posted
Today I go into the Doc to discuss going completely intravenous with my treatment. It will be a lot more expensive pills I'm on and I'm guessing probably a lot more debilitating = SUPER HERX ? That's all good with me, I feel like I'm kinda just playing around with these pills. I don't have the patience to go slow and steady, I've been ill for so long, I just want to hit it and quit it! Most lyme patients tell me that the IV is so much faster and stronger than the pills, right into my bloodstream and right to the heart of the matter. I've heard is crosses the blood brain barrier easier and really gets into all those nasty little spirochetes- w/o having to go thru and get diluted in the digestive tract prior.
That sounds really good to me, because one bodily system that I don't have a problem with, is my digestive tract and my gut.
I'm concerned if I stay the course with the pills my stomach and intestines will be shot / ruined and then I'll have that to deal with that too. What do you guys think ?
Most lymedisease patients/ friends have told me to hit it hard with the intravenous antibiotics.
I'm currently on two different antibiotics, anti virals and anti amoebic/parasitic drugs and supplements. They will keep me on the rest and just do antibiotics thru iv.
I think they want to do rocephin and silver- what do you guys think of that ?
The strongest herx reactions,I've had have been from doxcycycline and flagyl - more so than any others..
Whats your experience with IV antibiotics vs. pills?
Will I have to have a port ? The idea of a port in my heart freaks me out !
I have been doing some gamma and glutathione I'vs for immune support and detox, so I'm pretty used too and comfortable with the whole Iv thing... I'm also starting on natural herbal antimicrobial tinctures- samento ,banderol and also burbur for detox. Next I guess i will move on to some cumanda and pinella .
What has worked for lymie guys and gals?
I'm excited to go this route, but a little scared...
But I will be facing it bravely, because I WANT THESE THINGS DEAD!
I herx pretty hard from the pill chemo, but I feel like w/ the pills, I'm just hitting T-rex ( the lyme) with bows and arrows... I want godzilla ( Iv antibiotics ) to come in and stomp this lyme! I feel like it will hep me get better sooner than later and I've already lost too much time and too much of my life to this damned dis-ease ! Any thoughts?
-------------------- Hoping for Hope Lyme, Cfids, Hormone imbalance, hypo-thyroid, immune deficiency Posts: 44 | From North Hollywood | Registered: Jan 2014
| IP: Logged |
Judie
Frequent Contributor (1K+ posts)
Member # 38323
posted
I'm doing bicillin IM shots and those helped me (sort of a middle ground between orals and a picc line).
I tried IM rocephin shots before getting a picc line. I couldn't tolerate rocephin and actigall, so my doc and I are on the fence about a picc line now.
I might do a picc line for doxycycline though.
The leader of my support group did IV rocephin for several months. She was in a wheel chair when she started and now is holding a full-time job, and running around all over the place so it can definitely be a turning point. She didn't feel any benefit until month 7.
Malarone was my turning point for babs. I'm still in treatment, but it made a dramatic, quick difference.
Tinidazole was my cyst buster and it also made me feel better.
I've done several herbals for long periods of time and my doc and I finally cut back on them. They just weren't getting to the root of the problem for me.
Posts: 2839 | From California | Registered: Jul 2012
| IP: Logged |
posted
I am interested to see the response you get. I am in the same boat as you.
I am planning on discussing this with my dr. next month. In my gut I believe this is where the answer lies for me.
I had been on IV vanco 2 yrs ago for another reason, and unbeknownst to me, it kick the heck out of the lyme (which I didn't know was the original problem) I recovered to about 65% of my normal self, from just one bag prior to a surgery.
They didn't know what was wrong with me in the hospital, they couldn't control my pain or my spasms.
For a few months I was out of a wheel chair and walking in the city with my daughter. Then I started slipping backwards to where I am now.
I have gut issues along with the lyme....I just think it is my best bet.
I want to walk in the city without a wheel chair! Good Luck
posted
The first time i tries IV doxy i had massive itching all over my body, they thought it was an allergic reaction.
It wasn't, it was just a massive herx, because a yr later i did 3 months of IV doxy and was fine. Was the best i had ever felt.
I think for me it was best to get my load down a lot before i did the IV, but that's just my opinion. Good luck with what you decide.
Posts: 908 | From Albany | Registered: Nov 2008
| IP: Logged |
GretaM
Frequent Contributor (1K+ posts)
Member # 40917
posted
I agree with jlcd1.
Get the bacterial load down with oral abx as much as possible, then go to IV if necessary.
For me it was necessary, and made a huge difference.
Posts: 4358 | From British Columbia, Canada | Registered: Jun 2013
| IP: Logged |
posted
This is great to know all - thanks for sharing !! I have been on meds for 6 months and my LLMD wants to do a PICC Lines next month
Posts: 21 | From Maryland | Registered: Mar 2014
| IP: Logged |
randibear
Honored Contributor (10K+ posts)
Member # 11290
posted
my insurance wont pay for it. I've herxedbig time on pills.
I wish you luck. I've heard people get am a zing results.
-------------------- do not look back when the only course is forward Posts: 12262 | From texas | Registered: Mar 2007
| IP: Logged |
posted
randibear - Not sure if my insurance will pay yet or not... guess that may determine what I do.... try burbur for the herxing - helped me.
Posts: 21 | From Maryland | Registered: Mar 2014
| IP: Logged |
posted
Does anyone one have a guesstimate of home much a PICC Line is? I don't have insurance.
How are you all feeling after being off of the IV antibiotics? Have you maintained feeling better?
Posts: 12 | From Wilmington, NC | Registered: Jul 2014
| IP: Logged |
posted
For me, the IV wasn't like an immediate, huge, life-changing difference. But over time, I got a lot more out of it than doing the oral meds. Actually, I was on IV *and* oral meds, but I feel like that really helped me get out of a hole, and then I've been on oral meds for another few months here, and I'm just about done with them, after 4 years of treatment.
Posts: 306 | From Brownsville, PA | Registered: Jul 2007
| IP: Logged |
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
UBBFriend: Email this page to someone!
![[Big Grin]](biggrin.gif)
Printer-friendly view of this topic