posted
And my 6 year old son tested positive for: IgG 41 IgG 39
-------------------- bonnie Posts: 13 | From New York | Registered: May 2015
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- Either IgM or IgG positive bands can certainly indicate lyme and it does not matter how recently acquired.
Do you both have symptoms? I might assume so otherwise, testing may never have been done. With symptoms, even ONE positive band on either test is important detail.
But, as to whether it's CDC positive or not - that's a very different matter. Here is where the CDC is just so wrong, though. Do NOT rely on information from the CDC about lyme disease diagnosis or treatment.
Diagnosing Lyme Disease (&/or whatever else is going on) -
[ 05-15-2015, 04:32 PM: Message edited by: Keebler ]
Posts: 48021 | From Tree House | Registered: Jul 2007
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- In another current thread of yours, you explain that you see a "functional medicine" doctor who wants to get your body stronger first and you wonder about that.
You ask for input. IMO, that is not the way to go. It usually will not work UNLESS lyme is also addressed at the same time as support methods. Support methods, alone are not enough (though still vital to have on board).
By the way, every one of the "conditions" you mention can be lyme symptoms. Often, when lyme (or other infections along for the ride) are addressed, and support has been good, many diagnoses just lift away - or improve.
You say you have an appointment with a different doctor (new to you) next Wed. The detail here should help, I hope:
WHY you need an ILADS "educated" or "minded" Lyme Literate doctor (whether MD or ND, or both) - starting with assessment / evaluation for lyme, OTHER tick-borne diseases, and other chronic stealth infections - and all that goes along for the ride.
Medical "models" explained here, as to differences in the ISDA & ILADS models of assessment & treatment - and exactly why it is so very important to know the differences. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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posted
Thank you for the responses everyone and the links (keebler). I read the link - the Borrelia burgdorferi sounds like my son. About a year ago he had only one band. Now all of a sudden he has 2 bands.
This functional medicine doctor has not put my son on any type of antibiotic. Just some supplements and the antibiotics will come later he says.
This doctor has also (just recently) told me that intravenous vitamin C every other week can be used in place of the antibiotics. So Im trying to figure out now if I want to go on the antibiotics or not.
The doctor I had found is an LLMD, but I wasnt able to get an appointment with him. I would have had to wait until end of June. But there is another doctor working with him in the newly opened Lyme clinic. I dont see her on the list, but I got an appointment with her for Wednesday.
I am definitely open for input Keebler. Im lost in this area. I know all about my various other conditions and have helped people on other boards. But Im truly lost with this Lyme!
-------------------- bonnie Posts: 13 | From New York | Registered: May 2015
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- "This doctor has also (just recently) told me that intravenous vitamin C every other week can be used in place of the antibiotics." (end quote)
No, it most absolutely cannot. Absolutely cannot.
This person does not understand the science of lyme, not at all. For a fact, someone like that can do you far more damage than good. I know this because I've been there - many times - over many years with otherwise good "functional" doctors who meant well, projected confidence but were
full of crap - just so very wrong. Likely, he knows zero about the common tick borne infections that often travel with lyme and - if not assessed - can set you up for disaster if present and ignored.
I spent my last dimes, sold all I could sell, etc. I did everything else right, every single thing. And I just got sicker and sicker . . . although some of the things I learned about support herbs were very valuable and helpful.
But - there is a HUGE difference in support herbs / nutrients and what can really fully absolutely deal with lyme in all its stages / forms, etc.
When I was first diagnosed in 1997, decades after being very ill and at the end of a full year bed-bound . . . my only option was a naturopathic doctor who SAID he knew all about lyme.
My only option in a state where it's a crime to have lyme and even worse for any MD who wanted to treat - or admit - or learn about it.
There were no ILADS LL NDs at that time.
I wasted FIVE years and thousands of dollars with that idea, "oh, we're getting the body stronger" and "yes, these things are intended to address lyme."
I had Vitamin C IVs, herbs, etc. But that ND was not - not - not at all lyme literate other than in his own ego-centric mind.
The internet was not even around yet, well, at least not Google. And it would be a few more years before I could even get a computer.
Please, do not - do not - stick with someone who is not really lyme literate. If you are interested in natural methods, find an ILADS educated LL ND. But, even then, antibiotics may be required.
you might also explore a rife machine but that's not really an option for children (I think).
I can't say about the other new doctor you will see next week. Talk to those in your LOCAL LYME SUPPORT GROUP . . .and be sure they are also ILADS "minded" group so you are all on the same page. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- When considering herbal / nutritional / adjunct methods, because lyme is so very complex & unique, as are possible coinfections:
if at all possible - because each person & each case is different - it's best to consult with an ILADS-educated LL ND (lyme literate naturopathic doctor) (or similar) who has completed four years of post-graduate medical education in the field of herbal and nutritional medicine -
- and someone who is current with ILADS' research & presentations, past and present, and has completed the ILADS Physician Training Program (see: www.ilads.org )
so they really know all they can about the science of lyme . . . how lyme (& other TBD) act and what we can do about that in various ways.
Many LL NDs incorporate antibiotics (depending upon the licensing laws in their state). Some LLMDs and LL NDs have good working relationships.
When possible, it's great to have both a LLMD and LL ND and even better when they have a long-standing professional relationship.
Herbal Safety considerations & reference books; etc.
Links to many articles and books by holistic-minded LL doctors of various degrees who all have this basic approach in common:
Understanding of the importance of addressing the infection(s) fully head-on with specific measures from all corners of medicine;
knowing which supplements have direct impact, which are only support and which are both.
You can compare and contrast many approaches with links to articles, books, methods . . .
BODY WORK methods / links (and why anyone who works on your spine MUST be LL to the degree they at least know to never suddenly twist neck or spine. Never. Ever. And that we should never be advised to do neck / head / shoulder stands.) -
Posts: 48021 | From Tree House | Registered: Jul 2007
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
RIFE Machine - Reference LINKS -
Posts: 48021 | From Tree House | Registered: Jul 2007
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- For your son, get to know the work from Dr. Jones' Kids.
For you: find TF on this board. She has a wonderful way of explaining how, after years with just a so-so LLMD, she found a really good one who was assertive enough and within a year or so she reached a good solid remission.
Antibiotics are not always the wrong answer. It's how they are used - and sometimes decisive assertive approaches -- with good support - will win out.
There may be so other ways but do not overlook antibiotics. Good medicine is what works. True, whatever path(s) chosen will take time and be very intricate. Still, don't settle for someone who only thinks they know all there is know about lyme. Find someone who really does. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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posted
Lymetoo - It was Quest Labs at north shore LIJ hospital. Ipkayak - im not sure what an indeterminate is? It just says Lyme WB. Also says ANA 1:160. And lists my 5 co infections.
-------------------- bonnie Posts: 13 | From New York | Registered: May 2015
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posted
Keebler - thank you. Youve given me alot to think about. You are a wealth of information!
-------------------- bonnie Posts: 13 | From New York | Registered: May 2015
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TF
Frequent Contributor (5K+ posts)
Member # 14183
posted
bonnie, look at your test results. You have told us which bands were positive.
Were all of the other bands negative? or, were there some that were marked "IND" which means indeterminate (a weak positive)?
Posts: 9931 | From Maryland | Registered: Dec 2007
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lpkayak
Honored Contributor (10K+ posts)
Member # 5230
posted
Oh...i assumef it was igenex. If that lab found those bands pos you both have lyme and need aggressive tx now
-------------------- Lyme? Its complicated. Educate yourself. Posts: 13712 | From new england | Registered: Feb 2004
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posted
Kayak is very correct. If you were to get tested thru Igenex, you'd likely have more bands show up. The test thru Quest is not a very sensitive test and they don't test for all possible bands.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96223 | From Texas | Registered: Feb 2001
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posted
TF - the doctor didnt give me my blood test results. He just wrote down the bands that tested positive on a sheet of paper with all of my other blood work results.
Oh man you guys are scaring me! Should I get another test done through Igenix or just start the ABX?
I dont have alot of money at the moment.
-------------------- bonnie Posts: 13 | From New York | Registered: May 2015
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surprise
Frequent Contributor (1K+ posts)
Member # 34987
posted
I would start treatment. It's hard to get any bands to show on Quest or Labcorp, so if you got some,
it's Lyme, IMO. Happened to us.
-------------------- Lyme positive PCR blood, and positive Bartonella henselae Igenex, 2011. low positive Fry biofilm test, 2012. Update 7/16- After extensive treatments, doing okay! Posts: 2518 | From USA | Registered: Nov 2011
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posted
"Band 39: Unknown what this antigen is, but based on research at the National Institute of Health (NIH), other Borrelia (such as Borrelia recurrentis that causes relapsing fever), do not even have the genetics to code for the 39 kDa antigen, much less produce it. It is the most specific antibody for borreliosis of all."
-
From Dr C's Western Blot Explanation .. link given by Keebler
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96223 | From Texas | Registered: Feb 2001
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