posted
I have had Lyme for many, many years with numerous treatments & no cure. No long term treatments that I could get from anyone on my Dr`s lists.
Have this burning under my skin as on fire. If I bend anywhere on body as if match was lit there.
Very painful & irritating, hard to do much of anything. None of current meds such as Neurontin,pain meds. muscle relax, etc. working. This burning is getting intense. I have FM,CFIDS with Lyme could this be MFPS??
Have been on Lymenet for yrs. just not of late might have missed something. Hugs to All in Need of.... Kerryblue Posts: 746 | From Clearwater/fl/Pinellas | Registered: Jun 2003
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You not getting better might be micro toxins like a mold problem where you live. There is something secondary that is stopping you from getting better.
Posts: 58 | From GA | Registered: Dec 2014
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posted
Thanks, feel this must be Lyme linked can`t have this many separate diseases......hmmmmm Hugs to all in Need!!!!!!
Posts: 746 | From Clearwater/fl/Pinellas | Registered: Jun 2003
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Also check into mast cell activation disorder. Keep us posted on what you find out.
Lyme can cause many things!
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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LisaK
Frequent Contributor (1K+ posts)
Member # 41384
posted
I get this is very small areas and it passes quickly- like only lasting maybe several miinutes.
where do you got the pains? do they last long?
I am not sure what causes it.
-------------------- Be thankful in all things- even difficult times and sickness and trials - because there is something GOOD to be seen Posts: 3558 | From Eastern USA | Registered: Jul 2013
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posted
HI, Thanks for answers. It last`s all the time under all areas of my body. I checked all the meds for side effects none have this for a side effect. Began about 3 weeks ago, though had happen, if I remember right previously, not all over. Very annoying because it burns under most of my skin. My MPS, previously was diff .Pain but do not remember burn. I am not on treatment just cover up meds. for the Lyme to get by on. Just to live. Yikes, always something isn`t it??? Anyone else have this let me know??? Hugsssss, to all in need.
Posts: 746 | From Clearwater/fl/Pinellas | Registered: Jun 2003
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LisaK
Frequent Contributor (1K+ posts)
Member # 41384
posted
I get it mostly on my fingertips.
__
-------------------- Be thankful in all things- even difficult times and sickness and trials - because there is something GOOD to be seen Posts: 3558 | From Eastern USA | Registered: Jul 2013
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posted
I have had burning skin for years---every time I get a LD flare. Doc says its peripheral neuropathy caused by LD.
Posts: 213 | From ohio | Registered: Jul 2006
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Tincup
Honored Contributor (10K+ posts)
Member # 5829
posted
Hey! Is that really YOU Kerryblue? THE Kerryblue? WOW! You've been missed! So good to see you!!!
HA! I have no clue what you asked about- I was so shocked to see your name again I forgot to read your post. Back in a minute.
Tincup
Honored Contributor (10K+ posts)
Member # 5829
posted
I have no clue about you all and the use of so many initials. I can not do initials. You maka me feel stupid you goons!
What is MFPS? And RSD? And MPS?
Kerryblue- you said it started about 3 weeks ago. Did it all hit at once or start in one spot and spread? And the neurotin didn't help?
Did you start any new meds or protocols within the past two months? Even something as simple as adding Vitamin D can cause something like this, so do think back about what has changed and lettuce no.
In the meantime, for the pain, do you have any lavender oil? If so and you can mix it with some base oil, like olive, jojoba or something more gentle. Then you might try rubbing that mixture over a section of the painful area. Try it if you please, but NOT near eyes or "sensitive" areas, of course.
If it is a nerve based pain this may help give you some relief- a few hours at a time, then you must repeat. There is a better oil- its called Tei-Fu oil - and it is 10 times as good, at least, as the lavender oil for this kind of pain, and its the only thing I've found to reduce this kind of pain. You can get it online.
The good news is, the pain often goes away on its own for some reason, but not before making life miserable for a good while. And it is, in my opinion, a product of lyme disease.
Anyhow, good to see you and please explain the initials so I can know what you all are saying! Tanks!
posted
Hi, Tincup, good to see you still hanging around. This feels like nerve based, no change in diet or meds I checked them all for this. Dr. told me to up my B vit. And folic acid. So far, no cigars. Also very severe restless leg, I mean big time. He upped my ropinerole which seems to be helping, was driving me nuts with all the other things going on including constant pain especially if over do anything. Take Care, Thanks for info. Hugggsss, to all in Need.
Posts: 746 | From Clearwater/fl/Pinellas | Registered: Jun 2003
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-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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Judie
Frequent Contributor (1K+ posts)
Member # 38323
posted
I'd consider drug reaction, even after discontinuing a drug.
I had the burning sensation from head to toe after I took levaquin. It took a long time to go away.
Posts: 2839 | From California | Registered: Jul 2012
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