Topic: achilles problem without being on quinelones or statins
lpkayak
Honored Contributor (10K+ posts)
Member # 5230
posted
This is really strange for me and came out of nowhere
I did a little shoveling snow yesterday but most was from wc and just pushing not lifting
There is a large bruise on lower front of leg...a little towards inside...i dont remember bumping it but i do bump things often
I was probably in my chair an hour or more which is what i usually do. When i got up to go to bed left foot and ankle felt wierd...tight...when i pointed toe it hurt but when i tried to bring toe up pain was horrible-i couldnt do it-so cgilles is really tight
I needed cane to get to bed cuz wc only gets me about six ffeet from bed. It got worse all night...very little sleep
Im up now with meds in hoping it will improve. I will take skelactin soon...i dont usually take it so it is a little hard to get to
Im trying to think of new supps im taking...curcumine, remag, they couldnt do this right?
Its on my left side and for two yrs my left shoulder has had rotator cuff problem that they cant fix. It has been really bad the last couple weeks since thanksgiving day when i had to clear snow off truck
As lso left side of neck has new sensations that i have been trying to ignor. It could be shouder tightness spreading to neck...it also spreads all around to upper back around clavicle
I have had shoulder checked a lot and Pt always makes it worse. I switched to new shoulder doc but missed appt cuz of the tri gem a couple weeks ago
So many things are wrong the are really piling up
The neck thing does have me a little worried about somw kind of blockage since i have high lipids and am obese
I had carodid ultrasound twice and they were ok
Any thoughts id appreciate...i still have a few things to follow thru on with house...but now imnot sure if i ll be able to pull it off by christmas...it was suppised to be done nov 1 st
This is depressing me...i have colonoscopy and endoscopy and oncol cgeckup coming up
Let me. Know if anyrhing jumps out at you from these sx...i want to staet getting better...not worse
-------------------- Lyme? Its complicated. Educate yourself. Posts: 13712 | From new england | Registered: Feb 2004
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lpkayak
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Member # 5230
posted
Im going to get skelaxin now and try to get dressed before stove inspector gets here...thank you
-------------------- Lyme? Its complicated. Educate yourself. Posts: 13712 | From new england | Registered: Feb 2004
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-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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lpkayak
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posted
Me too. Its definitely worse when i stretch achilles and heel is very sore
-------------------- Lyme? Its complicated. Educate yourself. Posts: 13712 | From new england | Registered: Feb 2004
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lpkayak
Honored Contributor (10K+ posts)
Member # 5230
posted
Someone suggested it could be osteomyelitis in pm. It wouldnt su rt prise me if i have many infections resurfacing after this 8 month marathon of fixing house. Very soon i can rife bart and see what happens. Im starting detox stuff i have today...and soon will be back to tx...right after kids leave after christmas i guess
-------------------- Lyme? Its complicated. Educate yourself. Posts: 13712 | From new england | Registered: Feb 2004
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GretaM
Frequent Contributor (1K+ posts)
Member # 40917
posted
Argh sounds painful LP!
For me, Achilles issues are bartonella.
And also seems to affect my left side more.
I know lyme is supposed to be one side, and bart both sides.
But lyme damaged my left side really bad, so when bart flares, the left side is worse.
The bruise is at the front of your leg?
And the Achilles hurts at the back?
Did you twist it?
Posts: 4358 | From British Columbia, Canada | Registered: Jun 2013
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lpkayak
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Member # 5230
posted
No...i didnt twist it. It seems to be a little better. Im walking short distances and able to stretch it a little without pain. I suspect skelaxin helped. Fingets crossed. I really need to get into tx mode but want to be as organzed as possible so can deal with herx
-------------------- Lyme? Its complicated. Educate yourself. Posts: 13712 | From new england | Registered: Feb 2004
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Judie
Frequent Contributor (1K+ posts)
Member # 38323
posted
I got the same pain you described when I was on tinidazole (achilles to the heel). It got worse when I was put on the levaquin.
It sounds like an adverse drug reaction.
Flagyl and tinidazole can cause nerve pain too.
Posts: 2839 | From California | Registered: Jul 2012
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Rumigirl
Frequent Contributor (1K+ posts)
Member # 15091
posted
quote:Originally posted by Judie: I got the same pain you described when I was on tinidazole (achilles to the heel). It got worse when I was put on the levaquin.
It sounds like an adverse drug reaction.
Flagyl and tinidazole can cause nerve pain too.
Oh, oh!!! I know that, but didn't think about it. I had a horrible injury and surgery with a lot of complications, earlier this year (I completly ruptured all 3 hamstring tendons at the sitz bone with A LOT of retraction---the muscles & tendons fell down my leg, due to not being diagnosed and treated properly and expeditiously----Grrrrr!
I am having LOTS of pain in the nerves, really, really bad! I have been on tidindazole a lot during a lot of this period. I never thought about the possible connection----duh!!! Of course, it is really hard to know what is from what. I had a ton of pain all along.
but it has now been 6 months since the surgery, and the pain is terrible still. Sorry, I should start another thread and not highjack your thread!
Posts: 3771 | From around | Registered: Mar 2008
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lpkayak
Honored Contributor (10K+ posts)
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posted
No-talk about it here....it belongs here
It happened to be five or so yrs ago when i was on statins...put me in walker. 3 ortho pedists including one who replaced my knees couldnt figure it out
IT DRIVES ME CRAZY THEY CANT DX US BUT THEY CANT
i dx myself by going online and finding out statins do this
I found out at spacedocs.com. i followd links
Llmds warn about cupro and thise drygs
I guess about tini and maybe flagyl.too. flagyl didn bother me
This time i was not on any of those drugs tho so it really caught me off guard.
I went back to internet and found it can happen to ppl who have flat feet. I havenot been wearing my orthitics and i think that is why it happened. Also i am , exhausted, recovering from trip and mold exposure
But please keep writing here as long as it is about achilles...tight hamstrings are also known as cayse of achilles problems
Im a little better but had to double my ibuprofenand begin skelaxin
-------------------- Lyme? Its complicated. Educate yourself. Posts: 13712 | From new england | Registered: Feb 2004
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posted
I can't take flagyl or tini anymore due to nerve pain. They are on my "allergic" list.
Hope you can recover from the pain, Rumi! Be sure to take tons of magnesium! Flagyl and tini deplete mag to the MAX.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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Rumigirl
Frequent Contributor (1K+ posts)
Member # 15091
posted
Oh, Lord have mercy!!! This illness complex is driving me CRAZY!!!
I know a lot of this stuff, but who can always remember it??!! Plus, it is so darned complex, with so many different opinions, etc., etc.
I had the bad injury, because I had already had it too many times before to a lesser level, but had the partial tears prior when there was no real cause, i.e., a slightly longer stride than usual in a slightly higher heel than I was used to (not real high heels!).
But my LLMD at the time said, what I already knew; it was due to the Bart (plus Lyme, etc.) that wrecked my connective tissue---not to mention the bones.
Now, I am thinking about the tinidazole I've been on, which has helped miraculously for my migraines. And I am supposed to do IV flagyl soon.
Now, I wonder if the tinidazole made my nerve pain worse or not? How the heck would I know? If I stopped it, and it did cause it, it might not get better!
Thie hamstring repair surgery I had is known to be a truly awful one, and the nerves were numb a lot, and are just waking up/regenerating, so that is normal, albeit VERY painful!
But the DEGREE of pain just seems wrong at just over 6 months.
But my case was really, really bad, due to the underlying disease process and damage, the ongoing infections, the degree of rupture and retraction, and the long, long delay before surgery
(thanks to my DO's not listening to me and responding, and leaving me on my own with it all, while they did more and more to make $$ off me, while I got worse & worse! (Sorry for the long rant).
So now what? I guess I should forgo tini and flagyl now, and take tons of magnesium and vit C. Although, I can only take small amounts of magnesium, before it GIVES me cramps!
I am so ready to give up. Not really, but it really feels like darned if I do, and darned if I don't all around.
I am so sorry lpkayak. I know only too well. We all need a magic doctor, along with a magic mommy!!
Posts: 3771 | From around | Registered: Mar 2008
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Rumigirl
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"IT DRIVES ME CRAZY THEY CANT DX US BUT THEY CANT"
Yup! We are all in this boat to one degree or another, even with our Lyme docs, IMO. They are swamped. No one can know everything, or think of everything. But still . . .
To boot: I already have documented peripheral neuropathy---in fact damage to every single part of my nervous system, severely----brain, autonomic nervous system, peripheral nerves, CNS, the whole 9 yards. So, consequently, may be more vulnerable to tini or flagyl adversely affecting the nerves.
But it has helped so much, where nothing else has!! What the heck are we supposed to do? I/we are often between a rock and a hard place. : - (
Posts: 3771 | From around | Registered: Mar 2008
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lpkayak
Honored Contributor (10K+ posts)
Member # 5230
posted
Its telling me im.not allowed to delete that double post. A mod can if they want
I dont understand why sometimes it lets me edit as nd sometimes it wont
-------------------- Lyme? Its complicated. Educate yourself. Posts: 13712 | From new england | Registered: Feb 2004
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lpkayak
Honored Contributor (10K+ posts)
Member # 5230
posted
Rumi...i so understand where you are at. I know docs doing stuff to make money on you. Its a downside to having good ins. Im a year and a half past my knee revision (both were replaced 8 yrs ago) doc is pushing to do the other one...says i need it...but the one he did hurts more -way more than the one he didnt do so i am refusing
And i know nerve regenerating pain from lumpectomy....more than a year but finally less a nd less
I would go crazy if i couldnt come here and find simeine who really understands
-------------------- Lyme? Its complicated. Educate yourself. Posts: 13712 | From new england | Registered: Feb 2004
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To boot: I already have documented peripheral neuropathy---in fact damage to every single part of my nervous system, severely----brain, autonomic nervous system, peripheral nerves, CNS, the whole 9 yards. So, consequently, may be more vulnerable to tini or flagyl adversely affecting the nerves.
But it has helped so much, where nothing else has!!
- Personally, I would stay far far away from flagyl or tini.
Maybe something natural would work?
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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Rumigirl
Frequent Contributor (1K+ posts)
Member # 15091
posted
But no other treatment has helped with my migraines too much (somewhat, but not tremendously), whereas tinidazole has been miraculous!!! And I've tried everything under the sun for them for 45 years. Neurontin helps, but it is only suppressing symptoms.
The migraines are not just terrible to go through; they CAUSE further brain damage. I already have severe brain damage from this mess. In 2013 my brain MRI showed 40-50 lesions per hemisphere!!! With severe plaque everywhere!
I just had another one done, and the lesions have increased ---in just a year and 4 months! (This should be a separate thread). I am truly in a very difficult place.
In the meantime, I have stopped the tinidazole to see if it helps the pain from the surgery, which has been pretty extreme. It's an extremely painful injury and surgery, and my case was especially bad. But I am alarmed at the degree of pain this far out.
I wish I had a crystal ball here.
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