posted
I'm about to try Tindamax. Who has some good stories on this one? I'm hoping this can put a real dent in the Lyme. I've seen the Eva Sapi research on it and have high hopes.
Posts: 922 | From Philadelphia | Registered: Sep 2012
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Judie
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posted
It helped the first month I took it (I felt better, not worse). It unclogged something. I took a break, tried it again because I had such a good reaction the first time (the doc said it wasn't necessary, but since I did well, I wanted to try it again). The 2nd time it didn't work (I had an allergic reaction).
My doc said you don't need to treat with it for very long.
Tindamax can also cause peripheral neuropathy, I'd stop it at the first sign of problems like that (burning, pain, numbness in feel/hand/ankles, etc...)
Don't mistake a herx for an adverse drug reaction.
Posts: 2839 | From California | Registered: Jul 2012
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surprise
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posted
Start very slow! Like a sliver. It was extremely powerful to me. But needed to build up, for sure.
My LLMD recommended same days off as on- pulsing. Got up to 2 weeks on/ off.
-------------------- Lyme positive PCR blood, and positive Bartonella henselae Igenex, 2011. low positive Fry biofilm test, 2012. Update 7/16- After extensive treatments, doing okay! Posts: 2518 | From USA | Registered: Nov 2011
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GretaM
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posted
One of my favorite!
Tinidazole always always makes me feel better.
Action against all forms of lyme, action against protozoas, bart and babs.
It is important to pulse it. My doc and another doc start one week on, one week off. Then when the worst of the herxing is over, two weeks on two weeks off.
VV your lyme reminds me a lot of mine.
I sure hope you feel good on tinidazole also.
It makes my energy seem "clearer" if that helps. I can't describe it.
Just better.
Posts: 4358 | From British Columbia, Canada | Registered: Jun 2013
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posted
Our daughter used it 3 days on / 4 off. The first couple of herxes were hard, but subsequent ones were better, with resolution to a better baseline each time.
When she was barely herxing with each pulse we weaned to herbal protocols and haven't looked back. She's doing great!
-------------------- 13 yo DX PANS/Tourette's/Asperger's/ADHD treated for Igenex positive bartonella/IND lyme with 2 years of abx treatment. Weaned off abx April 2013 at 80% improvement. Continuing with Buhner bartonella/babesia protocols. Aug 2014 99% improvement. Posts: 265 | From Canada, Ontario | Registered: Jul 2013
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Judie
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posted
I just took it straight through. No ramping, no pulsing. No herxing either, I just felt better.
I was on doxy and bicillin shots at the time.
I guess doctors prescribe it differently for different people. It did the trick it needed to do the first time and I was done.
Posts: 2839 | From California | Registered: Jul 2012
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posted
I saw great improvements with my knee pain when I started that. I had to start slow. It made me feel squeazy and a feeling similar to a cold coming on. Once I got full bore into it knee pain got much worse but then much better.
I did that for a couple months and then switch to Flagyl and that made the knee pain much worse and then much better after.
Posts: 35 | From Western, MD | Registered: May 2013
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posted
I've been taking a couple doses daily since I began solid tx this past July. I started it paired with doxy and later added bactrim.
I think it did a lot to knock back whatever was causing my babs sx. The first six weeks were rough, but after that I noticed an increase in energy and the constant air hunger abated to flares.
Tinidazole is often prescribed as a single dose 2 gram tx for giardia, for daily use the dosages are lower, and some people can't take but a small dose. It appears that many pulse it.
I had some instances in my first couple months of tx where I had partial hearing loss and/or increased tinnitus. I have a lot of that with lyme+co's anyway, so I don't know if it was side effect, toxicity, or herx. I put a lot into detox now and my tinnitus is immensely improved. Good luck with the tindamax!
Posts: 474 | From US | Registered: May 2014
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ukcarry
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posted
I am allergic to it, but hopefully, you will not be!
Posts: 1647 | From UK | Registered: Nov 2008
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posted
one more thing, are you taking LD Naltrexone? i think this might be why the Herxing has been managable for me. As i understand it, it helps get rid of the toxic yuck, the same stuff that makes you feel gross.
posted
My kid did several rounds of Flagyl without any effect.
He could do Tindamax now that he is above the age threshold.
Both drugs are in the same class but is it possible for Tindamax to work for somebody when Flagyl had no effect?
Posts: 655 | From USA | Registered: Sep 2007
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I feel like I want to take all the Tinidazole now and nuke these spirochetes in one go !!!
I know I can't, but the thought of it just made me laugh.
Posts: 922 | From Philadelphia | Registered: Sep 2012
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GretaM
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posted
Haha VV! That made me chuckle too!
I think along the same lines when I take my bart med.
"die suckers die" is one I use quite often.
Also some unprintable words.
I picture myself with the Dirty Harry look. An antibiotic and antimicrobial gun slinger.
Posts: 4358 | From British Columbia, Canada | Registered: Jun 2013
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posted
Ha! I remember watching the Alien(s) trilogy last year to get in the mood. I felt like most of the action in those movies is what's going on in my body.
Posts: 922 | From Philadelphia | Registered: Sep 2012
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quote:Originally posted by LilaLee*: one more thing, are you taking LD Naltrexone? i think this might be why the Herxing has been managable for me. As i understand it, it helps get rid of the toxic yuck, the same stuff that makes you feel gross.
I have some but I have yet to try it.
I have too many sleep issues and I don't want to risk the insomnia that LDN is known for.
Posts: 922 | From Philadelphia | Registered: Sep 2012
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Judie
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posted
LDN made me insane. It doesn't work for everyone even at low doses.
Posts: 2839 | From California | Registered: Jul 2012
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