posted
I currently have 3 hours a day of infusing to do.
If I do it in the morning, it ruins the rest of my day and I feel so sick and can't get off the couch.
Nighttime, well then I get pain issues and can't sleep. Not to mention increased anxiety!
I get scared that the MEDS are killing me, but I'm hoping it's the meds killing the bugs. I'm thinking starting at 4pm?
I am really struggling to follow any sort of schedule. My sleeping is ALL OVER the place. I eat at all different times IF I remember to eat ( makes me puke).
I feel like I'm hindering my ability to get better. I'm too sick and tired to really follow a strict diet and I get so mad at myself. I
I just feel like I feel ****ty because of myself. Real sad about it tonight. Starting crying for no reason today. Overwhelming emotion coming out of no where.
-------------------- Sick since 2000 Bulls eye 2005 Dx Babesia, Lyme 2014 Posts: 247 | From New Hampshire | Registered: Aug 2014
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posted
So sorry. It will get better but you do have to stick with it. You aren't doing three hours at one sitting, are you? Try to eat well its so important. What methods of detox are you using.how long have you been on iv. I know I'm not being very helpful but just wanted you to know "I hear you!" God bless Theresa
Posts: 479 | From nj | Registered: Nov 2000
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posted
Don't know which IV meds you are on, but it is fairly important that you try to do the IV's the same time each day.
Also if you are infusing more than one med, you could try doing them at different times to see if that causes fewer side effects.
A protein supplement powder drink might be easier to tolerate than regular food right now and also less work. Just make sure it is not too high in glutamate or glutamine.
Bea Seibert
Posts: 7306 | From Martinsville,VA,USA | Registered: Oct 2004
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posted
I usually do them one after another. Probably not the best idea, but its just really hard to plan out my day and remember 1 time, let alone two separate times and then flushing the locking my line twice.
The most annoying thing is friends and family constantly asking me if i feel better. I FEEL WORSE and i am TIRED of telling asking me that,..
How could I feel better? The drugs make me tired and the flagyl makes me vomit. Next week will be 10 weeks of IV.
I'm sure right after they will ask me, are you feeling good? and the answer of course will be no, as it took me 14 years to get to this plaace.
-------------------- Sick since 2000 Bulls eye 2005 Dx Babesia, Lyme 2014 Posts: 247 | From New Hampshire | Registered: Aug 2014
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