posted
Thanks Droid that's really helpful. It actually helps my brain a huge amount to have everything in order like that.
Do you think bart was your worst *neurological* infection given that Levaquin was so helpful?
Posts: 929 | From Massachusetts | Registered: Oct 2007
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posted
Wow, thanks Maia that's a really encouraging improvement after 9 years of being sick.
Posts: 929 | From Massachusetts | Registered: Oct 2007
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posted
I was literally dying as a result of lyme. My autonomic nervous system was shutting down - I was told by a neurologist at Jefferson Hospital in Philadelphia that I was suffering from Shy-Drager Syndrome, a serious condition.
IV antibiotics over a long period of time turned me around. Not 100% yet but thankful, far better than being near the the door of death.
Posts: 107 | From new jersey | Registered: Dec 2009
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droid1226
Frequent Contributor (1K+ posts)
Member # 34930
posted
Yes, the levaquin was vital in clearing my head and standing after I hadn't for several months. It was almost like cleaning out my CNS. But that was the only antibiotic I can say without a doubt had a major impact.
posted
Phoiph, I"m curious if you started the mild HBOT *while* the PICC was in or after? Curious if you think HBOT with meds would have been better than HBOT/meds alone, or if you did anything else to supplement the HBOT (i.e. took herbs at same time)? Also, did you have any issues w/ babesia and HBOT? (since some people say HBOT can make babs worse while making others better. . .).
Posts: 929 | From Massachusetts | Registered: Oct 2007
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Phoiph
Frequent Contributor (1K+ posts)
Member # 41238
posted
LymeCFIDSMCS...
Nine months of IV antibiotics further destroyed my system, causing me to become more toxic, with multiple chemical sensitivities, severe neurological issues, etc., and at that point I pulled my picc line, and became homebound for over 5 years, unable to follow through with any further meds, supplements or therapies (except for homeopathy), and was down to a diet of 5 foods.
So...after no treatment (besides homeopathy) for 5 years, at my most ill, I started mHBOT with supplemental oxygen (with a home chamber). I could do no other therapies simultaneously, and in retrospect, I realize that was to my advantage.
I had severe Babesia and Bartonella when I began mHBOT; it was the only thing that worked for me.
quote:Originally posted by LymeCFIDSMCS: Wow, thanks Maia that's a really encouraging improvement after 9 years of being sick.
I knocked myself into remission in 2004 or so using herbals and a naturalpath. I had been diagnosed as CFS a so I was pursuing a viral theory of disease.
Stress brought it out again, to the point where I couldn't work. I am hoping to go back to work soon.
What's leftover for me is nerve pain and some cognitive dysfunction. And unrelenting depression. Hopefully I don't relapse.
My treatment has been fairly aggressive so far. I am only on ceftin and herbals now. I'm scared of a relapse. But I am better than before treatment.
-------------------- Sick since 2000 Bulls eye 2005 Dx Babesia, Lyme 2014 Posts: 247 | From New Hampshire | Registered: Aug 2014
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