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I feel like Ive had a horrible immune reaction from tick bit. Ive tested negative several times but have bad neuropathy, chest pains and now meningitis. I feel like its on a steamroll, just progresses faster and faster and can't be stopped. Can this be stopped and how? I had chest pain, upper spine pain and pressure in my feet. These are my trouble areas. Symptoms never showed up except tingling in feet just pressure. Then I went on doxy for 21 days. tingling came back so went back to drs and got 7 more days and it stopped. now its horrible a year later.
Posts: 159 | From usa | Registered: Sep 2014
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TF
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From page 3 of the Burrascano Lyme Treatment Guidelines:
"GENERAL PRINCIPLES
In general, you can think of LB as having three categories: acute, early disseminated, and chronic. The sooner treatment is begun after the start of the infection, the higher the success rate. However, since it is easiest to cure early disease, this category of LB must be taken VERY seriously. Undertreated infections will inevitably resurface, usually as chronic Lyme, with its tremendous problems of morbidity and difficulty with diagnosis and treatment and high cost in every sense of the word."
21 days of doxy does not cure lyme disease. Since you were undertreated, your lyme disease has resurfaced just as the quote above says will INEVITABLY happen.
Our doctors have been miseducated to believe that lyme is easily cured--with the 21 days of doxy. So, that is why they treated you like they did.
My PCP gave me 30 days. (This was 13 years ago.) It helped, but the symptoms came right back. Still, he refused to give me any more meds.
So, I was forced to seek out a lyme doctor--meaning a doctor who will treat you until your symptoms are gone and then at least 2 more months.
That is what Burrascano says to do. He is the lyme disease pioneer and was the #1 lyme doctor in the world when he was practicing. They came from all over the planet to be treated by him.
My lyme doctor followed the Burrascano Guidelines and had me symptom free in 8 months and finished with treatment in 13. I completed my treatment over 9 1/2 years ago. I have my normal life back. All thanks to a doctor who followed the Burrascano Guidelines.
You can find the Burrascano Guidelines at the top of the Medical Questions forum. Read this document and get your education on the disease that you have.
LabCorp and Quest lyme tests are only about 50% accurate. So, at least half of all cases are missed.
Even with a great tick-borne disease testing lab like Igenex in California, some people with lyme test negative. That is because lyme knows how to fool the immune system into not realizing it is there.
The lyme test does NOT look for the lyme bacteria. Instead, it looks to see if the patient's immune system has created antibodies to the lyme germs.
So, it is an indirect test. If your immune system is being fooled by lyme disease, you will continue to test negative while the disease continues to progress.
As Burrascano says, lyme is essentially a disease of the nervous system. So, that is why you have the neuropathy. And, once it gets into the brain, many lyme patients get brain inflammation such as meningitis, lyme encephalitis, etc.
This is very serious. You owe it to yourself to get to a good lyme doctor. Your brain is a very precious and valuable thing.
Let us know where you are located and we can give you some doctors' names.
If you do not know that lyme disease is embroiled in a major medical controversy, then you do not understand why this is happening.
There are 2 camps when it comes to lyme disease. The first camp has been taught that lyme is rare and easily cured (with 30 days or less of doxy).
The vast majority of our doctor believe this because this is what they have been taught by the Infectious Diseases Society of America (IDSA).
The doctors who actually have gotten lyme have found out that this short treatment doesn't work (just like I found out and all the others on this board). Then, they research and learn about Burrascano, etc. Then, they often become lyme doctors.
The lyme doctors are camp #2. They know that lyme is worse than an epidemic and lyme is very difficult to cure. It becomes more difficult to cure the longer you have it.
So, do some research and decide for yourself which camp you believe is right.
I have seen the Burrascano protocol work over and over for myself and at least 5 of my friends. One lady had lyme (diagnosed as fibromyalgia) for likely her entire life--50 years. Still, she got rid of it by going to a Burrascano type doctor I recommended to her.
Let us know if you want doctors names.
Posts: 9931 | From Maryland | Registered: Dec 2007
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TF
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Member # 14183
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The lyme doctors have formed an organization called the International Lyme and Associated Diseases Society (ILADS).
This organization has a great website. It includes the Burrascano Guidelines. Here is the link:
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
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