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» LymeNet Flash » Questions and Discussion » Medical Questions » ALS anyone else?

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Author Topic: ALS anyone else?
2young2dieMom
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I was diagnosed with ALS five years ago. Has anyone else had that diagnosis?

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Dxd ALS 3/2010
Dxd cllinical Lyme 4/2010
Positive for Protomyxzoa but absolutely nothing else in Igenex

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Keebler
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Some with lyme have received that Misdiagnosis. Yes.

Sometimes, it is a misdiagnosis. While it's easier to say that lyme can be the cause of ALS - sometimes -

It's not so much that lyme can cause ALS (it cannot)

but lyme can certainly cause many of the same symptoms and they can be incorrectly interpreted when doctors are not fully literate about lyme / tick borne infections & other chronic stealth infections.

In the documentary, UNDER OUR SKIN, one doctor who was featured had been misdiagnosed with ALS. Then, as he investigated further and was finally diagnosed with lyme & Babesia (another tick borne infection) and got treatment, the ASL misdiagnosis - and most of the symptoms - fell away.

Same with MS, Parkinson's and even Alzheimer's. Not for all cases, of course, yet often lyme / TBD / chronic stealth infections can be the cause of the symptoms and when the cause is ignored, the wrong diagnosis is made or assumed.
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Lymetoo
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I PRAY it is a misdiagnosis!

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--Lymetutu--
Opinions, not medical advice!

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droid1226
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My grandfather was diagnosed at 41 and died at 74. They get it wrong a lot. The fact you've outlived the time frame is good. True ALS you'd be progressing quickly. Bulbar disfunction, drop foot(which I got with lyme). There are MND's that aren't ALS.

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http://www.youtube.com/user/droid1226/videos?view=0&flow=grid

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jlcd1
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Do you improve at all with treatment?
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Catgirl
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I think ALS is actually babs and lyme gone wild. If either are neglected, one could deteriorate further to what docs think is ALS.

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--Keep an open mind about everything. Also, remember to visit ACTIVISM (we can change things together).

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Lymetoo
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That sounds logical, Catgirl.

--------------------
--Lymetutu--
Opinions, not medical advice!

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Robin123
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Yes, as Keebler mentioned, a doctor written up in Pamela Weintraub's book "Cure Unknown," had that diagnosis and made it through. I heard him speak! I'm pming you -
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Lymedin2010
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Military men are getting ALS?


Is it because of vaccines, chemicals, or disease? There is a strong correlation with EBV & mycoplasma with Gulf War Illness and maybe Borrelia + myco or EBV can cause ALS too?


Funny they mention "soccer players" & "“We are talking about young men who are both physically active and spend a lot of time outside,” Dr. Zivkovic points out."


We also know ticks are outdoors where those active men hangout, but it could be anything.


http://pittsburgh.cbslocal.com/2012/12/24/many-military-veterans-dealing-with-als/

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Keebler
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Lymedin2010 . . . all serious considerations you mention, of course (& more specifically the vaccine ADDITIVES, chemicals, or disease). In addition:

Regarding soccer and military, head trauma is also to be considered. Even mild hits, bounces, jolts to the head can cause big time damage that may not be evident for years.

And if lyme / TBD not recognized and left to progress, it all just creates . . . (can't think how to finish). . . .
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Lymedin2010
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Here is Dr. David Martz ALS is really Lyme story:

https://www.youtube.com/watch?v=UY9FdULDV6M

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Lymedin2010
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Keebler, what do you think happens during trauma? You have damage to a specific area, where there bacteria (borrelia, or oral spirochetes, or EBV, or Myco) to grow freely in that area.


At that point it can become a point source infection & travel and expand down the nerve or area, producing the end result damage, i.e. the labeled disease (ALS, MS...etc).


Me too Keebler, tired & brain fried but cannot sleep. What are you doing up you proponent & activist of good restful sleep?

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Keebler
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It's 3 hours earlier here than where you are. But I'm pushing midnight waiting for my neighbors' exhaust fan to stop so I can settle down.
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Lymedin2010
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You win [Smile]

Good nite Keebs.

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SacredHeart
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If you can put two feet together and jump up on to another object that way the odds of you having ALS are pretty small, to none. Before I went to a LLMD I thought I had ALS.

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Lyme flare June, July, August of 2013. Diagnosed September 2014 Lyme, Bartonella, Mycoplasma, Mono

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