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» LymeNet Flash » Questions and Discussion » Medical Questions » What part of your body do your feel the disease is concentrated in ?

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Author Topic: What part of your body do your feel the disease is concentrated in ?
springshowers
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Where in the body do you think the disease has choosn to concentrate itself in ?

If you were told you could eradicate only one area of body such as literally three inch square area where would you want to focus on based on your experiences and education and intuition. ?

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LisaK
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not sure.... too much everywhere to say

--------------------
Be thankful in all things- even difficult times and sickness and trials - because there is something GOOD to be seen

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birdie67
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Head
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randibear
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me too..head

--------------------
do not look back when the only course is forward

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Lymetoo
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3 inches?? That won't cover all my body parts!! lol

--------------------
--Lymetutu--
Opinions, not medical advice!

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GretaM
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Haha! Lymetoo..me too! Lol

I would say first choice head.

2nd choice-the bump on the spine where my neck meets my shoulders.

3rd choice-the base of my skull, in my cervical vertebrae.

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lymeboy
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head for sure. ears are constantly clogged. Jaw pain, teeth problems, post nasal drip. horrible tinnitus. Brain fog has gotten way better but I still get dizzy. I wish i could just chop my head off some days...
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Lymedin2010
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Mine was all in my head for years. Then head, neck & stomach for a few more years. Then when I went chronic it traveled within the next few months down my torso. Then the next few months into 3 years on my arms & my legs.


The legs & arms did get worst over time too. More twitching, movement, burning & occupancy. I have a harder time lifting my arms up for too long now & this is despite ABX.

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springshowers
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Lots of head and necks !

Do you think that's where they live the most ???

Even if you end up with various symptoms maybe its a due to them traveling upward to our brains and affecting the nervous system that affects and controls everything ...

I know they go other places but seems like its true
The neck and head are where they like to live.


In my laser treatments I herx 50 x worse if I treat neck area
Vs below the the neck anywhere.

It is proven the biofilms and bugs like it there and such as CCSVI and why I got the laser in first place.

I didn't anticipate such a huge difference in reaction though in that area vs otters. Its a huge difference in response.

I wonder if it would be same for most others.
I happen to have this tool that targets one area at a


But the neck. Omg.
The neck I can barely can treat there a few seconds and I herx like crazy.

Makes me wonder and its so ironic and matches my intuition and goal.

Kinda strange.

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GretaM
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Hey springshowers,

Inadvertently, I started talking with a total stranger today when I saw she had lyme colours on.

She mentioned when she herxes, her spine swells up right where the neck meets the shoulders.

She is the first person I've talked to who has the same swollen bump right there.

So I would bet the neck is a hot bed for bacteria.

When my non LL, but lyme friendly pcp does trigger point injections, he always mentions fever when he injects there.

That spot is physically warmer than anywhere else he injects.

How long do you put the laser on your neck springshowers?

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dbpei
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My most bothersome symptoms are in my head, sinus and ears. Interesting that so many here are posting similar! I wonder if everyone who posted about this also have the crackling sounds when they turn their head in any direction. I often wonder if I have Lyme arthritis of the skull and all the bones in my head!
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lyme in Putnam
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Head

--------------------
He took u to it, He'll you through

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springshowers
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Greta
It's the jugular veins !

I have tested other veins in my body and herx is a small fraction of the neck.

The back and spine and head are next as far as severity but I can treat those areas for more normal time frame in minutes.

The neck veins I still can't go up from six seconds and herx lasts up to four days. Incredible.

It's that area they adhere to and colonize to in me anyway.
I have that bump on back of my neck too.
I haven't done a directed treatment right on that bump but I will try it.

Sadly systemic biofilm treatments orally have not done enough. It helps but its like picking away at the clogged pipes that if you don't clear out completely just rebuilds rapidly and even when you clear them in time it comes back

It's like we need ongoing biofilm therapy just to try to control the growth and it seems Impossible to erradicate.

Maybe. ( fingers crossed ) I will notice less herx as I treat and I can use it to maintain. I pray and hope for that.

Time will tell.

[ 05-08-2014, 12:16 PM: Message edited by: springshowers ]

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Pocono Lyme
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Head

--------------------
2 Corinthians 12:9-11


9 But he said to me, �My grace is sufficient for you, for my power is made perfect in weakness.� Therefore I will boast all the more gladly about my weaknesses, so that Christ�s power may rest on me.

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joahsark
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Head, a million times, head!
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kreynolds
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Head, joints and sometimes the stomach

--------------------
Diagnosed CDC + 6/2007

Quest: + IGG Bands 18,23,39,41,58,66 and 93.

Quest: + IGM Bands
23,39

Quest: + Bartonella (B.Henselea & B. Quintana),+ Babesia, and + Mycoplasma and Lyme-Induced Addisons Disease

+ Biofilm blood test 12/2010

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Lymetoo
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Mine was more in my joints and muscles.

--------------------
--Lymetutu--
Opinions, not medical advice!

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GretaM
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Dbpei-yes when I turn my head or my neck, my vertebrae pop and crack.

When I adjust my head at night to be more comfy in the pillow, my spine cracks and pops.

It feel like one of those noisy firecrackers at times haha.

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'Kete-tracker
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From my hands (strong!) up past the elbows...
& some "fuzzy" in lower leg thighs & calfs.
All this in the morning, upon awakening.

But some months- for a day or 2- it also hurts in the lower chest, behind the lowest ribs. :-(~

Heart checked out 100% fine, thank God.
("Echo" & EKGs)

Brain "zings" are extremely rare now, TTL.

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norcal
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Lower back,bladder....wheeeee! Are we all having fun yet?
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glm1111
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Came across some info last week when researching parasites, that Filarial worms like the soft fatty tissues under the shoulder blades.

I have seen other parasites shaped like cherry stems emerge from these areas at times during my intense cleansing with salt/c and herbs. My biggest problem areas have been my head and G.I. track.

From personal experience there is more than just ketes involved and there is no doubt in my mind that there are at least 5-6 different parasites causing a dissemination and hyperinfection into ALL areas of the body.

Gael

--------------------
PARASITES/WORMS ARE NOW
RECOGNIZED AS THE NUMBER 1 CO-INFECTION IN LYME DISEASE BY ILADS*

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desertwind
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Head, neck, brain and surgical areas.
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GretaM
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Norcal- [Big Grin]
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VV
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Spine
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VV
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and eyes
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springshowers
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Dr Macdonald lists head lungs heart and spine as affected areas.

I wonder where they most like to nest though I'm sued they like areas where nutrients most readily available ?

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mamalicious
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Bladder or Head, I'm torn...
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lymeboy
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I think that the problem with Neuro Lyme/coinfections is the BBB. Getting drugs past the fluid barrier is tricky and detoxing the sludge that treating creates seems to be even trickier.

HOW DO WE DETOX NEUROTOXINS? How do we clean out our brains? I'd really like to hear from some detox people on how we can best address the neuro die-off issues. I've been on other threads talking about this very issue, but never gotten too far. There seems to be a lack of info on how to deal with our heads!
For me, If I could keep my ears from clogging and get my sinuses back in order, get the tinnitus under control, I might feel almost 100%. This is the corner I cannot seem to turn and it's drivin' me nuts!

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CherylSue
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Brain, but that has mostly resolved. I would say fatigue and stamina are my remaining issues. I want to be 100%.
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carolann2013
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I wonder if the fatigue and stamina is just the need to build muscles back?

When you are sick you aren't getting much exercise. Makes you wonder. Everything is not always Lyme.

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VV
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"I wonder if the fatigue and stamina is just the need to build muscles back?"

My fatigue and stamina issues were the first major Lyme symptoms. I developed extreme exercise intolerance (always a harsh payback for activity).

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nefferdun
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Brain and eyes. My eyes never seem to get better. My brain fog seems to be better but after all this time I can't remember what it was like to be normal.

--------------------
old joke: idiopathic means the patient is pathological and the the doctor is an idiot

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SLML
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Omgosh!

As I sit here, I feel the pain where my neck meets my shoulders, sometimes it tingles with pain there. As I am reading the answers to this question I was shocked other people have the same thing. I always read neck pain as a symptom but since mine is where the neck begins almost on level with the shoulders I didn't know if it was true 'neck' pain but after reading these posts I realized that it is the SAME pain in the SAME area!!!

It has really emerged since I began treating the Babesia though which is interesting. I have been treating the Lyme for 6 months and haven't had the neck pain or juglar pain but when I started treating babesia (Malarone and Artemesinin) these both have hurt and HAVEN'T stopped hurting. Interesting.

A-Bab - caused the jugular on the left of my neck to be incredibly sore - almost like whiplash from an accident except there had been no accident.

I just had to share because I am still in awe that others list these areas as the main area.

Now back to rubbing the back of my neck. Sometimes I am afraid I may look like I have a hump on my neck from this pain there..(I had it on and off for years before I began treating)...

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randibear
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I have what old timers call "widow's hump" which is a kind of hunchback look. my neck and across the shoulders stays puffy and swollen.

it's lyme I'm thinking.

--------------------
do not look back when the only course is forward

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springshowers
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I wouldn't have guessed neck based on symptoms alone. But since using cold laser on specific areas and watching individual reactions I have found it to be hot spot.
It makes sense if you think the bugs like to be in brain and they need to travel upward as well like certain types of blood and areas where they can get nutrients.
Makes sense. As well they like to adhere to sides of veins a grow biofilms. The neck is a great spot for multiple reasons.

How can we treat the area in a concentrated way ?
How can we treat the brain more directly too ?

I agree we need to address these areas.

The brain controls so many functions of body.
Nerves control organs and digestion and pain and do many things. If bugs are causing havoc in our brains the symptoms can be much more wide spread than just in the head area.

Do maybe what we feel as symptoms really comes from the infections affecting the neck / brain area and affecting autonomic nervous system.

It could be we are assuming head symptoms come from head and also that the rest caused by actual organ or area of body we feel the symptom directly at and affecting.

Maybe a bad assumption ?

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springshowers
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CCSVI

Copy of notes by Better Health Guy from conference
Dr. Dietrich Klinghardt - CCSVI

Chronic cerebro-spinal venous insufficiency is a narrowing or "stenosing" of the veins that return blood from the head.
CCSVI was originally identified by Dr. Zamboni in Italy in MS patients.
Dr. Klinghardt has seen CCSVI in 100% of his tested MS patients, autism patients, Parkinson's patients, ALS patients, and Lyme patients.
Treatment is to eradicate biofilm and endothelial infections such as nanobacteria, Rickettsia, Borrelia, Mycoplasma, and Chlamydia pneumoniae using the Klinghardt Biofilm Protocol.
Then the immune system is downregulated using BioPure Lyme Nosode, Sanum homeopathics for molds, EMF mitigation, and auto-urine therapy.
Next, circulation is opened using bee venom ointment, oral nanoized curcumin with black pepper, or Mucokehl.
To open the blocked veins, a dental splint, neural therapy in the tonsils and anterior neck veins, osteopathy, or the balloon dilation procedure may be used.
Out of 38 Lyme patients Dr. Klinghardt had scanned for CCSVI, all 38 were highly positive.
Once the balloon procedure is done to open up the veins, if Lyme is under-treated and vascular inflammation is still present, the CCSVI will reverse and re-stenose.
Buzzing in the brain, floaters in the eyes, and many neuro symptoms in Lyme may be related to CCSVI.
If seizures are present, the seizure focus is often on the same side as the CCSVI.
There is often iron buildup in the basal ganglia, which can be related to Parkinson's disease. Iron has also been found in the substantia nigra.
Neurological illnesses are vascular diseases which lead to neuron disease. 3-4 focal stenotic areas may be the cause of a neurological illness.
There are 5 parameters that are looked at during a CCSVI evaluation. In MS, 2 of 5 are often observed. In Lyme, it has been closer to 4 of 5 and in autism, it is often 5 of 5. The best Lyme patient thus far was 3 of 5. Lyme patients, on average, test worse than MS patients.
Stenosis leads to abnormal hemodynamics, endothelial damage, vessel wall breakdown, and leakage of T-cells and iron into surrounding tissues. Iron is inflammatory which results in further breakdown of the microvascular system.
Outflow of blood from the brain has been overlooked. Most anatomy texts don't even show the veins in the neck.
Backpressure in the brain results from CCSVI.
Most people with chronic Lyme disease will test positive for CCSVI.
CCSVI is likely an issue in most children with autism. The brain cannot develop. Perfusion (arterial blood flow) of the brain may be reduced by 70%.
Treatment for CCSVI includes:
Eradicating biofilms and endothelial infections such as Nanobacteria, Rickettsia, Borrelia, Mycoplasma, Chlamydia, and Mycoplasma.
Downregulating the immune response. This may be done with BioPure Lyme Nosode, Sanum remedies, auto-urine therapy, and reduction of EMFs.
Opening circulation. This may be done with bee venom cream, nanoized curcumin with pepper, or Mucokehl.
Opening veins. A dental splint may be used to increase vertical dimension. Neural therapy to the tonsils and neck may be performed using procaine with either DMPS, ozone, or Sanum remedies. Osteopathy, kinesiology, or a balloon dilation or stent.
Rickettsia and Chlamydia pneumonia cause irritation of the veins. Lyme, Babesia, Bartonella, and Mycoplasma do as well.
The endothelium is the largest organ in the body and is "bug heaven".
Infections are covered with a protective layer of fibrin. 1000 times the amount of antibiotics are needed to address a microbe when biofilms are present. To get to this level, the patient would not survive the treatment as the antibiotics would be toxic.
Auto-urine therapy was big in Europe before WWII. The kidneys excrete fragments of DNA from the microbes. Drinking this gets the GALT to wake up; the GALT is where 80% of the immune system exists. 1 glass of mid-morning and afternoon urine may be used. A urine nasal spray may be used using a puff twice a day. This downregulates the immune response.
It is the host response that kills the patient, not the bugs. Downregulating the response is thus a key to treatment.
With energetic testing, a warm water bottle may be placed around the neck for 3 minutes. You often then find that most supplements that previously tested well are no longer needed. The stenosis was then the reason for everything that no longer tested beneficial.
CCSVI causes dying teeth.
Staph in the nose creates three potent biotoxins. The neck is the bottleneck of the operation where things get backed up. With energetic testing, one may focus on the neck area as this may be a location where more microbes are present.
You have to treat all the factors first, then have CCSVI done to dilate the veins. Otherwise, any results from the procedure may not be long-lasting.
One should consider CCSVI when they have ringing in the ears, sinus issues, headaches, visual problems, migraines, or dental issues.
Inflammatory changes cause scar tissue which lead to the narrowing found in CCSVI. The body continues to replace the scar tissue with new scar tissue. Stem cell therapy and PRP (platelet rich plasma) may change this in the future. These may turn back the DNA such that the body remodels the tissue so that it no longer creates scar tissue.
CCSVI will be a big focus in autism in the next couple of years.
Iron buildup around the veins is often a factor in CCSVI. The Klinghardt Cocktail addresses this as artemisinin is a good iron chelator for iron displaced in the central nervous system.
Thyroid hormone has to go through the same stenotic place to get the thyroid hormones out to the body. When TSH is elevated, consider that the higher the TSH, the more of a blockage there may be downstream.
There is no point in doing the procedure if C4a, TGF-b1, etc. are still elevated; the fire is still burning.
Dental interventions that expand space may have a positive impact on veins.
Artemisinin helps reduce iron deposits that result from CCSVI but does not generally impact ferritin.
Generally, people take Lumbrokinase for a couple of days before the balloon procedure.
http://www.ccsvi-center.com

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dbpei
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Wow, springshowers. This was interesting info. I am sure this is a problem for me. I hope to discuss this all with my new LLND in the near future. Thank you!
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springshowers
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Glad you found it interesting.

In relation to the affect of brain and the brain that is center of many nerve functions ( more than we realize )
Take a look at this list.

I do think biofilms in neck and major veins to brain affect blood flow as well is the transport to the brain for bugs. And brain is affected in many ways that we don't even think is related to the brain.

Your nervous system is involved in everything your body does, from regulating your breathing to controlling your muscles and sensing heat and cold.

There are three types of nerves in the body:

Autonomic nerves. These nerves control the involuntary or partially voluntary activities of your body, including heart rate, blood pressure, digestion, and temperature regulation.
Motor nerves. These nerves control your movements and actions by passing information from your brain and spinal cord to your muscles.
Sensory nerves. These nerves relay information from your skin and muscles back to your spinal cord and brain. The information is then processed to let you feel pain and other sensations.
Because nerves are essential to all you do, nerve pain and damage can seriously affect your quality of life.

What Are the Symptoms of Nerve Pain and Nerve Damage?
With nerve damage there can be a wide array of symptoms. Which ones you may have depends on the location and type of nerves that are affected. Damage can occur to nerves in your brain and spinal cord. It can also occur in the peripheral nerves, which are located throughout the rest of your body.

Nerve Pain and Nerve Damage
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What Are the Symptoms of Nerve Pain and Nerve Damage? continued...
Autonomic nerve damage may produce the following symptoms:

Inability to sense chest pain, such as angina or heart attack
Too much sweating (known as hyperhidrosis) or too little sweating (known as anhidrosis)
Lightheadedness
Dry eyes and mouth
Constipation
Bladder dysfunction
Sexual dysfunction
Damage to motor nerves may produce the following symptoms:

Weakness
Muscle atrophy
Twitching, also known as fasciculation
Paralysis
Sensory nerve damage may produce the following symptoms:

Pain
Sensitivity
Numbness
Tingling or prickling
Burning
Problems with positional awareness
In some instances, people with nerve damage will have symptoms that indicate damage to two, or even three, different types of nerves. For instance, you might experience weakness and burning of your legs at the same time.


What Causes Nerve Pain and Nerve Damage?
There are more than 100 different types of nerve damage. The various types may have different symptoms and may require different types of treatment.

It is estimated that about 1 in 50 Americans suffers from peripheral nerve damage. This type of damage becomes increasingly common with age. In one out of every four people with diabetes has some nerve damage.
Nerve Pain and Nerve Damage
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What Causes Nerve Pain and Nerve Damage? continued...
While not an exhaustive list, the following are some of the possible causes of nerve pain and nerve damage:

Autoimmune diseases . A variety of different types of autoimmune diseases can produce symptoms of nerve pain and nerve damage. These include: multiple sclerosis, Guillain-Barré syndrome (a rare condition in which the immune system attacks the peripheral nerves), myasthenia gravis, lupus, and inflammatory bowel disease.
Cancer. Cancer can cause nerve pain and nerve damage in multiple ways. In some instances, cancerous masses may push against or crush nerves. In other cases, certain types of cancer may result in nutritional deficiencies that affect nerve function. Additionally, some types of chemotherapy and radiation may produce nerve pain and nerve damage in certain individuals.
Compression/trauma. Anything that results in trauma or compression of nerves can result in nerve pain and nerve damage. This includes pinched nerves in the neck, crush injuries, and carpal tunnel syndrome.
Diabetes. About 25% of people with diabetes suffer from nerve damage, which becomes more likely as the disease progresses. Diabetic neuropathy is a serious complication and may affect all three types of neurons. Sensory nerves are most often affected, causing burning or numbness. If you have diabetes and are experiencing symptoms of nerve pain or nerve damage, you should consult a medical professional as soon as possible.
Drug side effects and toxic substances. Various substances that are taken into the body intentionally or unintentionally have the ability to cause nerve pain and nerve damage. These include medications, such as some chemotherapies for cancer and certain drugs used to treat HIV. Toxic substances that may be ingested accidentally, including lead, arsenic, and mercury, may also cause damage to your nerves.
Motor neuron diseases. The motor neurons are nerves in your brain and spinal column that communicate with the muscles throughout your body. Diseases that affect these nerves, including amyotrophic lateral sclerosis, also called ALS or Lou Gehrig's disease, can result in progressively worsening nerve damage.
Nutritional deficiencies. Deficiencies of certain nutrients, including vitamins B6 and B12, may produce symptoms of nerve pain and nerve damage, including weakness or burning sensations. Nutritional deficiencies that cause nerve damage may also result from excessive alcohol ingestion or develop after gastric surgery.
Infectious disease. Certain infectious diseases have the ability to affect the nerves in your body. These conditions include Lyme disease, the herpes viruses, HIV, and hepatitis C.

How Are Nerve Pain and Nerve Damage Treated?
In many instances, nerve damage cannot be cured entirely. But there are various treatments that can reduce your symptoms. Because nerve damage is often progressive, it is important to consult with a doctor when you first notice symptoms. That way you can reduce the likelihood of permanent damage.

Often, the first goal of treatment is to address the underlying condition that's causing your nerve pain or nerve damage. This may mean:

Regulating blood sugar levels for people with diabetes
Correcting nutritional deficiencies
Changing medications when drugs are causing nerve damage
Physical therapy or surgery to address compression or trauma to nerves
Medications to treat autoimmune conditions
Additionally, your doctor may prescribe medications aimed at minimizing the nerve pain you are feeling. These may include:

Pain relievers
Tricyclic antidepressants
Certain anti-seizure drugs
Complementary and alternative approaches may also help alleviate your nerve pain and discomfort. These include:

Acupuncture
Biofeedback
Hypnosis
Meditation

Posts: 2747 | From Unites States Of America | Registered: Apr 2009  |  IP: Logged | Report this post to a Moderator
Dogsandcats
Frequent Contributor (1K+ posts)
Member # 28544

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Ok, I am usually odd woman out....

Abdomen and pelvic...right after I received the love bite I developed a UTI, then everything in the abdominal and pelvic area fell apart.

My brain too, but I think a lot of that is the pain level in above areas that make my poor brain sing and skip to a different beat.

I used to blame it on childbirth. The last push- they say- is after birth. Uh uh, it is brain cells.

--------------------
God will prepare everything for our perfect happiness in heaven, and if it takes my dog being there, I believe he'll be there.

Billy Graham

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surprise
Frequent Contributor (1K+ posts)
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I think whatever's left is in my gut, and sometimes that can affect my brain.
Working on gut health.

If I read Dr. K correctly, it states get rid of all the infections, then do the neck surgery.
That's the hard part- getting rid of all the infections.

I personally would be freaked out of my mind to get that surgery, but I'll take a good neck and shoulder massage any day the week ;-)

--------------------
Lyme positive PCR blood, and
positive Bartonella henselae Igenex, 2011.
low positive Fry biofilm test, 2012.
Update 7/16- After extensive treatments,
doing okay!

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