LymeNet Home LymeNet Home Page LymeNet Flash Discussion LymeNet Support Group Database LymeNet Literature Library LymeNet Legal Resources LymeNet Medical & Scientific Abstract Database LymeNet Newsletter Home Page LymeNet Recommended Books LymeNet Tick Pictures Search The LymeNet Site LymeNet Links LymeNet Frequently Asked Questions About The Lyme Disease Network LymeNet Menu

LymeNet on Facebook

LymeNet on Twitter




The Lyme Disease Network receives a commission from Amazon.com for each purchase originating from this site.

When purchasing from Amazon.com, please
click here first.

Thank you.

LymeNet Flash Discussion
Dedicated to the Bachmann Family

LymeNet needs your help:
LymeNet 2020 fund drive


The Lyme Disease Network is a non-profit organization funded by individual donations.

LymeNet Flash Post New Topic  New Poll  Post A Reply
my profile | directory login | register | search | faq | forum home

  next oldest topic   next newest topic
» LymeNet Flash » Questions and Discussion » Medical Questions » Co-infections?

 - UBBFriend: Email this page to someone!    
Author Topic: Co-infections?
nikkabelle
Member
Member # 43604

Icon 1 posted      Profile for nikkabelle     Send New Private Message       Edit/Delete Post   Reply With Quote 
This might be a stupid question, but how likely is it (or even possible) to have co-infections and NOT lyme?

I'm going to have testing done through Igenex and can't decide if I should primarily test just for Lyme, or co-infections as well?

Would it make most sense to first see if lyme comes back positive?

--------------------
[Smile]

Posts: 81 | From Minnesota | Registered: Apr 2014  |  IP: Logged | Report this post to a Moderator
surprise
Frequent Contributor (1K+ posts)
Member # 34987

Icon 1 posted      Profile for surprise     Send New Private Message       Edit/Delete Post   Reply With Quote 
If you haven't tested for Lyme yet through either Igenex or a Advanced Labs, how do you know you don't have it?

I guess I assume since you are on Lymenet, you have symptoms.

If you've never tested for co- infections, I would get the co- infection panel through Igenex done.

I guess you could have standalone Bartonella from a cat, or standalone babesia from a blood transfusion, but, it's rare, I think.

MN is a hot spot.
If you are here, there is a reason.
I think best to test for it all. If one comes back suspicious, where there is smoke, there is fire.

--------------------
Lyme positive PCR blood, and
positive Bartonella henselae Igenex, 2011.
low positive Fry biofilm test, 2012.
Update 7/16- After extensive treatments,
doing okay!

Posts: 2518 | From USA | Registered: Nov 2011  |  IP: Logged | Report this post to a Moderator
TF
Frequent Contributor (5K+ posts)
Member # 14183

Icon 1 posted      Profile for TF     Send New Private Message       Edit/Delete Post   Reply With Quote 
Get tested for lyme and a complete coinfection panel. That's what the lyme doctors usually do.

Since the tests are not that accurate, you test for everything. If anything comes up positive, that is a strong indicator that you are on the right track.

So, for example, if you test positive for babesiosis, you most likely have lyme. Same if you test positive for bartonella.

It is rare to have a lyme coinfection and not have lyme. My lyme doctor calls such a test result a "smoking gun."

On the other hand, if you clearly have lyme based on symptoms and medical history (an attached tick or bulls eye rash and then the symptoms started, for example), many lyme docs will save you the money and not test for lyme.

They will also not test for any coinfection that you clearly have. So, if you have night sweats, air hunger, etc. you have babesiosis. If you get sore soles of the feet and you have abdominal pain and nodules on your shins, no sense testing for bartonella. You have it.

So, if your case is clear and your doc agrees, you don't have to test for any of those 3.

Some lyme doctors want a positive test in the file even if you have all the symptoms. It can protect them if a state medical board tries to get on their case. So, go along if the doctor wants to test in a case like this.

Back when I was doctoring for lyme, Igenex threw in a free lyme test if you ordered the complete coinfection panel. So, you may want to find out if that is still the case. Check Igenex site or call them if it doesn't say.

Posts: 9931 | From Maryland | Registered: Dec 2007  |  IP: Logged | Report this post to a Moderator
Judie
Frequent Contributor (1K+ posts)
Member # 38323

Icon 1 posted      Profile for Judie     Send New Private Message       Edit/Delete Post   Reply With Quote 
Test for everything. It's the best way to find out what's going on so you can be on the right treatment plan.

This link has a list of coinfections to test for. You may have more than you think (I had 13 and tested through Labcorp).

Topic: Chronic Fatigue Syndrome - A Roadmap for Testing and Treatment
http://flash.lymenet.org/scripts/ultimatebb.cgi/topic/1/127210?#000000

Posts: 2839 | From California | Registered: Jul 2012  |  IP: Logged | Report this post to a Moderator
nikkabelle
Member
Member # 43604

Icon 1 posted      Profile for nikkabelle     Send New Private Message       Edit/Delete Post   Reply With Quote 
Surprise -- I am on Lymenet because I think I may have Lyme. I was just tested a while back through Quest (I know, not reliable), and it was negative. I had/have been seeing a Lyme Literate doc, and he says he doesn't really think I have Lyme. I am questioning that a bit though, and have decided to get tested through Igenex on my own, just to be safe.

Since this will be my first time testing through Igenex to see if I get a positive test, I wasn't sure if I should go forward with the full co-infections panel at the same time.

I did have some recent test results come back abnormal from my Lyme doc though. He ran the biotoxin/mold panel and based on those results diagnosed me with Biotoxin Illness.

My C4a is double the normal range.

About a month ago he put me on a trial of Flagyl to try something out and I got a major reaction from it (high fever, flu-like symptoms, etc) for a couple days. Then it just went away. That has also made me wonder what is going on inside me.

The combination of the biotoxin results and Flagyl reaction peak my curiosity, even though my symptoms don't completely match up with Lyme, and most people seem to have many more symptoms than I do.

Still, I know there is something going on.

[ 05-02-2014, 02:55 PM: Message edited by: faithful777 ]

--------------------
[Smile]

Posts: 81 | From Minnesota | Registered: Apr 2014  |  IP: Logged | Report this post to a Moderator
   

Quick Reply
Message:

HTML is not enabled.
UBB Code is enabled.

Instant Graemlins
   


Post New Topic  New Poll  Post A Reply Close Topic   Feature Topic   Move Topic   Delete Topic next oldest topic   next newest topic
 - Printer-friendly view of this topic
Hop To:


Contact Us | LymeNet home page | Privacy Statement

Powered by UBB.classic™ 6.7.3


The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:

The Lyme Disease Network of New Jersey
907 Pebble Creek Court, Pennington, NJ 08534 USA


| Flash Discussion | Support Groups | On-Line Library
Legal Resources | Medical Abstracts | Newsletter | Books
Pictures | Site Search | Links | Help/Questions
About LymeNet | Contact Us

© 1993-2020 The Lyme Disease Network of New Jersey, Inc.
All Rights Reserved.
Use of the LymeNet Site is subject to Terms and Conditions.