posted
I'm not sure this would be useful to you. I mean, what's he going to do about it? We know Lyme likes the joints.
I take turmeric capsules to keep my joint inflammation down, and I also noticed that lymph drainage massage done also around the knee area made it feel better, for weeks, even.
Posts: 13117 | From San Francisco | Registered: May 2006
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posted
He would be looking to not just drain the fluid , but also try to get a positive lab result for Lyme via the fluid. What type of place do u go for lymph drainage massage?
Posts: 82 | From New York | Registered: Aug 2012
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Keebler
Honored Contributor (25K+ posts)
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posted
- I would not, not, not do this.
I cannot imagine how you could possible hold still while the needle is in a joint. I could not. And that can be very dangerous, actually.
There is no way to manage the pain reflexes. I've had needles in my joints with steroids (which was a major mistake before I knew steroids can make lyme worse).
Two adults had to hold down, feet, hands, whatever, nearly sit on my as the pain was so strong. And that was damaging to my entire adrenal system.
I would not, not, not do this. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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Keebler
Honored Contributor (25K+ posts)
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posted
- What lab would be used?
Is he LL ?
Be aware that most rheumatologists would not send the sample to a lab that actually knows how to test for lyme.
Most rheumatologists are not lyme literate but rather, they want to have you think they are open minded about it but really many want to "prove" you don't have it by using inferior labs, bad tests that cause more pain and cost more, etc.
There are dozens of ways the test can fail due to error, neglect, ignorance of those doing it.
Wonder how much he would make by doing this invasive & painful procedure?
For the best assessment / diagnostics, I hope you can see a real ILADS educated lyme literate doctor. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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Keebler
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posted
- Your area lyme support groups would know the best licensed massage therapists (LMT), acupuncturists (L.Ac.) or N.D. (naturopathic doctor) would be
LL and know about lymphatic drainage methods & support herbs. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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posted
Okay, I mean, he would be aspirating not into the joint itself, but rather the pocket of fluid around the joint. He would not use any Lyme specific lab though- just a regular one.
I have been to great, reputable and extreme well-known LLMD's and unfortunetly for me, I've received nothing but negative lab results for years- so frustrating!! I just wanted SOMETHING to confirm its lyme/co-infection!!!!! Even though my symptoms r so typical of Lyme I feel like I really want that cinfiation. Heck, I even contemplated seeing a renowned psychic for confirmation- I think this Lyme is getting to head:(
Posts: 82 | From New York | Registered: Aug 2012
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Keebler
Honored Contributor (25K+ posts)
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posted
- You'll have better odds buying a lottery ticket than sending any sample to "just a regular lab"
Your desire for a black & white piece of paper as "proof" is understood. But your body is likely providing the best information for the clinical diagnosis that LLMDs assessed.
A needle anywhere near the joint can be very painful. What if you flinch?
Even if the test is positive, will this rheumatologist treat assertively & comprehensively for as long as required? Does he have the education, skill, freedom of his boss or insurance contracts?
Find out what the area lyme support groups' collective experience is with this doctor.
Reasons for False Negative (Seronegative) Test Results in Lyme Disease -
Posts: 48021 | From Tree House | Registered: Jul 2007
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Keebler
Honored Contributor (25K+ posts)
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posted
- So, if you want the synovial fluid assessed, you might as in your area lyme support groups WHICH LAB would be best.
Your former LLMDs would know the best labs, too.
Be sure the sample goes there, and is done on the right day (not too late in the week), time enough for prep & pick up . . . with all the drawing and preparation in the lab correct and shipped in the right manner to a lab that is properly capable of doing the best they can. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- A better test, I think would be with ADVANCED LABS:
posted
I would not be opposed to looking to see what might be found, but just remember Lyme is as difficult to find in joints as it is anywhere else. I would encourage him to look for any and all infections. For example, infections you typically find in mouth, or staph, any fungal infections.
You may need to research and take him specifics. I have RA that has almost been put in remission with lymedisease disease treatment, but we are finding all kinds of infections in my body. Not just Lyme.
Posts: 69 | From Birmingham, AL 35242 | Registered: Sep 2008
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posted
I'm aware of stats about finding Lyme in the blood, but I don't know stats on finding it in synovial joint fluid. Anyone know the odds?
Posts: 13117 | From San Francisco | Registered: May 2006
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