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» LymeNet Flash » Questions and Discussion » Medical Questions » tbe advice

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Author Topic: tbe advice
DaleS
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I seem to have lots of tbe symptoms. llmd wants to treat anaplasmosis first. Does this make sense and why?

http://www.columbia-lyme.org/patients/tbd_encephalitis.html

I have back pain, unrine and intestinal issues, mild meningitis, pain in legs and spinal pain.

Supposed to go to the reg docs tomorrow any tests I should ask for?

recent tests:
cmp
hemogram
blood smear for parasites
automated differential
all normal

six weeks ago I had brain mri and upper spine mri all normal
lyme test negative of course

Posts: 159 | From usa | Registered: Sep 2014  |  IP: Logged | Report this post to a Moderator
DaleS
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also have rib pain and knee inflamation
Posts: 159 | From usa | Registered: Sep 2014  |  IP: Logged | Report this post to a Moderator
DaleS
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I'm scared but mostly sad because I want to spend time with my wife and our child.
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Brussels
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anaplasmosis = ehrlichiosis

Many people here are infected with that. I was, too. Let the doc treat you for that, why not?

As for TBE, it is known as FSME where I live (in Switzerland), and it is getting very common. But it usually wrecks havoc in less than a month after infection.

At least, that is how the doctors see it and you can read about it. Of course, I don't think they believe on chronic FSME, only acute.

My daughter got TBE /FSME, and it doesn't come and go lightly. It is a devastating, very fast spreading and handicapping infection, very different from most tick born infections (at least, the way we lived, it was very different).

Some people get handicapped in less than 3 weeks since infection starts (after tick bite). After the 3rd week, the worst is usually past but some people get lifelong sequels.

So I don't think TBE is your case, but I may be wrong, as there may be chronic TBE? My daughter was mostly in bed the whole time, with horrible headaches. You don't walk around, if you see what I mean...

Mostly, people have encephalitis due to other infections. Borrelia, bartonella, and probably many other infections can cause encephalitis. It is very common during lyme.

I'm glad you are still here, DaleS. Did you buy any book from Buhner?

I find he writes well and gives us a lot of valuable tips to fight the disease on your own, parallel to your practioners. You feel more 'in control' of your destiny, I mean.

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TF
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"The range of tick-borne encephalitis spans from Western Europe to East Asia. It is not endemic in the United States."

This is a quote from your link.

This says that tbe is not common or does not exist in the U.S.

So, it would be odd if you had it unless you have been living in Europe.

In addition, your symptoms do not sound like you have it.

You are really sick, and you are fortunate that your lyme doctor is willing to treat you. I suggest you go along with the treatment he wants to provide for at least a number of months.

Trust that your lyme doctor has knowledge and experience in treating this--more than you have.

Try to remain optimistic. That actually helps your body fight these horrible diseases. Tell yourself that the meds are killing germs. Tell your body to fight for all it is worth.

When you let yourself think depressing thoughts, the body translates that into "don't fight; give up; let the germs take over." Then, your immune system, etc. obeys these commands.

So, work very hard at trusting your doctor and believing that the meds will help you.

This will translate into positive results for your health.

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poppy
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There is encephalitis caused by tickborne diseases such as lyme, and there is tickborne encephalitis caused by a virus, which we do not have in the U.S. Don't go looking for trouble! You have enough already.

I agree with TF. You finally have a lyme doc. Now let that treatment happen.

Posts: 2888 | From USA | Registered: Mar 2004  |  IP: Logged | Report this post to a Moderator
   

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