posted
(I read) Lyme spirochetes can be seen with high powered microscopes (to me conclusively proving Lyme DOES exist INCLUDING long-term chronic Lyme (if spirochetes still visible, say, a two years later COMMON SENSE! says patient STILL has Lyme (contrary to mantra of IDSA).
Many to most people ACCEPT often single brief visit "diagnosis" of fibromyalgia but then do nothing more other than fall into HUGE and expensive "fibromyalgia 'treatment' industry".
Is anyone aware of fibromyalgia "bug" (something equivalent to Lyme babesia spirochete) seen with microscope? Fibromyalgia "diagnosis" seems to be nothing more than doctor saying "you have fibromyalgia - nothing can be done - goodbye".
Full disclosure: I question fibromyalgia even exists. EVERY person diagnosed with "fibromyalgia" who I have convinced to obtain further tests has tested positive for Lyme, MS or even more serious diseases including one that was fatal. Thank you.
posted
Hey - I think you're catching on! The fibromyalgia bug, better known as the fib bug, was first called the fibrocitis bug before it became the fibromyalgia bug in 1990.
Fast forward to everyone finding out that all that time spent in fibro support groups was actually for something real spelled b-o-r-r-e-l-i-o-s-i-s. If you say it fast enough you'll certainly sound precocious...um diddle liddle liddie um do they lie!
Posts: 13116 | From San Francisco | Registered: May 2006
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posted
I "caught on" decades ago. It was originally called The Yuppie Flu. I have doctor's name and the exact date he delivered speech (in 1990) before large AMA convention where he unilaterally decided "The Yuppie Flu" did not sound "medical" enough so he made up the name himself!
Fibro for fiber of the body since pain is more than just in joints and myalgia for pain. The name stuck and "The Yuppie Flu" was GONE almost overnight! Some changed it to CFS but it is (IMO) ALL Lyme or some other disease!
This "12 points of pain" test for fibromyalgia some doctor made up is ridiculous! When you hurt from Lyme you hurt EVERYWHERE! Not just the 12 points they push on.
Doctors LOVE to give out diagnosis of "fibromyalgia" as they can get chronic patients from returning all the time plus prescribe "pain drug" which is actually anti-depressant Cymbalta of which doctors and others are "encouraged" to prescribe Cymbalta as they are -- won't continue as I might get sued. You can find out yourself.
They LIKE Cymbalta! even though it does little for pain and is "more addictive than crack cocaine" (to quote many patients "hooked" on Cymbalta).
Fibromyalgia has turned into a billion dollar "racket" IMO. Everyone diagnosed with fibromyalgia should be tested for Lyme and MS plus other diseases. I predict they will ALL find what REALLY ails them! After 24 years nothing can be seen under a microscope or in a test tube. Proof enough for me.
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Breaking up the text for easier reading for many here -
GretaM
Frequent Contributor (1K+ posts)
Member # 40917
posted
Yes, one of my many misdiagnoses.
You're right-lyme makes us hurt all over.
Omg. I just remembered what lead to the fibro dx was a terrible month of bone pain...
Totally forgot how long I have had that. Sigh.
Posts: 4358 | From British Columbia, Canada | Registered: Jun 2013
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Abxnomore
Frequent Contributor (5K+ posts)
Member # 18936
posted
You got that right. It's turned into a big money making racket for big Pharma and other areas of medicine.
First they would not even acknowledge it, told most people they had psyche issues--all in their heads. With time they found ways to develop new drugs for it and use existing drugs for it and they gave Fibro the stamp of approval--that it really exists.
But in truth, most cases are untreated or under treated Lyme Disease and co- infections. It's really a shame how all those in the Fibro support groups are so pleased that they finally got a name for their symptoms and acknowledgement of it that they are content to gobble down tons of medications for a condition that has no know cause.
They are so stuck on the fact that they received acknowledgement that they look no further. It's a really sad situation.
Posts: 5191 | From Lyme Zone | Registered: Jan 2009
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posted
w0tm, glad you know what's going on - I didn't know that story about the doctor making up the fibromyalgia name - do you know who it was? Geez, the power of one person...
I also used to say But I hurt everywhere, when they would check for those pain points.
I personally feel we pushed the wholistic health field forward with our eagerness to try anything, and I'm referring to CFS and FMS patients - don't know if there were also other Lyme-related symptom groups who were also willing to try anything. The stories I could tell you about what people reported they tried would make you laugh and cry!
Yes. very sad about the fibro groups who say My doctor says I have fibromyalgia and I'm sticking with that. Very hard to get them to budge. Someone else and I did work on one fibro group and got one mom to get her fibro child to a Lyme doc! Then we were kicked out!
I thought we were all polluted. Could never have dreamed of this situation.
Posts: 13116 | From San Francisco | Registered: May 2006
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posted
In actuality doctors at U of Idaho (Moscow) caused FM in athletes (permission granted for experimentation). Sleep deprivation and interrupted (messing with REM) was the main ingredient as it caused the "tears" in muscle mass and the athletes were dx'd with FM.
However when they returned to normal rest/sleep patterns and exercise they recovered.
So I would not say unequivocally that all FM is caused by a TBI.
-------------------- I have a good time wherever I go! Posts: 665 | From Lost Wages, NV | Registered: May 2006
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posted
TxCoord is right. I used to have a VCR tape that talked about that study. I taped it years ago when I first was dxd with FM.
I basically do NOT believe in it. Not in the form it has taken on. They have added so many symptoms to the list that it is crazy. It's just a Lyme list tacked on to the FM list.
I was diagnosed with it in 1980 .. no one had even heard of it back then. Before that, it was called fibrositis.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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Abxnomore
Frequent Contributor (5K+ posts)
Member # 18936
posted
It's true that most lyme patients do not sleep well and don't go into REM sleep, especially before they get things under control with treatment.
Those scientists only created one of the symptoms/problems that a person with Lyme has, or Fibro if you will, nothing more nothing less.
Of course, every case of Fibro isn't a TBI but the vast majority of them are. Most Fibro patients are on a ton of medications to induce sleep and to relieve anxiety. Presumably, they are sleeping yet still have a long list of horrible symptoms, the same ones that Lyme patients have and a very poor quality of life.
Fibro does not just involve muscle issues or muscle soreness.
Posts: 5191 | From Lyme Zone | Registered: Jan 2009
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