SentByHim
Frequent Contributor (1K+ posts)
Member # 3998
posted
Meant to edit and replied with a quote...lyme fog.... Sent
[This message has been edited by SentByHim (edited 14 May 2004).]
Posts: 1574 | From Port St Lucie, Florida, USA | Registered: May 2003
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SentByHim
Frequent Contributor (1K+ posts)
Member # 3998
posted
quote:Originally posted by SentByHim: Check this out. Phizer got is BIG trouble for telling lies about what it can do and what it can actually treat. So if you had problems with some "Ducks" because this drugs was innefective in treating your pain or mood swings. It was the drug and the Duck.
Here is the link to the news story. The only thing this drug is approved for is seizures.
posted
three years I was diagnosed with testicular cancer. I was lucky, it had not spread, so I only had to do radiation treatment. Some time after the treatment, my legs hurt like hell. The slightest touch to the skin made me jump, I could not even wear pants. The pain was symmetrical (left/right leg) and moved all around the legs.
The MRI of the spine did not show anything, they did not know what caused it. I was on Neurontin for quite a while and it did get rid of the symptoms.
I was diagnosed with Lyme in January, after a long time doing all kind of tests. Now I am thinking whether these neurological effects could have been Lyme related.
Since I have been on abx for the Lyme, the pain comes back once-in-a-while, but never as bad as it used to be. What can I say, my body is all f'ed up...
Tim
Posts: 147 | From Westborough, MA, USA | Registered: Feb 2004
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I take Neurontin for pain and it does help. I can't say that it takes away all pain but it helps. I have an 80 year old aunt that has been suffering for years with back pain and her doctor recently started her on Neurontin and she is like a new woman!
So what if it was not approved for treatment of pain? Yes, they should not have marketed the drug in such a way. But let's face it, the "studies" are not always accurate and complete are they? If so, we would all be cured and wouldn't be sitting here reading these posts, would we? How many of us have tried some kind of treatment that was not "approved" for the treatment of lyme?
Just like one antibiotic may help you and not me............Neurontin may help me with my pain but not you. So if it helps, I say.........take it!
Posts: 4 | From South Jersey, USA | Registered: Apr 2004
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livinlyme
Frequent Contributor (1K+ posts)
Member # 3773
posted
i know this is an old article and post, but i have to add since I was on it and it did help my symptoms.. of course the drug itself has it's own side effects (like which ones do not) but while i needed the drug it was helpful but it turns out the side affects were the reason I needed to stop taking the drugs brain fog was too much but then again even the Lyme causes that.. so either way.. but the neurontin helped for a time but I found that Lyrica helped more
-------------------- "Hatred paralyzes life; love releases it. Hatred confuses life; love harmonizes it. Hatred darkens life; love illuminates it." Posts: 1389 | From who knows, who cares, but somewhere over the rainbow | Registered: Mar 2003
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lpkayak
Honored Contributor (10K+ posts)
Member # 5230
posted
it helps my nerve pain and helps me sleep also helps restless legs i think but i never take more than 900mg a day never more than 300 if im going to drive . 600 basically puts me to sleep
my neuro said at this level i could not get dependent...that is a concern of mine
i dont like the neuro tho
in hospital i was told you are not allowed to take it as needed . it will hurt you if you dont take it the same amount everyday mine is prescribed as needed and i rarely take it...so i guess i may be in some kind of danger...but i dont know what right now
-------------------- Lyme? Its complicated. Educate yourself. Posts: 13712 | From new england | Registered: Feb 2004
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dbpei
Frequent Contributor (1K+ posts)
Member # 33574
posted
A dentist and oral surgeon have wanted me to take this (or tegratol) for the 'parasthesias' that I have in my face and skull. It is not really pain, but odd bug crawling, squeezing, sizzling sensations with lots of buzzing and tinnitus.
Since I have already gone deaf in one ear and have extensive vestibular damage from this disease, I am afraid of taking these meds. From what I have read, they are very ototoxic (damaging to the ears and vestibular system).
But I would like to follow this thread because I am curious to see what others' experiences have been with them.
Posts: 2386 | From New England | Registered: Aug 2011
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Ellen101
Frequent Contributor (1K+ posts)
Member # 35432
posted
I was prescribed neurontin by my LLNP for nerve pain. I did not take as much as was recommended as there is no way I would be able to function if I had.
A small dose did seem to help. I was also prescribed it many years a go for a possible issue with trigeminal neuralgia. It helped with the nerve pain then as well.
Posts: 1748 | From United States | Registered: Dec 2011
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Years before I was diagnosed with Lyme doctors were tackling all my symptoms individually. One of the things they found was I lost the ability to get natural REM sleep.
They put me on Neurontin and the first night alone was incredible, I hadn't slept that well in over a year.
Posts: 99 | From Cali | Registered: Dec 2011
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