posted
What the heck! I'm so confused right now. Here's the story. March 25, 2014. Bat found in house. Got it out of house with no incident, no visible bite, no bite at the time of removing from house.
March 28, decided to start rabies vaccine series anyway, as a precautionary measure. Immunoglobulin was given, and the first dose. Had vaccine does on days 0, 3, 14, 28. Final dose was on April 25th.
Stepped on thumb tack on April 14th. Decided to get Tetanus shot on April 15th.
Before -all- of this I felt fine. Started having unexplained muscle and joint pains which started on April 24th. Very dull. Migratory. Very localized, will only seem to occur in one area at a time. Last anywhere from 30 seconds to a minute then move to another location.
The pain was dull and pulsed, as in i'd feel the dull ache for a few seconds in that location, it would stop for a few seconds, start up for a few seconds, and so on until it moved to a new spot.
This went on until I eventually developed soreness in left leg that seem to last for a few days. That eventually went away and it was back to the moving pains again.
A week ago it was my right leg that was sore, but a bit more intense than any of the other soreness. This went on for a few days, then back to the moving pains again.
At this point, I'm doing this in confusion: Go to the primary care doctor, he does a full panel of blood tests, Lymes, Rheumatoid Arthritis, Lupus, etc.
I can't really interpret the Non-Lymes tests since I have no idea what any of those numbers mean (according to him though those were all normal), but the results from the Lymes test were:
I don't buy it. I hit the net. IgM P23 result is apparently anything but "normal". From what i've been reading it indicates strong possible that I have Lymes.
Now the kicker. From where? No seriously, from where? I am a house hermit. I never leave my house except very infrequently to go to the store or get something to eat. 90% of my day is in the house.
The area I live in isn't wooded or even near anything wooded, infact they got rid of a majority of the trees and now its mostly all buildings. I don't hike, I don't go in the woods.
But apparently this is a "recent" infection based on the IgM P23. From where? I never had any rash or any of that.
The only "bite" I ever remember having was from a tick that I quickly removed and that was like 5 years ago and I never presented with any symptoms like this until after the stated vaccines and Tetanus shot. Before all that I felt fine.
So what? Did I get this from the Immunoglobulin? The Vaccine? Something else? I'm a bit confused.
Other than the moving muscle/joint pain (which when I have it in my fingers cracking them seems to relieve the pain) I don't seem to have any other symptoms.
The headaches I have are either above the eye socket or around the base of the neck, and can be attributed to this moving joint pain because they aren't longstanding headaches, when I start to feel the pain in another part of my body the headache goes away.
I don't have fever that I know of (course I also don't own a thermometer.) I don't have night sweats, I don't have nausea.
Only other symptoms I can think of is my insomnia which I've had most of my life, and anxiety which has been ongoing for quite a while as well. So yeah, I'm baffled right now. Anyone?
Edit: Forgot to mention I've had a day here and there where I feel no pain whatsoever, no moving dull aches, nothing, just 100% feeling normal. I've also had periods of hours where I feel normal also. If this is Lymes it has to be one of the oddest behaving Lymes ever.
.................................................
Breaking up your post into a couple lines for easier reading for many here -
LisaK
Frequent Contributor (1K+ posts)
Member # 41384
posted
did you ever have a mosquito bite?
it is also found in human tears. and other fluids.
it is not hard to get, it is hard to NOT get.
I hope you find more answers
-------------------- Be thankful in all things- even difficult times and sickness and trials - because there is something GOOD to be seen Posts: 3558 | From Eastern USA | Registered: Jul 2013
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posted
I've had a TON of mosquito bites actually. The darn things are attracted to me like there is no freakin tomorrow! I could wear a sweater and thick comforter and I'd still wake up with Mosquito bites! How do they even get to the skin!?
Posts: 65 | From Southern NJ | Registered: May 2014
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Catgirl
Frequent Contributor (5K+ posts)
Member # 31149
posted
Welcome to Lymenet!
Band 23 is lyme specific, nothing else (you've got lyme). My guess is you've had it for a while but the vaccine/tetanus shot triggered it for you (doubt you got it from the bat). Stress will trigger it as well. It's an eye opener for people to discover their lyme. Also too much work to figure out where you got it as most people don't even know they were bit. Ticks are everywhere.
You need a lyme literate MD (LLMD). Go to www.lymediseaseassociation.org or go to Seeking a doctor here on lymenet and post.
There is a really good book called Cure Unknown (weintraub) worth reading. Another good book is Healing Lyme by Buhner. Also, watch this award winning documentary on lyme (Under Our Skin):
-------------------- --Keep an open mind about everything. Also, remember to visit ACTIVISM (we can change things together). Posts: 5418 | From earth | Registered: Mar 2011
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Lymetoo, i'm guessing these igenex tests have to be paid out of pocket? I have medicare and medicaid but from what i've read medicare won't pay for those tests (which is odd since their test request apps have a spot for medicare info)
Would it be possible for it to be billed through my insurance if the doctor I go to specifically orders the tests and has them sent out? I'm not familiar with how all this works.
TF
Frequent Contributor (5K+ posts)
Member # 14183
posted
Medicare pays for the Igenex lyme test. Call Igenex to confirm that this has NOT changed.
Then, ask them to send you their free test kit. Hopefully, your doctor will sign the order for the test and draw the blood and ship it to Igenex.
Be sure they follow the instructions. The blood must be drawn early in the week (Monday or Tuesday) and shipped out right away. Get it all clear in your mind when you talk with Igenex staff.
New Jersey is full of lyme disease. Many of us never saw the tick and never got the bulls eye rash. No matter.
I strongly suggest you read the Burrascano Lyme Treatment Guidelines to understand this disease and to see what good lyme treatment looks like.
It is costly to see a good lyme doctor. But, that is what you need to do to get rid of this disease.
Please get tested by Igenex or just go straight to a lyme doctor to have the test and begin treatment.
Post in "Seeking a Doctor" for some good names. There are some lousy lyme docs in NJ. Don't want you to go to just anyone.
Posts: 9931 | From Maryland | Registered: Dec 2007
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posted
The only problem with the blood draw is that the doctor I have doesn't draw blood. Any blood that is drawn I get sent to a Local Labcorp. So I'm not sure how i'll get around that little issue unless I have the LLMD do the draw.
Posts: 65 | From Southern NJ | Registered: May 2014
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GretaM
Frequent Contributor (1K+ posts)
Member # 40917
posted
Sounds to me that those vaccines triggered a dormant lyme infection.
Those vaccines are "live".
Your immune system was probably overwhelmed by the sudden insult of foreign DNA and lyme got a foothold.
23 is definitely lyme. No doubt about it.
People with lyme and coinfections tend to respirate/exhale more C02 than the average non-lyme person, so this is why mosquitoes are drawn to you.
Now you should start to see more bees wasps and hornets around you now too, since lyme is reactivating/flaring.
All excellent advice from prior posters.
This is not something to dilly dally or waste time over. Find an LL and start treatment ASAP.
Lyme went to my brain really fast-4 months is all it took.
Posts: 4358 | From British Columbia, Canada | Registered: Jun 2013
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posted
The odd thing is, that if this is from a dormant Lyme, then it's quite especially odd because I never developed symptoms the first time around (if from an old infection of the disease). This is my first time experiencing any of this soreness of the joints and muscles in my life. Is it possible for Lyme to enter the body and never activate (until now) like seems to be the case in my situation?
Posts: 65 | From Southern NJ | Registered: May 2014
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TF
Frequent Contributor (5K+ posts)
Member # 14183
posted
Your immune system may have been able to handle the lyme disease, meaning that it was keeping it in check and you were not, therefore, having lyme symptoms.
However, once you got those vaccines, your immune system was no longer able to keep the lyme in check.
It became overwhelmed with the number of germs now in the body. So, the lyme got the upper hand and your lyme symptoms came out.
I have heard this story before. In fact, within the last month I was told that this happened to a young man from getting a meningitis vaccine at a routine check-up 2 years ago. He has been sick ever since.
Other examples of this are people having surgery and then the lyme symptoms come out. (Surgery is hard on the immune system and weakens it. All of a sudden, the body has many germs to deal with.) Or, people getting in an accident and then the lyme symptoms come out, etc.
So, your story is not unusual at all.
Posts: 9931 | From Maryland | Registered: Dec 2007
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Sammi
Frequent Contributor (1K+ posts)
Member # 110
posted
Many people are bitten by ticks without knowing it whether they are an outdoors person or not.
I think it is very possible you were infected from the bite five years ago. Your immune system may have kept symptoms under control. When you got the vaccinations and tetanus shot, it could have over-taxed your immune system causing the symptoms to come out. This happens in many cases.
The IgeneX Western Blot lists two more Lyme-specific bands--31 and 34--than LabCorp or Quest. Band 23 is Lyme specific. I believe any Lyme doctor would find this significant.
Posts: 4681 | Registered: Oct 2000
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Judie
Frequent Contributor (1K+ posts)
Member # 38323
posted
Quest will do a blood draw for a fee.
If you find a Lyme doctor, they might not even require further testing and will treat anyway.
You already have a specific band and symptoms.
Also, my friend in Brooklyn just got diagnosed with Lyme. She never leaves her house either and has no idea where she got it. She's definitely NOT an outdoorsy person.
Ticks are everywhere. In an urban town by me they found ticks infected with Lyme in the small bit of grass in front of the government building.
Dogs and birds also carry ticks. If there are birds or dogs in your area, they may have been carrying one of these unruly passengers.
Posts: 2839 | From California | Registered: Jul 2012
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susank
Frequent Contributor (1K+ posts)
Member # 22150
posted
What kind of immunoglobin did you get, how much - and when?
Was it a hyperimmune Rabies?
Or Gamastan?
When did you have the Lyme test performed?
How soon after the immunoglobulin injections did you have the Lyme test performed?
-------------------- Pos.Bb culture 2012 Labcorp - no bands ever Igenex - Neg. 4 times With overall bands: IGM 18,28,41,66 IND: 23-25,34,39 IGG 41,58 IND: 39 Bart H IGG 40 Posts: 1613 | From Texas | Registered: Aug 2009
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posted
Susank, HyperRab was what I believe it was called. As for when the Lyme test was taken, my blood was taken on the May 12, but I don't know when they actually sent it to the Lab. How long it was since the immunoglobulin that I had the test performed, A little over a month. I had the Globulin on the 28th of March and the Lyme blood, as I said, was drawn May 12th. No clue what the math is on that, i'm bad at math.
Posts: 65 | From Southern NJ | Registered: May 2014
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susank
Frequent Contributor (1K+ posts)
Member # 22150
posted
There is a one in a million chance - more like ten million - that the Lyme test picked up on some antibodies from the immunoglobulin injection.
Doubtful though because: the injections are mostly IGG antibodies you probably got a low dose the antibodies only stay in your body a few weeks
I am more familiar with being infused with higher doses of immunoglobulins.
Maybe things different with the Bayrab - muscle injection.
Whatever - retest - with Igenex.
Some Labcorps will draw blood for Igenex as a courtesy when you're there having other tests run through them
-------------------- Pos.Bb culture 2012 Labcorp - no bands ever Igenex - Neg. 4 times With overall bands: IGM 18,28,41,66 IND: 23-25,34,39 IGG 41,58 IND: 39 Bart H IGG 40 Posts: 1613 | From Texas | Registered: Aug 2009
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posted
Not sure what the actual dosage was, on that subject. I just know they injected me with it 4 tiems, 2 in each leg, and 1 smaller amount in my left deltoid muscle of my arm. They were going based on a body weight I gave them of 176-180 range. Which is close to what I actually was at the time (about 174 after weighing myself later).
I'll likely do the Igenex retest, it's only 2 tests right? Someone said medicare covers it, and the medicare part B that I have is supposed to pay 100% of all labwork but I dunno if Igenex classifies under that to them. And someone said they only pay for Lymes test, does this mean the western blots or does it also include the Co-Infection tests as well?
Posts: 65 | From Southern NJ | Registered: May 2014
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susank
Frequent Contributor (1K+ posts)
Member # 22150
posted
The Bayrab or the vaccines?
Again - highly doubtful the Bayrab effected the tests - now that I have more info.
But it is a little odd that band 41 did not show and 23 did.
The band 23 would make me want to retest. With Igenex. You can call Igenex and ask for a kit to be mailed to you. You can also ask about Medicare and the two Lyme tests - the IGM bands and the IGG bands. And about Medicare and co-infection testing.
IIRC its only the Lyme tests.
Igenex has a website that has lots of info.
-------------------- Pos.Bb culture 2012 Labcorp - no bands ever Igenex - Neg. 4 times With overall bands: IGM 18,28,41,66 IND: 23-25,34,39 IGG 41,58 IND: 39 Bart H IGG 40 Posts: 1613 | From Texas | Registered: Aug 2009
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posted
Yeah the 4 in the legs and 1 in the left arm was the HyperRab immunoglobulin doses. Either way, to know for certain what's going on (since Labcorp tests don't really tell me much) i'll have to get the Lymes tests done by Igenex and see what's going on. They have so many of them that it's hard to sort through, from what I've seen. They have an initial lyme panel, then the 2 western blots, then they have the complete lyme panels, quite a lot of different stuff.
Posts: 65 | From Southern NJ | Registered: May 2014
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Razzle
Frequent Contributor (1K+ posts)
Member # 30398
posted
#188 & 189 are the most important IGeneX tests...
-------------------- -Razzle Lyme IgM IGeneX Pos. 18+++, 23-25+, 30++, 31+, 34++, 39 IND, 83-93 IND; IgG IGeneX Neg. 30+, 39 IND; Mayo/CDC Pos. IgM 23+, 39+; IgG Mayo/CDC Neg. band 41+; Bart. (clinical dx; Fry Labs neg. for all coinfections), sx >30 yrs. Posts: 4166 | From WA | Registered: Feb 2011
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posted
Hey Razzle, out of curiosity what does the dx and sx in your signature stand for? I'm not good with abbreviations.
Posts: 65 | From Southern NJ | Registered: May 2014
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lpkayak
Honored Contributor (10K+ posts)
Member # 5230
posted
Welcome. You got a lot of good replys. Sorry you are joining our club but this is the place to be for help. Factual and emotional
-------------------- Lyme? Its complicated. Educate yourself. Posts: 13712 | From new england | Registered: Feb 2004
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IGeneX testing is free for anyone with Medicare. Besides the two Western Blot tests, #188 and #189, you could also test for the co-infections babesia, bartonella and ehrlichia.
My opinion is to look up the symptoms for them and see whether you think you match any. I did that, thought I only matched Lyme and testing results showed that - Lyme, no co's.
Posts: 13116 | From San Francisco | Registered: May 2006
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LisaK
Frequent Contributor (1K+ posts)
Member # 41384
posted
is Igenex free for medicaid also?
-------------------- Be thankful in all things- even difficult times and sickness and trials - because there is something GOOD to be seen Posts: 3558 | From Eastern USA | Registered: Jul 2013
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lpkayak
Honored Contributor (10K+ posts)
Member # 5230
posted
I doubt medicaid will pay for igenix bu dont know for sure
I dont know the test you had-but others say iy is positivr,..do yo really need igeni. Best to put your money toward tx
-------------------- Lyme? Its complicated. Educate yourself. Posts: 13712 | From new england | Registered: Feb 2004
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posted
Robin, I did check the Bab symptoms and the majority of the ones listed are not symptoms i've ever experienced. For example i've never had nausea or a high fever (that I know of, I don't own a thermometer but I would think if I had a high fever i'd feel feverish).
posted
I've heard that IgM may not be early infection with lyme, but that is the general meaning/rule with other bacteria. Lyme may be relapsing so maybe the immune system thinks it is new.
This is all speculation. I don't remember if that band is specific like others have said, but it seems very little to go on.
There is an antigen test coming out this summer which may bring some clarity to the issue.
Your symptoms don't seem too alarming, but I may not fully understand what you are experiencing.
Posts: 136 | From arlington, VA | Registered: Jun 2010
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Judie
Frequent Contributor (1K+ posts)
Member # 38323
posted
I only had band 23 and band 41 positive on my first test (that was enough to be CDC positive).
23 is enough to go on. It's Lyme specific.
As you go through treatment, more bands show up as your immune system gets strong enough to make more antibodies.
Just to show how the testing is messed up, I now have 9 positive bands after getting reinfected, HOWEVER the CDC interprets it as negative because they aren't the bands they count in their narrow criteria. I had the rash too.
The interpretation of the tests are very flowed.
You have enough to go on to pursue this, especially with all the migrating pain.
There was someone in my support group who reported having a Lyme relapse after getting vaccinated for a trip to Africa.
My doc explained it this way (when I asked about flu shots). The immune system will focus on the vaccine and turn its attention away from Lyme. This gives Lyme the chance to grow.
Posts: 2839 | From California | Registered: Jul 2012
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posted
Medicaid does not cover IGeneX testing. If you are low income, you can apply to www.lymetap.com to have them cover 75% of the test cost. This arrangement was set up by the Humboldt Cty Lyme support group in N CA!
Mystery, babs can also cause night sweats and chills.
Posts: 13116 | From San Francisco | Registered: May 2006
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susank
Frequent Contributor (1K+ posts)
Member # 22150
posted
Dumb question - but in cases like this - and others - why not try to use a microscope to see if anything is seen?
The "Microscopy Thread" is so very interesting.
Are there no places to go to have your blood looked at under a scope?
Or one needs to have their own - or access to one - and the materials etc?
-------------------- Pos.Bb culture 2012 Labcorp - no bands ever Igenex - Neg. 4 times With overall bands: IGM 18,28,41,66 IND: 23-25,34,39 IGG 41,58 IND: 39 Bart H IGG 40 Posts: 1613 | From Texas | Registered: Aug 2009
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posted
Robin, I don't have those either. I don't wake up in a sweat and I don't have any problems with chills. One of the few that I had that was on the list of symptoms for that was the air thing, as I on occasion sigh, but that might be more of a developed habit than anything else as it's not like it's some constant every few seconds kinda thing. It may also be anxiety related as well.
Posts: 65 | From Southern NJ | Registered: May 2014
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poppy
Frequent Contributor (1K+ posts)
Member # 5355
posted
Lyme is a clinical diagnosis, don't put all your hopes in testing.
If you are going to test again, you should try to find someone who will prescribe a challenge dose, which will make it more likely that the test will pick up antibodies. That will happen because the some of the spirochetes will be killed by the antibiotics, and your immune system will then make some antibodies. The western blot detects antibodies.
There is a section somewhere on the IGeneX website that explains how to do the challenge testing. Maybe someone here knows where it is. If not you can call the lab and ask. I think at this point it would be wasting your money to have them do another western blot without doing the antibiotic challenge ahead of time.
Posts: 2888 | From USA | Registered: Mar 2004
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posted
Wouldn't the challenge thing be kinda risky for just a diagnostic step? From what i'm reading of the cause of Chronic Lyme it would seem like it could turn a regular case of Lyme into Chronic Lyme. Wouldn't it be better to do the test during an ongoing treatment so that you don't risk issues with Chronic Lyme due to the starting and then stopping of an anti-biotic? What about the CD57 test?
Posts: 65 | From Southern NJ | Registered: May 2014
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posted
What i'm scared about, is a lot of people are talking about how bad their symptoms are -after- antibiotic treatment. What I don't know, is how bad their symptoms were -before- antibiotic treatment in comparison to afterwards.
I say this because right now my symptoms are extremely mild, mainly just the muscle and joint pain that moves around, which is -very- dull and not constant.
My worries are that i'll do an antibiotic treatment, even a LLMD prescribed one with an adequate dose and duration, and it will turn my mild symptoms into these debilitating symptoms that others are experiencing, and as a result i'll have to constantly be on antibiotics just to keep the symptoms at bay. That's my major concern right now.
posted
It's been such a long time since I last took an antibiotic for anything I can't honestly remember. I'd say at least more than 5 years. And even then I didn't finish -all- of it, if I recall correctly.
I believe Amoxicillin was the last one I took. It was for a tooth infection. As for how I felt. Well, the tooth hurt like hell til the infection cleared. Then it felt better.
A few years ago I was prescribed Doxy for a suspected UTI, but I never took it. I personally didn't believe I had a UTI so I felt no need to.
A month ago I was prescribed Zithromax for a Upper Respiratory Infection, but I didn't take it because that's the glorified name for the common cold and antibiotics shouldn't be used for treatment of a cold.
I was also given an antibiotic prescription when I stepped on the thumb tack, but I didn't take it because the wound showed absolutely NO sign of infection.
I did keep clearing the wound and keeping an eye on it, just in case an infection did start I would know to start taking the antibiotic. You might be wondering why I didn't take the antibiotics prescribed.
Well, if you look at the reasons they were prescribed you'd see that they aren't valid reasons to prescribe an antibiotic. An uninfected wound? Really? The common cold?
Seriously? A non existent UTI? The only reason he had to believe it was a UTI was a dipstick test which said I had a very small amount of blood in the urine, but I had passed a kidney stone not even a full year before that test. I had -no- other symptoms that would have suggested UTI.
LisaK
Frequent Contributor (1K+ posts)
Member # 41384
posted
I was way worse BEFORE antibiotics.
-------------------- Be thankful in all things- even difficult times and sickness and trials - because there is something GOOD to be seen Posts: 3558 | From Eastern USA | Registered: Jul 2013
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Judie
Frequent Contributor (1K+ posts)
Member # 38323
posted
I agree with LisaK. Antibiotics made it so I could function better. Life was a nightmare before the antibiotics.
Just make sure you're taking a good probiotic away from the antibiotic to keep your gut in good health.
Posts: 2839 | From California | Registered: Jul 2012
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posted
It is true that you could feel worse on the antibiotics. It is called the Jarisch-Herxheimer response.
You will feel worse until the infection begins to be taken down. However, just as Judie and Lisa said ... Some people just feel better and better on abx.
Mystery... In subsequent posts, please break up your long paragraphs so everyone can read the information more easily. Most here are unable to read large blocks of print. Thanks~!
(I'll go edit your last one here)
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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posted
Another huge concern I have, if I end up with Chronic Lyme as a result of failed treatment I will most certainly die from it. I say this because I am poor and can't afford the out of pocket costs people speak about on this forum and elsewhere.
I live on disability and so I have only a few thousand dollars in the bank. I will never be able to afford the kind of treatment that requires out of pocket expenses in the tens of thousands of dollars.
Posts: 65 | From Southern NJ | Registered: May 2014
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LisaK
Frequent Contributor (1K+ posts)
Member # 41384
posted
You are right Lymetoo, in my case anyway..... I felt terrible the first 3.5 weeks on abx, but I want to point out that for me worse meant strong flu symptoms on top of my already bad lyme & co symptoms.
but after that period of herx I started improving in ways.
Mystery, it is important to make sure you understand that all people are different in how they react to treatment, just like all are hit in different ways with this (these) disease(s).
I have chronic lyme because it took me 16+ years and 40+ Drs. to just get a diagnosis before anyone started me on treatment!
I am determined that chronic will not mean forever for me. If I gave in to this they would have had my funeral long ago.
I , like you Mystery, have no money. I have no insurance. I thought it was a death sentence, but it is not. there is a lot you can do to live a better life- diet, alternative things, .... I see a dr that uses only herbal and other suppliments. I spend no more than $100 a month on supplemental pills, etc on my self.
that may even be a lot to you, and it is to me too, but in the perspective of things, it is saving my life and I have stopped paying my mortgage so that my infected family and I can be treated. living in a box is still living, rigth?
My favorite lyme phrase: "it's a rich man's disease" and it certainly is. BUT, it doesn't mean you should or you need to curl up and cry in self pity. not to me anyway.
I do have days, yes, that are hard to deal with, but I get renewed just as often by my faith and my few supportive friends.
don't give up! there are ways to make this work. read as much as you can and search out any avenue that may lead you to answers for yourself. something that works for you.
-------------------- Be thankful in all things- even difficult times and sickness and trials - because there is something GOOD to be seen Posts: 3558 | From Eastern USA | Registered: Jul 2013
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posted
My doctor requested an Igenex Western Blot test and I got the blood draw from Quest Diagnostics. Quest ignored the doctor's request to have the test done by Igenex and they did it themselves. At that time, Quest did not test for certain lyme bands and they probably still don't.
My test was sufficient for a lyme diagnosis but make sure that they are sending your test to Igenex.
Posts: 705 | From WA state | Registered: Jul 2011
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posted
My doctor requested an Igenex Western Blot test and I got the blood draw from Quest Diagnostics. Quest ignored the doctor's request to have the test done by Igenex and they did it themselves. At that time, Quest did not test for certain lyme bands and they probably still don't.
My test was sufficient for a lyme diagnosis but make sure that they are sending your test to Igenex.
Posts: 705 | From WA state | Registered: Jul 2011
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posted
My doctor requested an Igenex Western Blot test and I got the blood draw from Quest Diagnostics. Quest ignored the doctor's request to have the test done by Igenex and they did it themselves. At that time, Quest did not test for certain lyme bands and they probably still don't.
My test was sufficient for a lyme diagnosis but make sure that they are sending your test to Igenex.
Posts: 705 | From WA state | Registered: Jul 2011
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posted
Question, if I am indeed early stage (not sure since I haven't gotten an igenex test yet or any co-infection tests) how am I supposed to get treatment SOON? I have yet to find a LLMD that doesn't have a waiting list of 1-2 months at best. So if I can't be treated by someone early if it's an early infection than what exactly am I supposed to do?
Posts: 65 | From Southern NJ | Registered: May 2014
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TF
Frequent Contributor (5K+ posts)
Member # 14183
posted
There is a lyme doctor in Maryland who can see you in a day or 2.
If you want the name, let me know.
He is near the Virginia border, so this is a trip for you. In your posts in "Seeking a Doctor" you have said that you don't want to travel too terribly far out of NJ.
Now that you know how in demand good lyme doctors are, you may have to reconsider. Lyme patients have to be willing to travel to get good care and definitely to get immediate care.
Posts: 9931 | From Maryland | Registered: Dec 2007
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posted
Sure, send the info if you would, please Also maybe the one that you mentioned to another poster that is in DC and can take patients in 2 or so weeks.
Thanks!
Posts: 65 | From Southern NJ | Registered: May 2014
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TF
Frequent Contributor (5K+ posts)
Member # 14183
posted
I sent you the name.
Posts: 9931 | From Maryland | Registered: Dec 2007
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Go to the primary care doctor, he does a full panel of blood tests, Lymes, Rheumatoid Arthritis, Lupus, etc. ![[confused]](graemlins/confused.gif)
I am a house hermit. I never leave my house except very infrequently to go to the store or get something to eat. 90% of my day is in the house. 
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