Back in January I was on an oral antibiotic for a month. I also had 12 weeks of IV (Zith, ceftriaxone).
I'd say for january and February I felt great, except for the usual fatigue. Cognitively I was improving.
Fast forward to march, nerve pain and arthritis is getting progressively worse. I had weird pains in my head and my back aches. Then, my knee and right elbow has the usual pain. The top of my feet and hands goes periodically numb, and i have that feeling like some creature is gnawing on my nerves in my hips, arms, shoudlers and legs.
I don't know if I am relaspsing and need new antibiotics, or if this is the PTLD syndrome that just needs to wear off. But it feels like it is getting worse and my depression took a nose dive this week and I have been bed bound.
My doc appointment with my LLMD isn't till april. I don't know if I should just suffer, or make a frantic I'm falling in the pit phone call to my doctor.
I am two months post treatment IV, if anyone has experience please let me know! I am definitely on the downward slope of my rollercoaster right now and I am scared! I fell off the exercise bandwagon as well.
Posts: 35 | From Boston | Registered: Jul 2014
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posted
I would definitely put a call in to your doctor to see if he will give you meds until you can see an LLMD.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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tdtid
Frequent Contributor (1K+ posts)
Member # 10276
posted
I too would make a call to the doctor and at least catch him/her up to speed as to what you are going through.
Often times, my doctor would call in something to have me take up til the point of my next appointment.
Or the doctor might want to move your appointment up.
In either case, you don't want to wait until your appointment to let the doctor know what is going on.
-------------------- "To Dream The Impossible Dream" Man of La Mancha Posts: 2638 | From New Hampshire | Registered: Oct 2006
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LisaK
Frequent Contributor (1K+ posts)
Member # 41384
posted
to me it sounds like you didn't really finish your treatment that is neeeded?
did you call your dr?
-------------------- Be thankful in all things- even difficult times and sickness and trials - because there is something GOOD to be seen Posts: 3558 | From Eastern USA | Registered: Jul 2013
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