LymeNet Flash: Very High TGF beta 1-- Help!

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»	LymeNet Flash » Questions and Discussion » Medical Questions » Very High TGF beta 1-- Help!

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Author

Topic: Very High TGF beta 1-- Help!

Stubman1
Member
Member # 41135

posted

My TGF beta 1 test came back at 15,000 !!! Is this more likely lyme or mold or something else?

In Dec my c4a test was 8,000 but using Welchol it dropped fairly quickly to 2600.. My c3a was normal both times..

I am waiting to see a LLMD but not sure what to do in the meantime as my current doctor has no clue.. Any ideas?

I am currently taking Omnicef, Zith and will probably add tindo.. I orginially tested postive for lyme with Igenex but not positive for any co-infections..

Posts: 30 | From Virginia | Registered: Jul 2013 | IP: Logged |

RC1
LymeNet Contributor
Member # 31923

posted

From what I gather, it's probably mold. Dr. S (the mold doc) says anything over 5000 is alarming.

Posts: 845 | From Northeast | Registered: May 2011 | IP: Logged |

beths
Frequent Contributor (1K+ posts)
Member # 18864

posted

Mine was 18,000 dropped to 11,000 now back up. I see a practioner who works with Dr S- she wasn't alarmed

Posts: 1276 | From maryland | Registered: Jan 2009 | IP: Logged |

Stubman1
Member
Member # 41135

posted

I have read that Losartan ( blood pressure med used off label) can reduce TGF beta 1.. Anyone tired this?

Posts: 30 | From Virginia | Registered: Jul 2013 | IP: Logged |

birdie67
LymeNet Contributor
Member # 35994

posted

Yes, I've been taking Losartan for about 6 months. I haven't rechecked my TGF beta yet though.

No side effects from the Losartan.

Posts: 486 | From USA | Registered: Jan 2012 | IP: Logged |

Stubman1
Member
Member # 41135

posted

Hey Birdie67-
How much Losartan are you taking? 25mg twice daily? Have you noticed any positive results since being on it?

Posts: 30 | From Virginia | Registered: Jul 2013 | IP: Logged |

sickofsick
LymeNet Contributor
Member # 29258

posted

My daughter's was 21,000. Doctor prescribed VIP (Vasoactive Intestinal Peptide) nasal spray. Her level decreased to 13,000 at one year mark. Isn't currently using it.

You can find out more about it in Shoemaker's Surviving Mold book or just google. I came across this just now. http://lymebook.com/blog/research-news/ccsvi-vip-nasal-spray/

Posts: 312 | From Utah | Registered: Nov 2010 | IP: Logged |

lindy
Junior Member
Member # 45398

posted

Can someone tell me what the test code is for this testing you are referring to: TGF Beta-1 - Transforming Growth Factor Beta-1
I use labcorps. I tried to get my doctor to do the test but they said they couldn't find it in the system. thanks so much! lindy

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There are two ways to live: you can live as if nothing is a miracle; you can live as if everything is a miracle.

Albert Einstein

Posts: 1 | From nj | Registered: Feb 2015 | IP: Logged |

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