Kind of ironic since one of the things I told the potential lawyers yesterday was that one of the reasons I wanted to file a lawsuit was a comment Steve made to me several times. He said that he was tired of the doctors treating him like he was dumb and stupid.
When he had his bad seizure-like spells and the dystonia that resulted in ER visits he was basically paralyzed and unable to speak or communicate. But his hearing still worked. He knew what the doctors were saying about him.
The patient in the story obviously had a similar experience but his problem was not just a temporary one like with hubby.
I definitely plan to buy the book - "Ghost Boy: The Miraculous Escape of a Misdiagnosed Boy Trapped Inside His Own Body."
Have been rereading hubby's medical records in preparation for my meeting with the potential lawyers. At one point one of the hospital chaplains made the comment that I was in denial. I think the better term would be disbelief.
It was very hard to believe that the docs would not at least try empiric treatment for babesia - that is when I went to the medical ethics board.
Hubby was not brain dead or even in a coma. He was simply sedated and medicated for pain because of his lung failure. He was also medically paralyzed with drugs to help with oxygenation.
The nurses and respiratory therapists all told me that they had seen patients as sick as hubby who survived. His fevers were not high enough for long enough to cause brain damage and his oxygen stats were not low enough to cause brain damage either. The nurses told me that from looking at his brain waves on the monitor they could tell that he responded to the sound of my voice.
Stories like this one show just how miraculous the human body is and that as long as there is life there is hope.
Bea Seibert
Posts: 7306 | From Martinsville,VA,USA | Registered: Oct 2004
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Catgirl
Frequent Contributor (5K+ posts)
Member # 31149
posted
Wow, what a great link! So inspiring. Bea, so are you. I love how you fight for what is right and not fade away especially after the hell you went through. Thank god Steve had you. He is probably right by your side, right now. Hang in there. :)
-------------------- --Keep an open mind about everything. Also, remember to visit ACTIVISM (we can change things together). Posts: 5418 | From earth | Registered: Mar 2011
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lpkayak
Honored Contributor (10K+ posts)
Member # 5230
posted
yeah i saw that too...i experienced it myself for a mere 15 min during surgery...i was able to hear and feel but unable to move or speak...really scarey...creepy and all they said was they were sorry
back then i was too tired and sick and trying to raise family and work to do anything about a law suit
so many docs just make me sick
-------------------- Lyme? Its complicated. Educate yourself. Posts: 13712 | From new england | Registered: Feb 2004
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