posted
What do you do when you get a completely brand new set of symptoms? I can honestly say treatment of this disease is a roller coaster, and I'm often scared.
The other night I woke up suddenly with what I thought was hives/asthma attack. It turned out it was just a creeping sensation then the weirdest head in the clouds feeling I have ever had.
Today, absolute throbbing pain. Sharp, about 1-2 secs, then it fades and repeats continually. First it started in right elbow, and has moved to lower shoulders, ribs ( hurts to breath in) and now my neck.
My neck is so bad it feels like I twisted it and moving my head is painful. I'm starting to get a headache now, with pain in the backsides of my legs.
I took Advil which did nothing to ease the sharpness. I'm not sure if I'll get to sleep tonight.
I just don't know what you do, because even if it got bad, no ER or walk in clinic would help. I think stronger pain killers are next on the menu.
Perhaps some pychiatric help will solve this
-------------------- Sick since 2000 Bulls eye 2005 Dx Babesia, Lyme 2014 Posts: 247 | From New Hampshire | Registered: Aug 2014
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GretaM
Frequent Contributor (1K+ posts)
Member # 40917
posted
Maia,
I hope you are over the worst of it.
Sometimes when my neck and head get the pain you describe, it is inflammation of the meninges.
For me while on IV, it was a herx. My doc pulled me off abx for a week and put me on IV glutathione and binders.
Did you have any difficulty with speaking, forming words, drinking, balance or nausea with this pain?
Posts: 4358 | From British Columbia, Canada | Registered: Jun 2013
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posted
No, I did wake up with an inability to use my neck. I've been wearing a neck brace. Advil didn't help, so I know it's not inflammation from a pulled muscle.
But it 'feels' like I pulled the muscle in my neck. I have no fever but I think something other than the muscle is inflamed. I did have a moderate headache, back of the head.
In my doctors experience, Frontal headaches are often Babesia; bitemporal often Bartonella; back of head often Lyme.
-------------------- Sick since 2000 Bulls eye 2005 Dx Babesia, Lyme 2014 Posts: 247 | From New Hampshire | Registered: Aug 2014
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Just curious - does chiropractic care ever help? What about cranial work done by a cranial specialist - sometimes chiropractors know how. Or massage work done on the muscles?
Do you take magnesium to relax your muscles?
Turmeric takes down inflam pain for me - I get it in bulk at the healthfood store and dip empty capsules into it.
Posts: 13117 | From San Francisco | Registered: May 2006
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Judie
Frequent Contributor (1K+ posts)
Member # 38323
posted
Sharp pain is usually nerve pain. NSAIDs don't really work for that (as you're experiencing).
Swelling and all kinds of things can cause nerve pain. It's good your doc pulled you off the antibiotics, some of those can cause nerve pain too which makes it confusing (Is it Lyme and friends? Is it an adverse drug reaction?)
I hope you can figure out the cause so you can treat appropriately.
Posts: 2839 | From California | Registered: Jul 2012
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posted
This is a totally new symptom, never had neck pain before so I don't know any of the answers to your questions. The heating pad helped. Painkillers helped, but not Advil.
It's been a rough few days. The neck pain isn't so bad now but everything is still sore.
I don't know where it came from it why. It's not muscle pain.
-------------------- Sick since 2000 Bulls eye 2005 Dx Babesia, Lyme 2014 Posts: 247 | From New Hampshire | Registered: Aug 2014
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posted
I'm on ceftriaxone and Zithromax, both IV. Reading the side effects it doesn't seem like either cause nerve pain?
My neck still hurts a week later. I'm wondering if I have some sort of inflammation in my CNS.
Is it possible a bacterial die off could cause inflammation? It's my 7th week ceftriaxone and 3rd week zith via IV.
This is by far my sickest week. I'm ending the ceftriaxone and starting flagy, and I've puked for two days straight 😕
-------------------- Sick since 2000 Bulls eye 2005 Dx Babesia, Lyme 2014 Posts: 247 | From New Hampshire | Registered: Aug 2014
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GretaM
Frequent Contributor (1K+ posts)
Member # 40917
posted
"Is it possible a bacterial die off could cause inflammation?"
Oh gosh yes.
My doc feels this is my number one cause of my inflamed meninges.
Are you taking any binders?
The liver and kidneys do most of the 'detoxing' of toxins from the body. Thinking Phase 2 here.
Water soluble toxins get excreted via the kidneys and bladder.
Fat soluble toxins get excreted via the liver into the intestines.
In their path out, many of these fat soluble toxins get reabsorbed.
Guess what the brain and nerves mostly are? Fat. So if these toxins are reabsorbed and circulating around, fatty tissue will absorb them.
But if you take binders, they bind to the fat soluble toxins in your intestines, and will hold onto the toxins until you poop the binders and the toxins out.
My doc recommends activated charcoal and chlorella. 4 hours away from other oral abx and oral meds.
Adding in binders may reduce the pain you have in your neck and head.
Other binders are apple pectin, psyllium husks, bentonite clay, diacetomous earth and also chlorestamine.
Posts: 4358 | From British Columbia, Canada | Registered: Jun 2013
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