LymeNet Home LymeNet Home Page LymeNet Flash Discussion LymeNet Support Group Database LymeNet Literature Library LymeNet Legal Resources LymeNet Medical & Scientific Abstract Database LymeNet Newsletter Home Page LymeNet Recommended Books LymeNet Tick Pictures Search The LymeNet Site LymeNet Links LymeNet Frequently Asked Questions About The Lyme Disease Network LymeNet Menu

LymeNet on Facebook

LymeNet on Twitter




The Lyme Disease Network receives a commission from Amazon.com for each purchase originating from this site.

When purchasing from Amazon.com, please
click here first.

Thank you.

LymeNet Flash Discussion
Dedicated to the Bachmann Family

LymeNet needs your help:
LymeNet 2020 fund drive


The Lyme Disease Network is a non-profit organization funded by individual donations.

LymeNet Flash Post New Topic  New Poll  Post A Reply
my profile | directory login | register | search | faq | forum home

  next oldest topic   next newest topic
» LymeNet Flash » Questions and Discussion » Medical Questions » pain , what to do about joint and other pain

 - UBBFriend: Email this page to someone!    
Author Topic: pain , what to do about joint and other pain
LisaK
Frequent Contributor (1K+ posts)
Member # 41384

Icon 1 posted      Profile for LisaK     Send New Private Message       Edit/Delete Post   Reply With Quote 
so I just finished a treatment for bartonella (herbals) and now that I am done I have terrible pain in every joint and it seems like in every inch of my bones, plus I have no strength.

so.... is this die off? maybe?

I don't like all this pain. anyone have any ideas on best way to help it or cover it up or get rid of pain?

it is 24/7 and I can't sleep well or sit well or anything.

I know I shouldn't take acetaminophen or ibuprofen, but is there another option that really works? without begin too harmful

I searched here but the search didn't find anything specific

--------------------
Be thankful in all things- even difficult times and sickness and trials - because there is something GOOD to be seen

Posts: 3558 | From Eastern USA | Registered: Jul 2013  |  IP: Logged | Report this post to a Moderator
Razzle
Frequent Contributor (1K+ posts)
Member # 30398

Icon 1 posted      Profile for Razzle     Send New Private Message       Edit/Delete Post   Reply With Quote 
Some LLMD's recommend Alkaseltzer Gold for herxing.

Nonpharmaceutical options for pain:

Homeopathic Arnica (pellets dissolved under the tongue) helps with pain, bruising, shock/trauma.

Homeopathic Ruta (for joint pain worse from movement).

Homeopathic Hypericum (for nerve pain).

Stinging nettles - Buhner recommends 1200mg/day for joint pain.

Heating pad or electric blanket...or soak in a warm Epsom salt bath.

Detoxing can help.

--------------------
-Razzle
Lyme IgM IGeneX Pos. 18+++, 23-25+, 30++, 31+, 34++, 39 IND, 83-93 IND; IgG IGeneX Neg. 30+, 39 IND; Mayo/CDC Pos. IgM 23+, 39+; IgG Mayo/CDC Neg. band 41+; Bart. (clinical dx; Fry Labs neg. for all coinfections), sx >30 yrs.

Posts: 4166 | From WA | Registered: Feb 2011  |  IP: Logged | Report this post to a Moderator
LisaK
Frequent Contributor (1K+ posts)
Member # 41384

Icon 1 posted      Profile for LisaK     Send New Private Message       Edit/Delete Post   Reply With Quote 
ok Razzle, sounds like good place to try. thanks a bunch

--------------------
Be thankful in all things- even difficult times and sickness and trials - because there is something GOOD to be seen

Posts: 3558 | From Eastern USA | Registered: Jul 2013  |  IP: Logged | Report this post to a Moderator
Robin123
Moderator
Member # 9197

Icon 1 posted      Profile for Robin123     Send New Private Message       Edit/Delete Post   Reply With Quote 
Turmeric powder works to reduce my joint pain pretty quickly. I get it in bulk at the healthfood store and put it in capsules.
Posts: 13116 | From San Francisco | Registered: May 2006  |  IP: Logged | Report this post to a Moderator
LisaK
Frequent Contributor (1K+ posts)
Member # 41384

Icon 1 posted      Profile for LisaK     Send New Private Message       Edit/Delete Post   Reply With Quote 
I have been hearing a lot about tumeric. is it the spice you get to put on food? same thing, but just put it in capsules, Robin?

--------------------
Be thankful in all things- even difficult times and sickness and trials - because there is something GOOD to be seen

Posts: 3558 | From Eastern USA | Registered: Jul 2013  |  IP: Logged | Report this post to a Moderator
lymeinhell
Frequent Contributor (1K+ posts)
Member # 4622

Icon 1 posted      Profile for lymeinhell     Send New Private Message       Edit/Delete Post   Reply With Quote 
New Chapter makes a fantastic supplement called Zyflamend that is for inflammation and associated pain. It does contain tumeric and lots of other anti-inflammatories. I swear by this stuff!! I used to give it to my elderly dogs, and I've seen more than 1 veterinarian recommend it for dogs.

You can pretty much find it everywhere now. Take 2 with food, and if things don't improve, take 2 more every couple hours.

http://www.newchapter.com/zyflamend/zyflamend-whole-body#supplement-facts

--------------------
Julie
_ _ ___ _ _
lymeinhell

Blessed are those who expect nothing, for they shall not be disappointed.

Posts: 2258 | From a better place than I was 11 yrs ago | Registered: Sep 2003  |  IP: Logged | Report this post to a Moderator
LisaK
Frequent Contributor (1K+ posts)
Member # 41384

Icon 1 posted      Profile for LisaK     Send New Private Message       Edit/Delete Post   Reply With Quote 
Thanks lymeinhell. that sounds great

Carol, is Excedrin aspirin?

--------------------
Be thankful in all things- even difficult times and sickness and trials - because there is something GOOD to be seen

Posts: 3558 | From Eastern USA | Registered: Jul 2013  |  IP: Logged | Report this post to a Moderator
LisaK
Frequent Contributor (1K+ posts)
Member # 41384

Icon 1 posted      Profile for LisaK     Send New Private Message       Edit/Delete Post   Reply With Quote 
I think this pain is my RMSF. I think since all my previous treatments worked, and by the pattern that follows each, I would say that the last linguring symptoms are from that (mostly)- joint pain, abdominal pain, heart irregularities.

this gives me hope that with my RMSF treatment this might all go away. I sure hope so.

--------------------
Be thankful in all things- even difficult times and sickness and trials - because there is something GOOD to be seen

Posts: 3558 | From Eastern USA | Registered: Jul 2013  |  IP: Logged | Report this post to a Moderator
lymeinhell
Frequent Contributor (1K+ posts)
Member # 4622

Icon 1 posted      Profile for lymeinhell     Send New Private Message       Edit/Delete Post   Reply With Quote 
LisaK, do not combine Zyflamend with aspirin or Excedrin. Use one or the other.

Heart irregularities (high blood pressure or irregular bp, tacchyiacardia, palpitations) often times is severe magnesium deficiency. And no amount of antibiotics will fix that. A year of taking oral did nothing for mine, and it was not till I did several magnesium IV's and started weekly magnesium IM injections did my heart palpitations and blood pressure all over the map (despite being on a beta blocker) finally go back to normal.

--------------------
Julie
_ _ ___ _ _
lymeinhell

Blessed are those who expect nothing, for they shall not be disappointed.

Posts: 2258 | From a better place than I was 11 yrs ago | Registered: Sep 2003  |  IP: Logged | Report this post to a Moderator
LisaK
Frequent Contributor (1K+ posts)
Member # 41384

Icon 1 posted      Profile for LisaK     Send New Private Message       Edit/Delete Post   Reply With Quote 
lymeinhell, my heart troubles seem to coincide with my menstrual cycle. is that weird?

like the week before it is wild and scary, then right after it goes away to once or twice a day with a couple missed beats. !

I tell the drs over the years but they never comment so I figure they have no idea....

I do take mag, but have not been faithful as I don't always remember. I don't know if I saw a difference with that or not. my brain is damaged I think. poo

I did take arnica last night and today, and I must say that I slept very well and had reduced pain today! I am impressed. of course there is the chance that it's just easing up on its own.

I will continue with arnica since that is all I have here until I hit the store possibly this weekend

thanks everyone!!!

--------------------
Be thankful in all things- even difficult times and sickness and trials - because there is something GOOD to be seen

Posts: 3558 | From Eastern USA | Registered: Jul 2013  |  IP: Logged | Report this post to a Moderator
Carol in PA
Frequent Contributor (5K+ posts)
Member # 5338

Icon 1 posted      Profile for Carol in PA     Send New Private Message       Edit/Delete Post   Reply With Quote 
LisaK, if you are taking magnesium, you may also want to take D3.

The magnesium won't absorb properly if your Vitamin D level is too low.

Posts: 6947 | From Lancaster, PA | Registered: Feb 2004  |  IP: Logged | Report this post to a Moderator
LisaK
Frequent Contributor (1K+ posts)
Member # 41384

Icon 1 posted      Profile for LisaK     Send New Private Message       Edit/Delete Post   Reply With Quote 
I am supposed to take that too. I wish I could just get a machine that automatically injects me with everything I am supposed to take! I keep forgetting!!!

Thanks for the reminder!

--------------------
Be thankful in all things- even difficult times and sickness and trials - because there is something GOOD to be seen

Posts: 3558 | From Eastern USA | Registered: Jul 2013  |  IP: Logged | Report this post to a Moderator
Robin123
Moderator
Member # 9197

Icon 1 posted      Profile for Robin123     Send New Private Message       Edit/Delete Post   Reply With Quote 
[QUOTE]Originally posted by LisaK:
[QB] I have been hearing a lot about tumeric. is it the spice you get to put on food? same thing, but just put it in capsules, Robin?

...................................................

Yep. Very simple to do.

Posts: 13116 | From San Francisco | Registered: May 2006  |  IP: Logged | Report this post to a Moderator
lymeinhell
Frequent Contributor (1K+ posts)
Member # 4622

Icon 1 posted      Profile for lymeinhell     Send New Private Message       Edit/Delete Post   Reply With Quote 
Lisa, I had EXACTLY the same experience. Every 28 days. I'd wake up and my pulse would be 124+. In addition to head pain (which turned out to be a muscle spazm), and high BP.

That last time sent me running to the LLMD. Who then gave me my first (but not last) IV of magnesium. I'd had refused up to that point I guess because of the stigma of IV... not sure why... Tiny needle in the back of my hand, 20 minutes, and tada I felt completely NORMAL. So that was the first of several IV's, and the beginning of my weekly IM injections of magnesium. Best thing I ever did.

--------------------
Julie
_ _ ___ _ _
lymeinhell

Blessed are those who expect nothing, for they shall not be disappointed.

Posts: 2258 | From a better place than I was 11 yrs ago | Registered: Sep 2003  |  IP: Logged | Report this post to a Moderator
LisaK
Frequent Contributor (1K+ posts)
Member # 41384

Icon 1 posted      Profile for LisaK     Send New Private Message       Edit/Delete Post   Reply With Quote 
hmm IV mag.... interesting!

--------------------
Be thankful in all things- even difficult times and sickness and trials - because there is something GOOD to be seen

Posts: 3558 | From Eastern USA | Registered: Jul 2013  |  IP: Logged | Report this post to a Moderator
Robin123
Moderator
Member # 9197

Icon 1 posted      Profile for Robin123     Send New Private Message       Edit/Delete Post   Reply With Quote 
Want to add mention of teasel root tincture - it too can treat joint pain. For me, it only worked for around two months, so I switched to turmeric.
Posts: 13116 | From San Francisco | Registered: May 2006  |  IP: Logged | Report this post to a Moderator
LisaK
Frequent Contributor (1K+ posts)
Member # 41384

Icon 1 posted      Profile for LisaK     Send New Private Message       Edit/Delete Post   Reply With Quote 
I went to the store- there was tumeric powdered in a one pound bag for $12.

and there was some in capsules in a jar of about 60 I think for $30. I think they were 500mg.

Which way is best? the lady at store said it is a different potency in the capsules, but she didn't really know for sure as she was guessing.

can I just get the ground spice in a bag?

--------------------
Be thankful in all things- even difficult times and sickness and trials - because there is something GOOD to be seen

Posts: 3558 | From Eastern USA | Registered: Jul 2013  |  IP: Logged | Report this post to a Moderator
Ellen101
Frequent Contributor (1K+ posts)
Member # 35432

Icon 1 posted      Profile for Ellen101     Send New Private Message       Edit/Delete Post   Reply With Quote 
Turmeric did not work for me an zyflamend increased my pain. Cutting out all gluten, soy, dairy, starches and grains worked wonders.
Posts: 1748 | From United States | Registered: Dec 2011  |  IP: Logged | Report this post to a Moderator
LisaK
Frequent Contributor (1K+ posts)
Member # 41384

Icon 1 posted      Profile for LisaK     Send New Private Message       Edit/Delete Post   Reply With Quote 
I don't eat soy, very rarely eat cow dairy or wheat, but I do eat spelt and sometimes other grains.

Carol, I will check that out but what I want to know is - is the stuff in expensive pill form the same as the bulk spice? will I need to take more of the bulk bag kind? is there stronger potency in the already made pills?

--------------------
Be thankful in all things- even difficult times and sickness and trials - because there is something GOOD to be seen

Posts: 3558 | From Eastern USA | Registered: Jul 2013  |  IP: Logged | Report this post to a Moderator
mattnapa
LymeNet Contributor
Member # 26414

Icon 1 posted      Profile for mattnapa     Send New Private Message       Edit/Delete Post   Reply With Quote 
Curcumin is the concentrated form
Posts: 357 | From California | Registered: Jun 2010  |  IP: Logged | Report this post to a Moderator
Marnie
Frequent Contributor (5K+ posts)
Member # 773

Icon 1 posted      Profile for Marnie     Send New Private Message       Edit/Delete Post   Reply With Quote 
The natural "big-gun" anti-inflammatories look to be berberine (Glycox) and Zyflamend.

Most people do not experience MORE PAIN with Zyflamend.

I wonder if you (Ellen) are allergic to any one of the (many) components?

Rosemary is tough for me.

BTW...

Several studies show that rosemary inhibits foodborne pathogens like

***Listeria monocytogenes,***

B. cereus, and S. aureus

Rosemary is generally considered safe when taken in recommended doses.

However, there have been occasional reports of allergic reactions.

People with high blood pressure, ulcers,

***Crohn's disease, or ulcerative colitis***

should not take rosemary.

http://umm.edu/health/medical/altmed/herb/rosemary

Google: Berberine Crohn's Disease and Berberine ulcerative colitis

The product is Glycox and it is available on Amazon. From what I've read, 500mg TID looks to be safe. Length of time - # of days? PERHAPS 20 days.

Glycox is an anti-inflammatory too and works in MULTIPLE ways besides that.

You may tolerate it better and

it may heal your "gut"...more specifically help the endothelial cells that line the intestine.

Mg is an anti-inflammatory, anti-histamine and inhibits HMG CoA reductase (works like statin drugs).

Problem is...getting sufficient amts. BACK into the cells where it binds to ATP as Mg-ATP.

Excess Mg in the blood stream is usually eliminated within 2 hours - the kidneys regulate the blood level of Mg.

Testing for Mg levels is difficult because most of it is in soft tissues, not in the blood stream.

Some additional reading about Mg:

http://drsircus.com/medicine/magnesium/inflammation-and-systemic-stress

Mg IS available in "ionic" form that can be applied to the skin. We DO absorb things thru our skin.

It would also be curious to do an experiment: to Almond massage oil, add a few drops of clove oil and apply to achy areas. Clove oil is a CB2 agonist.

Posts: 9424 | From Sunshine State | Registered: Mar 2001  |  IP: Logged | Report this post to a Moderator
   

Quick Reply
Message:

HTML is not enabled.
UBB Code� is enabled.

Instant Graemlins
   


Post New Topic  New Poll  Post A Reply Close Topic   Feature Topic   Move Topic   Delete Topic next oldest topic   next newest topic
 - Printer-friendly view of this topic
Hop To:


Contact Us | LymeNet home page | Privacy Statement

Powered by UBB.classic™ 6.7.3


The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:

The Lyme Disease Network of New Jersey
907 Pebble Creek Court, Pennington, NJ 08534 USA


| Flash Discussion | Support Groups | On-Line Library
Legal Resources | Medical Abstracts | Newsletter | Books
Pictures | Site Search | Links | Help/Questions
About LymeNet | Contact Us

© 1993-2020 The Lyme Disease Network of New Jersey, Inc.
All Rights Reserved.
Use of the LymeNet Site is subject to Terms and Conditions.