posted
so I've been reading a lot lately about these drugs because i want to try levaquin but am really really scared. Other then the tendon issues a lot of the stories when you google it, sound like symptoms from Lyme or bart being stirred up.
Does anyone else think that too.
I've taken rifampin, lots of it, for almost 2yrs of my treatment in the beginning because i tested positive for brucella as well but now that bart is coming out again, i need to retreat.
Should i just stick with the rifampin again?
Posts: 908 | From Albany | Registered: Nov 2008
| IP: Logged |
surprise
Frequent Contributor (1K+ posts)
Member # 34987
posted
I would talk to your LLMD about it, get their take and experience.
-------------------- Lyme positive PCR blood, and positive Bartonella henselae Igenex, 2011. low positive Fry biofilm test, 2012. Update 7/16- After extensive treatments, doing okay! Posts: 2518 | From USA | Registered: Nov 2011
| IP: Logged |
surprise
Frequent Contributor (1K+ posts)
Member # 34987
posted
P.S. Yes, I have read some of those stories, too, and some absolutely struck me as Bart die off-
it is much more prevalent than people think (obvious to us).
-------------------- Lyme positive PCR blood, and positive Bartonella henselae Igenex, 2011. low positive Fry biofilm test, 2012. Update 7/16- After extensive treatments, doing okay! Posts: 2518 | From USA | Registered: Nov 2011
| IP: Logged |
TNT
Frequent Contributor (1K+ posts)
Member # 42349
posted
I agree, jlcd1, I have thought the exact same thing.
I wonder if people's adverse reactions are not just a sub-clinical, undiagnosed (stealth) infection that is being hit too hard and too fast (or is simply just stirred up, like you said); and this causes damage in the nerves and joints.
Even the tendon stuff could possibly be this, too.
But, floride is very toxic, (and, though added to the original quinolones to give them more penetration), could very easily be the cause of some or all of the damage, too.
I am no doctor, scientist, or chemist, so consider my thoughts just that... JUST MY MUSINGS.
Posts: 1308 | From Eastern USA | Registered: Oct 2013
| IP: Logged |
TNT
Frequent Contributor (1K+ posts)
Member # 42349
posted
Also, if you have done fine with Rifampin, maybe you ought to check out this thread:
posted
yes these are just my thoughts as well. No expert here. I'm sure a lot of us are thinking the same thing. Thanks for the link.
Posts: 908 | From Albany | Registered: Nov 2008
| IP: Logged |
posted
Fluoroquinolones cause nerve pain for me. They are on my ALLERGIC LIST, even though I'm not allergic. I will never take them again unless I'm dying.
hmmm... maybe not then either!
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96223 | From Texas | Registered: Feb 2001
| IP: Logged |
randibear
Honored Contributor (10K+ posts)
Member # 11290
posted
both cipro and levaquin gave me very bad leg cramps. i couldn't exercise or even climb stairs.
they're a no go for me too.
-------------------- do not look back when the only course is forward Posts: 12262 | From texas | Registered: Mar 2007
| IP: Logged |
cottonbrain
Frequent Contributor (1K+ posts)
Member # 13769
posted
Please believe the nightmare stories you hear about levaquin. I used it for a couple years and wish I had never gone near the stuff.
It gave me tendonitis in both Achilles and in the large tendon at the back of the hamstring. This seems to be permanent and does not heal; it is not just an infection being stirred up. Be careful when you take these meds and if you even think you are getting tendonitis, consider dropping the med.
Tendonitis is not like a muscle or joint ache. It can be much more painful; the stories are real.
Posts: 1173 | From USA | Registered: Nov 2007
| IP: Logged |
linky123
Frequent Contributor (1K+ posts)
Member # 19974
posted
Levaquin blew up my heel. I had to wear the boot for months.
It seems to be ok now, but I wouldn't touch the stuff again unless I were dying.
Cottonbrain, have you tried taking Mg? That helped me the most.
If you get loose stools from it, you can take Remag or ionic mg in the liquid form.
-------------------- 'Come to me, all you who are weary and burdened, and I will give you rest.' Matthew 11:28 Posts: 2607 | From Hooterville | Registered: Apr 2009
| IP: Logged |
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96223 | From Texas | Registered: Feb 2001
| IP: Logged |
randibear
Honored Contributor (10K+ posts)
Member # 11290
posted
I can't take either. I got leg cramps so bad I could barely walk nor do stairs.
no way would I even try again.
-------------------- do not look back when the only course is forward Posts: 12262 | From texas | Registered: Mar 2007
| IP: Logged |
Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- With apologies to those who have been damaged for the frightening word "permanent" in the headline below but all one can do now is to focus on the "may" and know that there are things that might help.
For instance when I see that collagen can be damaged, my mind goes immediately to what might THEN offer collagen support, etc. Follow the points of damage with support.
Scroll to end for a few links he lists for support sites where others are finding their way through this.
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
UBBFriend: Email this page to someone!
![[Smile]](smile.gif)
Printer-friendly view of this topic