posted
My daughter is going off antibiotics and on cholestyramine for mold. She tested positive at real labs.
Does anybody have any thoughts or advice?
-------------------- Son, 26, Dx Lyme 4/10, Babs 8/10 Had serious arthritis, all gone. Currently on Valtrex Daughter, 26,bullseye 7/11 arthritis in knees, cured and off all meds. . Self:Lyme, bart, sxs gone, no longer treating. Posts: 496 | From Washington, DC | Registered: Jul 2010
| IP: Logged |
droid1226
Frequent Contributor (1K+ posts)
Member # 34930
posted
ramp up. i took recommended dose and it hammered me so i took half and that was perfect. i'd just see where her baseline is with a small amount and obviously take away from everything else. night time is perfect, especially if she herxes any.
also, make sure the bowels are moving and detox is a priority.
Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- Make sure there are no artificial additives of ANY kind, even "natural flavors" are often MSG. -
Posts: 48021 | From Tree House | Registered: Jul 2007
| IP: Logged |
Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- Many do okay or well with it but it was terrible for me. I think because it depleted my nutrients.
Starting at a very low dose -- and still somehow figure out how to get nutrients so that this does not take them all away from getting to the cells in the body.
Chlorella was so much better for me, and full of excellent nutrients, too. -
Posts: 48021 | From Tree House | Registered: Jul 2007
| IP: Logged |
posted
I hated it myself. It does seem to help those with mold issues.
Good advice from Keeb and droid.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96223 | From Texas | Registered: Feb 2001
| IP: Logged |
TF
Frequent Contributor (5K+ posts)
Member # 14183
posted
Serious constipation can result. Take laxatives along with it from the start. Don't wait until you have a problem because then it can be a really BIG problem.
Read what Burrascano says about it on page 13.
Posts: 9931 | From Maryland | Registered: Dec 2007
| IP: Logged |
-------------------- Son, 26, Dx Lyme 4/10, Babs 8/10 Had serious arthritis, all gone. Currently on Valtrex Daughter, 26,bullseye 7/11 arthritis in knees, cured and off all meds. . Self:Lyme, bart, sxs gone, no longer treating. Posts: 496 | From Washington, DC | Registered: Jul 2010
| IP: Logged |
Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- Chemical laxatives are a rough burden on a body that has trouble with mold as many also have MCS (multiple chemical sensitivities and chemical drugs can make that so very much worse).
I advise to avoid chemical / pharmaceutical laxatives. They also have dependency issues and can interfere with the body's natural muscle ability in that regard.
The right kind of MAGNESIUM can be of help.
The best plant based colon helpers I have found are TRIPHALA - and Seven Forests Rhubarb 17.
Lots of vegetables, and whole dark rices also good. WILD rice is especially good for colon motion. -
Posts: 48021 | From Tree House | Registered: Jul 2007
| IP: Logged |
You are all amazing. When I look back on how lymenet kept me together when my son was in serious treatment.. months of IVs, seeming like the arthritis would never go away...
You all got me through it! And to think it's almost 3 years that he is in a complete remission. Cure? I shouldn't even say it.
Thank you everybody.. Here's hoping for my daughter to get well soon.
-------------------- Son, 26, Dx Lyme 4/10, Babs 8/10 Had serious arthritis, all gone. Currently on Valtrex Daughter, 26,bullseye 7/11 arthritis in knees, cured and off all meds. . Self:Lyme, bart, sxs gone, no longer treating. Posts: 496 | From Washington, DC | Registered: Jul 2010
| IP: Logged |
posted
My Dr had me use sorbitol (ask the pharmacist) but that involved another set of problems.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96223 | From Texas | Registered: Feb 2001
| IP: Logged |
ukcarry
Frequent Contributor (1K+ posts)
Member # 18147
posted
I am on Cholestagel (Welchol) for excess bile problems. This works very similarly to Cholestyramine, which I have also had in the past.
I would like to echo what others have said: I started with half a tablet (ie perhaps a quarter of a sachet) and built up every few days. I find that the right balance of magnesium and C can usually make sure that constipation does not occur (this is vital), but it is sometimes tricky.
I take the Welchol a few hours after dinner, shortly before bed and occasionally need to take more in the day, in which case I make sure to take supplements etc well away from it.
Even if you are meticulous about taking these meds away from other stuff, I do think that over time they deplete nutrients, especially as people with this illness often aren't able to absorb their nutrients well. Because of this, I am trying to change some supplements to liquid or sublingual alternatives. Tablets are the least well absorbed, followed by capsules, according to an old LLMD of mine.
Posts: 1647 | From UK | Registered: Nov 2008
| IP: Logged |
posted
Thank you. Great idea about using sublinguals. I think even some chewables would work. Fortunately her diet is excellent..very nutrient dense.
-------------------- Son, 26, Dx Lyme 4/10, Babs 8/10 Had serious arthritis, all gone. Currently on Valtrex Daughter, 26,bullseye 7/11 arthritis in knees, cured and off all meds. . Self:Lyme, bart, sxs gone, no longer treating. Posts: 496 | From Washington, DC | Registered: Jul 2010
| IP: Logged |
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
UBBFriend: Email this page to someone!
Printer-friendly view of this topic