LymeNet Home LymeNet Home Page LymeNet Flash Discussion LymeNet Support Group Database LymeNet Literature Library LymeNet Legal Resources LymeNet Medical & Scientific Abstract Database LymeNet Newsletter Home Page LymeNet Recommended Books LymeNet Tick Pictures Search The LymeNet Site LymeNet Links LymeNet Frequently Asked Questions About The Lyme Disease Network LymeNet Menu

LymeNet on Facebook

LymeNet on Twitter




The Lyme Disease Network receives a commission from Amazon.com for each purchase originating from this site.

When purchasing from Amazon.com, please
click here first.

Thank you.

LymeNet Flash Discussion
Dedicated to the Bachmann Family

LymeNet needs your help:
LymeNet 2020 fund drive


The Lyme Disease Network is a non-profit organization funded by individual donations.

LymeNet Flash Post New Topic  New Poll  Post A Reply
my profile | directory login | register | search | faq | forum home

  next oldest topic   next newest topic
» LymeNet Flash » Questions and Discussion » Medical Questions » Any positive Lyme/Anaplasmosis stories/protocols?

 - UBBFriend: Email this page to someone!    
Author Topic: Any positive Lyme/Anaplasmosis stories/protocols?
Duke
Junior Member
Member # 44045

Icon 1 posted      Profile for Duke     Send New Private Message       Edit/Delete Post   Reply With Quote 
So I tested positive for Lyme through Igenex, and negative by CDC. I did an entire co-infection panel through MD labs and I had a positive ELISA test for Anaplasmosis. My symptoms are vast...I'm so confused as to which co-infection I should be looking at, because I seem to have symptoms of bartonella also.

Symptoms:
-Chronic Fatigue
-Low cortisol
-Low ACTH
-Inability to exercise/tolerate any stress
-Low ADH
-Low VEGF
-High ECP
-High Reverse T3
-High calcitriol (active vitamin D 2x the range)
-Depression
-Anxiety
-ADHD
-Anger
-Tinnitus (lifelong)
-Joint Pain
-Appetite issues

A year ago I was training hard in the gym, weighed 230 and was ready to compete in powerlifting, I am now 170 lbs, unable to work, go to school, or tolerate stress of any kind. I had a tick bite at the age of 13, and had weird minor symptoms over the years that I'm now starting to think about...I was under a lot of stress this past year, and this debilitating fatigue just hit me and I lost everything.

I'm currently trying to beat this thing. I'm worried that I'm going to have to drop out of college because there is no way I could tolerate the stress of going to classes, on top of having ADHD.

So far my LLMD and I started with minocycline 100 mg 2x a day, been on that for two weeks. I had even more fatigue from that, I'm assuming that was a herx reaction. We then added rifampin, 300 mg 2x a day, but I had no reaction to that. Now I just started Flagyl, 250 mg 2x a day. This is day two, and I think I am getting a herx reaction, or side effects maybe. I'm feeling really depressed and also more fatigued as well.

Are we on the right track? Anyone have any positive stories for anaplasmosis, and should I be investigating co-infections more?

Posts: 2 | From Chicago | Registered: Jun 2014  |  IP: Logged | Report this post to a Moderator
Judie
Frequent Contributor (1K+ posts)
Member # 38323

Icon 1 posted      Profile for Judie     Send New Private Message       Edit/Delete Post   Reply With Quote 
Here's a thread with other things to test for:

http://flash.lymenet.org/scripts/ultimatebb.cgi/topic/1/127210?#000000

For me, the h. pylori needed to be addressed first because if you're gut isn't working right, you're going to have problems with any oral meds that you treat with.

Having tested positive for 13 co-infections, they are definitely something to consider.

Also, not everyone has a noticeable herx. Sometimes people just get better and better.

Minocycline caused me horrible fatigue and vertigo. I eventually had an allergic reaction to it.

A lot of docs give minocycline during the summer instead of doxycycline because doxy causes sun sensitivity.

I went back to doxy and just stay out of the sun. No issues with doxy if I take it with food.

Posts: 2839 | From California | Registered: Jul 2012  |  IP: Logged | Report this post to a Moderator
   

Quick Reply
Message:

HTML is not enabled.
UBB Code� is enabled.

Instant Graemlins
   


Post New Topic  New Poll  Post A Reply Close Topic   Feature Topic   Move Topic   Delete Topic next oldest topic   next newest topic
 - Printer-friendly view of this topic
Hop To:


Contact Us | LymeNet home page | Privacy Statement

Powered by UBB.classic™ 6.7.3


The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:

The Lyme Disease Network of New Jersey
907 Pebble Creek Court, Pennington, NJ 08534 USA


| Flash Discussion | Support Groups | On-Line Library
Legal Resources | Medical Abstracts | Newsletter | Books
Pictures | Site Search | Links | Help/Questions
About LymeNet | Contact Us

© 1993-2020 The Lyme Disease Network of New Jersey, Inc.
All Rights Reserved.
Use of the LymeNet Site is subject to Terms and Conditions.