posted
Our 10 yr old son is being treated for Babesia duncani.
He is on Azithromycin, Malarone and Amoxicillin (for strep and I think Borrelia too). My husband and I cannot tell if he is not feeling well, tired, lethargic (more than usual), increasing severe headaches, anxiousness, ocd...
If he is herxing, or is this a side effect of the Malarone and he needs to be changed to something else like Mepron...?
I know with his double MTFHR deficiency he can't get rid of toxins well, so I am wondering if he needs to be prescribed Welchol or activated charcoal...whatever is appropriate for children to bind to the toxins and get them out of his system.
Just curious if any of you have any experience in this area. On his last blood test before the Malarone was added, his Babesia duncani titers went up when he was just on the Azithromycin alone-
so I guess his body is producing more antibodies to the infection...I think. hope. He is also on Amoxicillin because he has extremely high strep titers, and I think Amoxicillin also helps with the Borrelia.
Any experience or input about the Malarone or Mepron, etc. would be greatly appreciated.
Oh, I forgot something very important; when we did take him off the Malarone, well we actually ran out, he didn't take it for a few days and started to feel better, so we didn't give it to him for a week.
I don't know if that was good or bad, but it sure gave our Big Buddy a break and it was great to see him smile and happy again. I have put a call into his Pediatric LLMD to get his input, but I called late this afternoon, so his office will probably call me back tomorrow.
Thank you ahead of time for any personal experience, or information from you guys have learned.
Posts: 167 | From Southeast Tennessee/Chattanooga/Atlanta | Registered: Oct 2012
| IP: Logged |
posted
At one point our 10 year old daughter was taking mino/azith/plaquinel/tindamax/malarone for lyme/bart/probable babesia, although she has never tested positive for the babesias (or had babesia symptoms for that matter). We were not able to discontinue bart treatment for any length of time without relapsing so our LLMD assumed something else was at play.
We weren't able to give this combo continuously because the herxing would not resolve as it had with the double combos.
So our LLMD pulsed 4 days on 3 days off. That gave her a break and we started to see the herxing cycles decline over the course of a couple of months. A couple of days of herxing would start declining by the 4th day, and then the rest of the week would be good.
Too much herxing isn't the best. Our daughter has a heterozygous A1298C MTHFR deletion.
Malarone didn't cause babesia herxes for us. Most of our daughter's symptoms were bartonella and that's what most of her herxes were too (fatigue, motor/vocal ticcing, long bone pain, headache).
It wasn't until we weaned abx, started Buhner's bartonella protocol and added CSA (cryptolepis/sida/alchornea) to it that our daughter actually had a babesia herx (air hunger, chest pressure, sighing). So we backed down from 15 drops 3x daily to 15 drops 2x daily.
Both malarone and cryptolepis have produced major gains in cognitive/executive ability.
-------------------- 13 yo DX PANS/Tourette's/Asperger's/ADHD treated for Igenex positive bartonella/IND lyme with 2 years of abx treatment. Weaned off abx April 2013 at 80% improvement. Continuing with Buhner bartonella/babesia protocols. Aug 2014 99% improvement. Posts: 265 | From Canada, Ontario | Registered: Jul 2013
| IP: Logged |
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
UBBFriend: Email this page to someone!
![[confused]](graemlins/confused.gif)
hope. He is also on Amoxicillin because he has extremely high strep titers, and I think Amoxicillin also helps with the Borrelia.
Printer-friendly view of this topic