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» LymeNet Flash » Questions and Discussion » Medical Questions » chronic inflammatory demylinating polyneuropathy

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Author Topic: chronic inflammatory demylinating polyneuropathy
Theresa
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Member # 421

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Has anyone been diagnosed with cidp? I have chronic lyme, bartenella and babesia. It lead to autoimmune which caused the cidp. I am waiting for approval for icing therapy.I am wondering how common the cidp is. New thing is now have trouble on and off with swallowing. thanks. God Bless Theresa
Posts: 479 | From nj | Registered: Nov 2000  |  IP: Logged | Report this post to a Moderator
bigstan
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Member # 11699

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You can do a google search and type in lyme cidp there is info out there. Here is one from a doctors blog:

http://lymemd.blogspot.com/2009/01/lyme-and-cidp.html

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HERX is a Four Letter Word!

Posts: 716 | From If you're going through hell, keep going......Winston Churchill | Registered: Apr 2007  |  IP: Logged | Report this post to a Moderator
Theresa
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Good information. Thank you. It confirms my doctors plan. I have been waiting 6 weeks for approvals for i.v. doxycycline and i.v.i.g. therapy. I am on orals and getting worse. not happy about the swallowing difficulty. God Bless Theresa
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Littlesprout
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Look into Ivig r your CIPD. Ins will pay for it w CIPD diagnoses
My Lyme friend, 65+, is having good results w it. Gammunex C is suppose to be one of the best.

Posts: 315 | From USA | Registered: May 2005  |  IP: Logged | Report this post to a Moderator
   

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