Tincup
Honored Contributor (10K+ posts)
Member # 5829
posted
When you are right, you are right. When you are wrong, you are dangerous!
Been writing down some of the "wrong" statements made (and/or published) by the IDiots about Lyme disease over the years. There are so many I am sure I've missed some, but at least got a start at a rebuttal.
Then FINALLY had some time on/off to add some documentation to the list of responses directed at the stupid things they've said (and continue to say in many cases).
How can they be so wrong and still be funded with our tax dollars? Uggggggggg....
Neurological lyme disease is extremely rare. Heard this one at a tickborne disease conference I attended last year.
Also - might want to add something regarding the number of patients who get a lyme rash.
Bea Seibert
Posts: 7306 | From Martinsville,VA,USA | Registered: Oct 2004
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Tincup
Honored Contributor (10K+ posts)
Member # 5829
posted
GOOD Bea! Yes, yes!!
I'll hold off adding the two you shared till I hopefully get more ideas coming in and do them all at once. Wouldn't hurt if people wanted to share a link to prove the point. If not, I'll find them!
Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- And, I can't make this formal and not out to prove a point but just sharing the exaspirations (sp?) I've encountered in Oregon - but I've heard other states used, too.
"There is no lyme in [our state]."
"We don't have ticks in [our state.]"
"We don't have the KIND of tick that has lyme in [our state].
"Even if you might have had lyme at one time, it pretty much just burns itself out after a while."
"You're just depressed."
"You just need to get a life!" -
Posts: 48021 | From Tree House | Registered: Jul 2007
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Tincup
Honored Contributor (10K+ posts)
Member # 5829
posted
Good ones Keebler! I do have your first one listed, but the others are right-on and should be added. Thanks!!!
HA! Just thought of this.. maybe I should just put pics of the IDSA guideline authors there! That would cover a lot of the problems!
Similar to #12 - there's not much Lyme in ... (that's what they say here)
Yes to posting their pictures and list the conflicts of interest for each one.
#14 - if the tick saliva has spirochetes in it, transmission can occur immediately
#15 - I thought they are even recommending only 1 pill of doxy?!
What are they saying about the safety of organ transplants - anything?
"It's all in your head." Meaning you're making the whole thing up.
Parents have Munchausen's - they just want attention.
Fibromyalgia/chronic fatigue/autism/MS/ALS/Alzheimer's/Parkinson's and more is not Lyme. Reality - some or all of the above conditions may be LYme.
Do they say anything about if people pass whatever tests, we're fine?
I suggest changing "original inaccurate conclusions" to cover-up, period, since the original Steere papers and others he co-wrote with in the 1980s and early 1990s said this was a relapsing illness. In other words, they knew from the beginning.
Thanks for compiling this list -
Posts: 13116 | From San Francisco | Registered: May 2006
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posted
How about me in 2007 at The University Of Michigan hospital surrounded by about 8 Neurologist's quote from one:
"We know there is something wrong with you we just can't help you".
-------------------- HERX is a Four Letter Word! Posts: 716 | From If you're going through hell, keep going......Winston Churchill | Registered: Apr 2007
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Tincup
Honored Contributor (10K+ posts)
Member # 5829
posted
Oh bigstan., that's so terrible! And yes, it should be noted too! Actually, you have me thinking about a quotable quotes page or something like that. I think there is a partial one from many years back. Maybe I can find time- ho ho ho- to find it?
Robin502759375- You are doing some thinking, aren't you? Good thing and it's about time! hehehehehehe
And you made me have to think and double check. Numbers, along with initials aren't my "thing".
It is actually one "dose" of doxy for #15 that you mentioned above. I had to check to see if that was one 200 mg. pill or 2 of the 100 mg pills. Here is what they state officially....
"For prevention of Lyme disease after a recognized tick bite, routine use of antimicrobial prophylaxis or serologic testing is not recommended (E-III).
A single dose of doxycycline may be offered to adult patients (200 mg dose) and to children ⩾8 years of age (4 mg/kg up to a maximum dose of 200 mg) (B-I) when all of the following circumstances exist:
(a) the attached tick can be reliably identified as an adult or nymphal I. scapularis tick that is estimated to have been attached for ⩾36 h on the basis of the degree of engorgement of the tick with blood or of certainty about the time of exposure to the tick;
(b) prophylaxis can be started within 72 h of the time that the tick was removed;
(c) ecologic information indicates that the local rate of infection of these ticks with B. burgdorferi is ⩾20%; and
Big problem too, is they give them the doxy dose in the office on an EMPTY stomach! I know some throw up the doxy because it is awful hard on the gut, I just wish they all did!
Thanks for the extra lines to add to the mix. Good ones!!!!
If anyone wants to find usable pics of IDSA guideline authors, I'll be happy to use them.
posted
We Have been and will continue to be wronged I imagine for a lot longer.
When I was diagnosed with ringworm approx.4- 5 yrs ago at a clinic (big bullseye rash, no tick)
I was told NO SUCH THING AS LYME DISEASE IN ONTARIO.
About 2 yrs ago I went out of province and when I came back to ONTARIO to see same clinic to get some pain killers...
I was refused to see a dr ,.... they said we don't give out painkillers here(which they had prescribed previously to me)... The sad part is since I was at the clinic the last time... things had changed. There was now a big brand new flatscreen tv on the wall cautioning everyone in ONTARIO about the DANGERS of LYME DISEASE.
NO WONDER THEY DIDN"T WANT TO SEE ME
Timing is everything I guess
Posts: 66 | From Toronto Ontario | Registered: Apr 2014
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Brussels
Frequent Contributor (5K+ posts)
Member # 13480
posted
" I am the best tick-born disease specialist of Switzerland. You can't have babesiosis if you have your gall-bladder! Buy my book, you will understand why."
From dr. Satz, Zurich. The tick-born disease Swiss specialist.
I was just a beginner in lyme that time. I did buy his book, and found out he is right, guys!
I didn't have babesia or lyme!!!! It was all in my head!
I finally found the answers I was looking for. I was in fact cured after 2 weeks doxy, all my remaining symptoms were imaginary!
How easy my life became after I met the illuminated doctor Satz. He convinced me, with his brilliant book, that I was not even sick!
That it is IMPOSSIBLE to have babesiosis with a functioning gall-bladder! So logic, how could I have missed it?!
The best is that I didn't need any treatment to feel great after that book! I really got immediately cured, when I realized, I was imagining it all!!
The 3,000 dollars I spent with you, really saved my life!!!
Specially, that anti-catarrh medicine you prescribed me for my imaginary air-hunger!! Oh, how it really helped me to breathe again!
That anti-cough medicine even cured my night sweats for good!!! Wonderful! The funny thing was that I didn't have any cough when you prescribed me that...
Anyway, after the book and that anti-cough medicine, I didn't even need to return to you again! I found my nirvana.
--------------------------- You people with imaginary babesiosis MUST READ dr. Satz book! You will understand that what you have, is in fact, a REAL cold!
A REAL cold is treated with a REAL anti-cough pill. That is why you cannot breathe well. And a REAL cold causes you fever and sweats!
So really, if you suffer from imaginary babesiosis, you will only need two remedies: an anti-cough tablet + the illuminated book to convince you of your REAL COLD!
posted
I get it - taking 1 doxy pill on an empty stomach >>> throw it up >>> no doxy taken, to cure Lyme disease! Brilliant.
What Brussels has written - it's like a Moliere play - the Imaginary Invalid - it could be adapted to our situation.
BUt maybe we need a twist: the Imaginary Doctor, who thinks they know something but they don't.
Posts: 13116 | From San Francisco | Registered: May 2006
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The infectious disease neurologist - You can't have lyme disease because you got sick the wrong time of year.
Several I.D. docs - Ignore your positive PCR test result for lyme disease - that test is not valid. Note the 2006 IDSA guidelines still say that PCR tests for lyme are not valid tests.
That lab gives positive test results for everyone - many docs say this about IGeneX Lab Western Blots - Hubby's tests were always negative from that lab as well as all the other labs.
There is no such thing as lyme cysts.
Many patients have been told - your rash is not from lyme disease because it is not a bullseye rash.
Bea Seibert
Posts: 7306 | From Martinsville,VA,USA | Registered: Oct 2004
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Tincup
Honored Contributor (10K+ posts)
Member # 5829
posted
HA! I'm going to have to put you all to work on these great ideas! Give me some documentation (looks) and I'll do what I can.
Brussels
Frequent Contributor (5K+ posts)
Member # 13480
posted
Hey Robin, the only problem is that the money that doctor makes, it is NOT imaginary.
The people he probably let die, are not imaginary. I saw a lady begging to receive treatment once there, in tears. I bet he didn't treat her either.
Maybe she also got THAT anti-cough medicine for her arthritis?
The whole society is supporting doctors like him, with compulsory health insurance premiums.
THAT MONEY is very real, as health insurance is expensive and getting more and more expensive.
Of course, sick people go from doc to doc, as they find no solution, over and over. Insurance premiums just rise then!
I'm doing a Tesla device thread: no wonder a 25 dollar device was considered quack medicine. I start to believe it can do wonders, and we don't even need a doctor to treat ourselves.
People die, no more money left to treat themselves, and society pays to support quack doctors like that?!
And poor Nikola Tesla, that guy, a quack??
Anyway, I don't want to steal this thread.
I hope other people join in Tincup with their FANTASTIC experiences with their ILLUMINATED DOCTORS!! There are TONS of them!!
Brussels
Frequent Contributor (5K+ posts)
Member # 13480
posted
I added an end to the story!
------- You people with imaginary babesiosis MUST READ dr. Satz book!
You will understand that what you have, is in fact, a REAL cold!
A REAL cold is treated with a REAL anti-cough pill.
That is why you cannot breathe well.
And a REAL cold causes you REAL fever and sweats!
So really, if you suffer from IMAGINARY babesiosis, you will only need two remedies:
1- a REAL anti-cough tablet +
2- the illuminated book of dr. Satz to convince you of your REAL COLD!
Posts: 6199 | From Brussels | Registered: Oct 2007
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TF
Frequent Contributor (5K+ posts)
Member # 14183
posted
When the patient asks for a lyme test, the doctor says,
"Even if you DID have lyme disease, it would have been cured by all of the antibiotics you have taken in the past (for various illnesses the patient had over the years)."
Posts: 9931 | From Maryland | Registered: Dec 2007
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