posted
I think this term accurately describes what's been going on with me during my whole lyme adventure.
Since I got ill late last year, I've had all sorts of nerve issues in my legs, which has been my most prominent symptom and barely responding at all to antibiotics.
It was pretty bad starting out, and is still a pain. Basically, wearing long clothing like jeans exacerbates all the symptoms in my legs (muscle twitching, pain). It used to feel like someone dumped super glue on my skin (if that makes sense..), along with shooting pains.
It has gotten a bit better, now it mostly feels like jeans are squeezing my legs, along with increased nerve pain.
Does anyone have any experience with this? has it resolved for anybody? I'm hoping that treating the infections and giving time for nervous system recovery will clear it up.
Posts: 6 | From USA | Registered: Jun 2014
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Razzle
Frequent Contributor (1K+ posts)
Member # 30398
posted
Yes. I had it very bad when I had RSD/CRPS in my feet & right leg.
I'm still sensitive on my legs and can't wear capri pants (pants with pant legs that don't go all the way down to the ankle) or skirts/dresses without leggings underneath.
I think it is Bart. related, but not sure.
-------------------- -Razzle Lyme IgM IGeneX Pos. 18+++, 23-25+, 30++, 31+, 34++, 39 IND, 83-93 IND; IgG IGeneX Neg. 30+, 39 IND; Mayo/CDC Pos. IgM 23+, 39+; IgG Mayo/CDC Neg. band 41+; Bart. (clinical dx; Fry Labs neg. for all coinfections), sx >30 yrs. Posts: 4166 | From WA | Registered: Feb 2011
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posted
So, being in treatment has failed to clean up that symptom for you?
I know mine is infection related, I'm 23 years old with no previous health issues so... yeah. Couldn't be anything else. The question for me is is if it's just lingering damage or an active infection. How long have you been in treatment?
Posts: 6 | From USA | Registered: Jun 2014
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Razzle
Frequent Contributor (1K+ posts)
Member # 30398
posted
I haven't officially treated Bart., though I have taken Cipro off and on (but not long enough or high enough dose for Bart treatment).
I started Lyme treatment in 2008, crashed hard from over-herxing & allergy to Japanese Knotweed (Buhner protocol), then resumed treatment in 2009. Been treating off and on since then...so about 5-5.5 years.
But I have severe detox problems (methylation stuff) and a gut that likes to stop working frequently, plus a bunch of sensitivities, allergies & intolerances that really hinders the options...I'm a much more complicated case than most...
One thing that may help you is massage therapy. One of the things that helped my RSD/CRPS pain the most was physical therapy, and part of that was I was required to wear tight socks to help desensitize the nerves in my feet. It was really hard to do, but it did help.
-------------------- -Razzle Lyme IgM IGeneX Pos. 18+++, 23-25+, 30++, 31+, 34++, 39 IND, 83-93 IND; IgG IGeneX Neg. 30+, 39 IND; Mayo/CDC Pos. IgM 23+, 39+; IgG Mayo/CDC Neg. band 41+; Bart. (clinical dx; Fry Labs neg. for all coinfections), sx >30 yrs. Posts: 4166 | From WA | Registered: Feb 2011
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