to try to stop the cycle of headaches. It has more side effects than any drug I have ever seen. I only took a very small dose for 3 days.
WHile taking the nortrytyline I began to develop pain in my shoulder, which is now radiating down my arm. I was also having burning skin sensations.
I have had a couple of muscle twitches that don't last long. I don't know if these are new bartonella symptoms or side effects.
I am off abx, only taking A-Bart and Cistus right now. I upped the A-Bart to 15 drops yesterday.
-------------------- old joke: idiopathic means the patient is pathological and the the doctor is an idiot Posts: 4676 | From western Montana | Registered: Apr 2009
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posted
Dear nefferdun, I've had chronic migraine for years. When I have a stretch of headaches my electrolytes get out of balance and I get muscle spasms and shoulder and upper back & neck pain. Be sure you're getting your electrolytes, especially potassium and minerals. Also, you need lots of fluids. Mineral water is great when you have a h/a. Good luck!
Posts: 143 | From Pittsburgh | Registered: Jan 2014
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surprise
Frequent Contributor (1K+ posts)
Member # 34987
posted
My opinion is it certainly could be the A-Bart, you ramped up extremely fast, right? 5 drops to 15?
I know it's hard to believe sometimes these tinctures can produce, but that's been my experience.
-------------------- Lyme positive PCR blood, and positive Bartonella henselae Igenex, 2011. low positive Fry biofilm test, 2012. Update 7/16- After extensive treatments, doing okay! Posts: 2518 | From USA | Registered: Nov 2011
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nefferdun
Frequent Contributor (1K+ posts)
Member # 20157
posted
Good points. I have some minerals I can and should be taking especially since I was chelating heavy metals. I will get serious about taking that.
And maybe I am herxing - that would be good that the A-Bart actually works. I haven't had much luck with tinctures being very effective but everyone seems to think these Byron White formulas are the best.
The pain comes and goes. No pain right now. Sometimes I feel almost normal. I just question these days my memory of what normal is and how much I am dismissing as just the new normal.
-------------------- old joke: idiopathic means the patient is pathological and the the doctor is an idiot Posts: 4676 | From western Montana | Registered: Apr 2009
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Judie
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Member # 38323
posted
I just looked up Nortrytyline and it's an antidepressant. Wikipedia says:
"Nortriptyline is an active metabolite of amitriptyline that is demethylated in the liver"
Do you have methylation problems?
It also says this:
"Metabolism Nortriptyline is metabolized in the liver by the hepatic enzyme CYP2D6. Approximately 7-10% of caucasians are poor metabolizers and might experience more adverse effects, so a lower dosage is often necessary in these individuals.[9] Blood levels of nortriptyline should be obtained during long term treatment to avoid toxicity and optimize response."
Posts: 2839 | From California | Registered: Jul 2012
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nefferdun
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Member # 20157
posted
Thanks Judie! Yes, I do have methylation problems. The pain is gone now. I hope it stays away. I bet it was a nortriptyline side effect. The headaches were not nearly as bad as the remedy to fix them! There must be 100 side effects of that drug.
-------------------- old joke: idiopathic means the patient is pathological and the the doctor is an idiot Posts: 4676 | From western Montana | Registered: Apr 2009
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nefferdun
Frequent Contributor (1K+ posts)
Member # 20157
posted
As they didn't go away I think it is the bartonella coming out in a different way. I have daily headaches and also get hot flashes and sweating.
The pain comes and go. I began to get frequent urination at night again but surprisingly I am sleeping well. That is what just doesn't make sense. I never sleep with bart. Maybe the Rifampin knocked it out of my brain and into the rest of my body.
I started bactrim today. Hopefully I can tolerate it. I began with a very small dose.
-------------------- old joke: idiopathic means the patient is pathological and the the doctor is an idiot Posts: 4676 | From western Montana | Registered: Apr 2009
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surprise
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Member # 34987
posted
Neff, just wanted to share I have found the BW formulas to also 'hit' infections in a different manner than antibiotics/ prescriptions.
I very recently started A-FNG, as I am still working on gut health, quickly went up to 8 drops 2x a day (but they come out like thick tar and hang, can't really measure despite good shake)
Anyway, last few days I'm having bizarre symptoms- not what I normally associate w/ yeast die off. It's not very 'fun', shall we say.
-------------------- Lyme positive PCR blood, and positive Bartonella henselae Igenex, 2011. low positive Fry biofilm test, 2012. Update 7/16- After extensive treatments, doing okay! Posts: 2518 | From USA | Registered: Nov 2011
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CD57
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Member # 11749
posted
I think you tried A bart before, have you tried all the Buhner herbs?
I was interested that chelation seemed to help you with your symptoms....I have noticed that with others. How many have you done (I assume this is EDTA)?
Why do you think it helped?
Posts: 3528 | From US | Registered: Apr 2007
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nefferdun
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Member # 20157
posted
I am a lot better from the three days of Bactrim even though I just take it in the morning. I didn't even have a headache last night and I slept normally. I am still doing the A-Bart too but never again the nortryptaline.
I have been taking LipoPhos EDTA. It is supposed to be as effective as IV chelation. I think it works really well. If you google EDTA, it is very effective against biofilm too and it also weakens the pathogens so they are more susceptible to abx.
The Liposome encapsulates the EDTA. As it is fat, the biofilm readily takes it in, where the EDTA is released to do it's job. The only thing I don't like about it is the taste.
You can make liposomes yourself. I want to make one with the tinctures to make them more effective but honestly the taste is holding me back. The fat is from lecithin which is good for your brain.
The most horrible liposome is glutathione. That is just wretched. The LipoPhos EDTA I can get down if I put it into my mouth and immediately begin drinking juice to swallow it. The homemade liposomes like vitamin C, are not so bad.
-------------------- old joke: idiopathic means the patient is pathological and the the doctor is an idiot Posts: 4676 | From western Montana | Registered: Apr 2009
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Jamers
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Member # 28016
posted
Surprise, just curious what your A-Fng die off is like. I'm going to start that soon.
-------------------- Diagnosed Pos. Lyme Nov. 17, 2010, Igx. Pos. Babesia Duncani March 2011, Igx. Clinical diagnosis for Bartonella Posts: 1127 | From North Carolina | Registered: Sep 2010
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