posted
I just read the news on my daily google alert. It sounds like it could be a major breakthrough. Without manganese, Bb will die. And Claritin (loratadine) keeps manganese out.
I have taken this medication only occasionally, have found it to be very effective for Spring pollen allergies. I just looked in my cabinet and there's a full bottle. Just popped one.
-------------------- Sick since at least age 6, now 67. Decades of misdiagnosis. Numerous arthritic, neuro, psych, vision, cardiac symptoms. Been treating for 7 years, incl 8 mos on IV. Bart was missed so now treating that. Posts: 765 | From nw ct | Registered: Sep 2008
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Keebler
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- If there is some way to block it ONLY in Bb, that would be wonderful.
Not all can be put into a news release but two major questions come to mind.
It would have been nice had they explained whether this would also block the manganese that the body requires for good skin, collagen and bone health, and for our body's ability to utilize antioxidants.
Or, how long the treatment may be required.
Possible that if this holds promise, it could be the FIRST line of defense right after a tick bite?
Also hope they would see how this might also affect other tick-borne infections. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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posted
Thinking back I take this every spring/summer for allergies. I do remember that I feel a lot better during this time maybe this is why?
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Catgirl
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posted
Paulie, please let us know how you do on it.
-------------------- --Keep an open mind about everything. Also, remember to visit ACTIVISM (we can change things together). Posts: 5418 | From earth | Registered: Mar 2011
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Keebler
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- When spirochetes are threatened (antibiotics, heat, vibration, etc.) they go deeper and into protective cyst form. I wonder if this might also apply here. with a nutritional starvation?
How does the cystic form of lyme receive its nourishment? Does it have "respiration" as well? Or might it "hibernate" so to speak?
Whatever, though, it would be assumed that all forms of Bb would be addressed at the same time, I hope.
I'm sure some researchers may have discussed and I'm in not shape to go searching. Just some questions that pop up. I'm sure the official study report has more detail. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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posted
Keep this thread alive. When I go back to my LLMD I'm going to ask him to write me a scrip for this so I can use it daily.
Keebler I would like to know the effects on our body as well for sure. But I bet I can out survive the lyme =)
-------------------- Lyme flare June, July, August of 2013. Diagnosed September 2014 Lyme, Bartonella, Mycoplasma, Mono Posts: 595 | From Texas Crossroads | Registered: Oct 2014
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gigimac
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posted
I find this very interesting. It would be great if this worked or even just helped.
Sacred heart, claritin is over the counter unless you are thinking of a different kind or something.
Posts: 1534 | From Greensboro NC | Registered: Aug 2011
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gigimac
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posted
think i might go pop one right now, see what happens. they don't usually help allergies but we'll see..
Posts: 1534 | From Greensboro NC | Registered: Aug 2011
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quote:Originally posted by Keebler: - If there is some way to block it ONLY in Bb, that would be wonderful.
It would have been nice had they explained whether this would also block the manganese that the body requires for good skin, collagen and bone health, and for our body's ability to utilize antioxidants. -
According to the article, it would not affect the body's ability to utilize manganese, an essential nutrient. Claritin only inhibits BmtA, the metal transporter for the borrelia bacteria, which it uses to snag manganese.
I can see Claritin possibly working best either without antibiotics, or in combo with cyst-busters. Or maybe with substances known to cause borrelia to mobilize and come out of dormancy.
The question becomes how metabolically active the cyst-form is. Does metabolism shut down, or does it continue at a very low level?
-------------------- Sick since at least age 6, now 67. Decades of misdiagnosis. Numerous arthritic, neuro, psych, vision, cardiac symptoms. Been treating for 7 years, incl 8 mos on IV. Bart was missed so now treating that. Posts: 765 | From nw ct | Registered: Sep 2008
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-------------------- Sick since at least age 6, now 67. Decades of misdiagnosis. Numerous arthritic, neuro, psych, vision, cardiac symptoms. Been treating for 7 years, incl 8 mos on IV. Bart was missed so now treating that. Posts: 765 | From nw ct | Registered: Sep 2008
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posted
This is very surprising news for me, as I've taken Claritin for the past little while for itching - it's an H1 blocker, meaning it's supposed to block histamine. I unfortunately am itching 24/7 now, putting baking soda in water on itchy areas. But Claritin hasn't seemed to do anything for it or for me.
Which makes me wonder if this has to do with different strains. I know someone who gobbles up manganese by the bottlefull! And I couldn't care less.
Posts: 13116 | From San Francisco | Registered: May 2006
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posted
Actually, the better question is which form of Bb was in the test tubes that were treated with the ingredient in Claritin. If there were spirals, or L shaped or cysts, or all 3?
Posts: 299 | From New Hampshire | Registered: Jul 2007
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poppy
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posted
Good questions. This group is pretty smart about evaluating these things.
Just recently I read something about anti-histamines which made me think I shouldn't be using them. Unfortunately my lyme brain did not retain that info.
Posts: 2888 | From USA | Registered: Mar 2004
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Catgirl
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posted
Wow, I met a woman recently who told me she used to live in Germany and overnight she went downhill (described some lyme like symptoms to me, but I said nothing about lyme).
She thought she was allergic to all the beautiful flowers there, so she took claritin and felt better overnight. She's been on it ever since (think she said 10 or 15 years), so I'm not sure if it just suppresses lyme, or maybe additionally she was allergic to the flowers.
I remember a few years ago when I got bit I took some zyrtec and felt like I was back to my old self. I was so happy for about a day. Unfortunately, my throat started to close up so I stopped, but my throat did that with other things back then too. My immune system was completely out of whack from the lyme and co infections.
Also, ten years ago we moved to a house that had deer living in our yard, and I had lyme symptoms but didn't know about lyme back then. I also had allergies shortly after we moved there that seemed to develop overnight too.
I thought I was allergic to the blooming trees so my doc put me on claritin (prescription), but for some reason it seemed to wear off on me, or maybe I was just bad about taking it (can't remember). I tried allergra too, but can't remember (lyme brain).
It's interesting with the connections here. It sounds like it's worth trying. I'm thinking about trying zyrtec again too. I just remember feeling so good on it.
-------------------- --Keep an open mind about everything. Also, remember to visit ACTIVISM (we can change things together). Posts: 5418 | From earth | Registered: Mar 2011
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quote:Originally posted by Keebler: [QB] -How does the cystic form of lyme receive its nourishment? Does it have "respiration" as well? Or might it "hibernate" so to speak?[QB]
Originally posted by Keebler:
From what I read it does not need oxygen. Which is why it hangs out in those hard to reach places.
B. burgdorferi uses glucose and other similar carbohydrates as its main energy source
B. burgdorferi does not contain genes or enzymes for the TCA cycle, oxidative phosphorylation or an electron transport chain. Instead, it produces ATP solely by using substrate-level phosphorylation and achieves reducing power using the pentose phosphate pathway (Fraser).
I would be exited for this as a treatment for the spirochete or the cell wall deficient form, but am wary of it as a treatment for the Cyst, since the Cyst is dormant.
I would assume dormancy means it is not metabolically active, and in this form it can survive antibiotics, starvation, pH changes, temperature variation, etc.
Maybe in combination with a cyst buster?
Allergies meds come with their own issues. I take Zyrtec daily for the vertigo my lyme and babesia give me, but it does make me much more fatigued.
Loratidine is thankfully not included in the recent study of allergy meds that caused increased dementia in elederly patients (meds with anticholinergic effects).
I don't want to take it until we know the dosing that is most beneficial. Otherwise, might be wasting my money, making myself drowsy for no reason, and who knows, maybe reducing its effectiveness longterm in my body?
-------------------- Sick since 2000 Bulls eye 2005 Dx Babesia, Lyme 2014 Posts: 247 | From New Hampshire | Registered: Aug 2014
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quote:Originally posted by poppy: Just recently I read something about anti-histamines which made me think I shouldn't be using them. Unfortunately my lyme brain did not retain that info.
Recently there have been articles about prolonged use of anticholinergic drugs like benadryl (but not Claritin), Paxil (but not Prozac), and many tricyclic antidepressants being associated with increased incidence of dementia. Operative word here is "associated", not caused by.
It could be that early dementia may have insomnia or depression as a presenting symptom, so patients take benadryl to sleep and immipramine for depression and ten years later they have full-blown dementia.
-------------------- Sick since at least age 6, now 67. Decades of misdiagnosis. Numerous arthritic, neuro, psych, vision, cardiac symptoms. Been treating for 7 years, incl 8 mos on IV. Bart was missed so now treating that. Posts: 765 | From nw ct | Registered: Sep 2008
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quote:Originally posted by SacredHeart: I'm thinking of the Claritin D gigimac. I'm wondering if it matters which one?
I just looked up the difference between Claritin and Claritin-D. They both contain loratadine although Claritin has twice as much as Caritin-D (10 mg vs 5 mg). Claritin-D has the addition of a decongestant (pseudoephedrine).
It appears that loratadine is the Bb killer. So regular Claritin or loratadine 10 mg. pills would be the way to go. Everything I read says 10 mg of loratadine is the max dose in a 24 hour period. This also indicates it has a relatively long half-life so daily dosing should increase plasma levels over time.
-------------------- Sick since at least age 6, now 67. Decades of misdiagnosis. Numerous arthritic, neuro, psych, vision, cardiac symptoms. Been treating for 7 years, incl 8 mos on IV. Bart was missed so now treating that. Posts: 765 | From nw ct | Registered: Sep 2008
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quote:Originally posted by Catgirl: Paulie, please let us know how you do on it.
Well, I took one pill last night, and woke up limping with pain in left ankle and right knee!!
How crazy is this disease that feeling worse can mean you're getting better??!!
-------------------- Sick since at least age 6, now 67. Decades of misdiagnosis. Numerous arthritic, neuro, psych, vision, cardiac symptoms. Been treating for 7 years, incl 8 mos on IV. Bart was missed so now treating that. Posts: 765 | From nw ct | Registered: Sep 2008
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posted
Allegra and Zyrtec are different drugs and do not contain loratadine.
-------------------- Sick since at least age 6, now 67. Decades of misdiagnosis. Numerous arthritic, neuro, psych, vision, cardiac symptoms. Been treating for 7 years, incl 8 mos on IV. Bart was missed so now treating that. Posts: 765 | From nw ct | Registered: Sep 2008
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jackie51
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posted
I just bought 30 tabs of Claritin for $24.98 at Harris Teeter. There was a $2 coupon attached that I forgot to give the casher.
Claritin D is behind the counter where I live. One of the ingredients is used by Meth Heads so they check for ID. I think at one point they are supposed to track purchases so they can't go from store to store and buy too much.
I'm going to try it for a few days and see how I feel.
Posts: 1374 | From Crazy Town | Registered: Dec 2007
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jackie51
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posted
They are a nickel a piece on Amazon. Sheesh.
Posts: 1374 | From Crazy Town | Registered: Dec 2007
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posted
Histamine intolerance, Mast Cells that release too much histamine in your body will give one the same symptoms as lyme and company.
One of the triggers for the mast cells to release too much histamine into one's body is bug bites.
The 'cure' for the over histamine in one's body is antihistamines and H2 blockers.
30 days ago I started getting hives again, like what I had two years ago that then landed me in the hospital with viral meningitis. I started to panic, but because of another lymie friend that had been diag. with mast cell activation, he told me to get on the histamine wagon.
Diet and Zyrtec and Zantac and whalaa... my hives are gone AND my GURD is gone for the first time in years!
Am I a believer of antihistamines with lyme/fry bug, etc? Yes.
I think the two are connected. My protozoan dr in AZ has always told me to take an antihistamine when a herx comes on. I will be seeing him next week and asking about ALL this for sure. Was already on my list!
If Claritin helps us, we have to look at histamine levels in our bodies. Just my two cents!
My heart beats too heavy and hard with Claritin D.... one side effect that I don't like with it, thus I'm doing Zyrtec. Seems to be working just as good even though it's not the loratadine.
I think that maybe some of my left over lyme/protozoan symptoms are now really too much histamine in my body. Look up the symptoms, you'll be shocked. It has unlocked a life time of weird things in my life and body that now makes sense.
-------------------- Lyme, Babs, Fry Bug..... Whatever it is, may a treatment be discovered to make us all whole again! Posts: 941 | From AZ-MT | Registered: Oct 2004
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Maya12
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posted
So could you actually herx from taking Claratin?
Posts: 1632 | From Canada | Registered: Feb 2012
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"Desloratadine exhibited potent borreliacidal activity in vitro at and above 78 μg/mL (250 μM). Currently, desloratadine is prescribed at 5–10 mg dose. A 250 μM dose would roughly translate into 400 mg/day. The mean plasma concentration of desloratadine in human blood after 5 mg or even up to 40 mg dose is about 2–5 ng/mL.40 Thus, achieving borreliacidal concentrations of desloratadine in blood are challenging and 250 μM concentration of desloratadine in vivo is physiologically irrelevant."
It looks like you'd need to take 40 10mg pills a day to potentially kill it and it has limited BBB passage. Back to the drawing board... Posts: 37 | From Florida | Registered: Aug 2009
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droid1226
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posted
Doesn't sound completely impossible to get 400mg a day in your body...Early clinical trials of the drug showed no side effects or benefit at 16x recommended dose(for it's intended antihistamine/allergy use) at 160mg..
posted
I would not suggest taking the Claritin D .. and thanks paulie for the info on the dementia. I thought I had read something negative about it but couldn't remember.
Maybe Zyrtec would work like the claritin?? Who knows??
hadlyme... I may also have the mast cell problem and have hives. Thanks for the info on the drugs you took. I've been trying to do without additional drugs as I hear they can be counter-productive.
I have found the most help by avoiding salicylates .. they seem to really cause the most trouble.
Robin .. I'll message you.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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Keebler
Honored Contributor (25K+ posts)
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posted
- Make sure it's not ototoxic before embarking on any adventure. I've not had energy to look and am not intending to use it myself, so have to limit my output.
Neil Bauman's 3rd edition of "OTOTOXIC DRUGS (and etc.)" is important for all households.
the detail may not be on the web but it's always good to first do a search to include all three:
name of Rx, OTC, or herb
Bauman
Ototoxicity
for a different search, include other symptoms of vestibular involvement such as Tinnitus &/or Hyperacusis, etc. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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Keebler
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posted
- Went ahead and did that. Leaving that "formula" above as a pattern for other searches. Found this right away.
Tinnitus is one sign of damage. And it may not stop with just tinnitus but also affect other vestibular functions.
Much more in the book but here is a shorter list:
“Prescription Medications, Over-the-Counter Drugs, Herbs & Chemicals Associated with Tinnitus”
Claritin listed bottom of page 8 & top of page 9 -
Posts: 48021 | From Tree House | Registered: Jul 2007
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Keebler
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posted
- Claritin may decrease dizziness (at first) as it dries out excess fluid in the ears and, in that effect, we might be fooled into thinking that it can't harm the ears. But it's not quite that simple.
If one must take something that is ototoxic in nature, try to limit the total number of such items.
And be certain to include good liver support. It may (or may not help) but it's about the only chance we have to try to decrease the toxicity involvement.
More about all that and how vestibular function affects everything we do from balance, walking, talking, reading, writing, thinking, driving- even sleeping (hard to rest if inner ear is messed up) . . . .
posted
My ears have been ringing constantly anyway. I'm assuming its a part of the herx from my new meds.
So look, if I'm not better in eighteen more months I'll take the forty pills a day, or what ever it is, and report back if I live. =)
I'm not really overly concerned with ODing on anything, or side effects considering how painful this disease is. I can live with my ears ringing the rest of my life if the lyme dies. DIE DIE DIE DIE
-------------------- Lyme flare June, July, August of 2013. Diagnosed September 2014 Lyme, Bartonella, Mycoplasma, Mono Posts: 595 | From Texas Crossroads | Registered: Oct 2014
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Keebler
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posted
- Tinnitus is a often sign that further damage can happen. Tinnitus can also zoom to levels few can image before that actually happens. It's driven some to end their lives, and I completely understand how that can be.
Damage from ototoxicity may start with tinnitus being a sign but it can also involve much more than just tinnitus. Please learn about the dangers to the vestibular system and know what may (or may not) help.
Once the inner ear / vestibular system is damaged, often, there is no going back. And vestibular damage, even without lyme, can be a very miserable existence. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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quote:Originally posted by Lymetoo: I would not suggest taking the Claritin D .. and thanks paulie for the info on the dementia. I thought I had read something negative about it but couldn't remember.
Maybe Zyrtec would work like the claritin?? Who knows??
Ive taken zytrec daily since 2002. I would say, no it doesn't help! It is also less able to cross the blood-brain barrier (hence you are not as drowsy on it). Th benefit is it can last 24 hours, but it never helped my lyme.
-------------------- Sick since 2000 Bulls eye 2005 Dx Babesia, Lyme 2014 Posts: 247 | From New Hampshire | Registered: Aug 2014
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Kudzuslipper
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posted
when I have really back allergies, my dr. has me take claritin in the morning and zyrtec at night.
Posts: 1728 | From USA | Registered: May 2011
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I just looked up the difference between Claritin and Claritin-D. They both contain loratadine although Claritin has twice as much as Caritin-D (10 mg vs 5 mg). Claritin-D has the addition of a decongestant (pseudoephedrine).
It appears that loratadine is the Bb killer. [/QUOTE] - - - That's what I'm saying .. adding the D would not be necessary and could be damaging.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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droid1226
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posted
Adding the D would be deadly at that dose. That much pseudoephedrine?
I'm ramping up..Don't care about ototoxicity. Half the drugs I'm on have that side effect.
Keebler
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Member # 12673
posted
- Ototoxicity is not a side effect. Side effects usually are fleeting and usually only during treatment.
Ototoxicity is about damage that can be permanent to the nerves, tissues in the inner / middle ear region. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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droid1226
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posted
There's not much more ototoxic than NSAIDS like advil and tylenol, plus a bunch of antibiotics.
I'll stop at my ceiling, I'll figure out what it is when I get there.
Just seems to make sense and nothing has done this to a spirochete in a petri dish ever. Or at least in this manner. Done floating around.
-------------------- Lyme flare June, July, August of 2013. Diagnosed September 2014 Lyme, Bartonella, Mycoplasma, Mono Posts: 595 | From Texas Crossroads | Registered: Oct 2014
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droid1226
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posted
Yes, but slowly. I'm going to do it at 2mg a day. I started yesterday with a 10mg pill so today I'll take 12mg and so on. I've never reacted to things like benadryl or allegra so I'm don't have much confidence.
I also have a friend doing it so I'll post any findings good or bad.
Petri dishes are a lot different than a biological being so I don't know. It's worth a shot. Who knows, maybe it clears out my sinuses at least.
posted
This article has been posted/shared pretty much everywhere at this point. I have read multiple posts from people saying that it didn't do anything when they were taking it for something else and had Lyme at the time etc etc. Also read a few posts from people that their LLMD actually tried this out on a few patients and saw no results.
Very possible that it is the same as everything else with Lyme, what works for one will not work for the next person.
My gut says it is not worth trying it, but if it works for anyone i would try it... lol...sigh.
Lyme...........sigh........
Then of course there is the other angle, is Lyme really the thing causing the issues, or is it a combo of everything a person might be infected with?
What about Babesia, Bart, EBV, Myco, Lepto, Echv, etc etc.
Then parasites.............
Then other viruses.......... Varicella, HSV etc etc.
then you have potential detox/methalation pathways blocked and this can be different for each individual.
I highly doubt Claritin is the answer and can address all of the above.........
Basically saying, let's assume Claritin cures Lyme. A person takes it and Lyme is cured. Said person still feels like **** because it didn't cure the other 50 things wrong.
I mean i would try it if i see some positive results, but for now i am going the Cannabis Oil route..........
Also, what if it is just a marketing ploy, BAM!!!!!! 200% increase in sales within a week...........
After all the article did quote the CDC as a source........
Posts: 83 | From East coast | Registered: Jan 2014
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posted
Keep us posted Droid. Praying for positive results.
-------------------- Lyme flare June, July, August of 2013. Diagnosed September 2014 Lyme, Bartonella, Mycoplasma, Mono Posts: 595 | From Texas Crossroads | Registered: Oct 2014
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droid1226
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posted
I look at it different. I've accepted that there are dozens of factors on why I'm sick.
This website is called Lymenet.com....How many of us are sick because of the spirochete alone? Probably none.
Almost every human has yeast, parasites, viruses, bacteria coursing through their blood. But the body itself can deal with it.
There are thousands, if not millions, of people exposed to bartonella...but their bodies keep it in check.
So Jb...That is awesome that you are using the oil to help the body heal itself.
I've tried so many different things, this is just one. And I surely didn't help the makers of Claritin out. I bought the Wal Mart generic for 2.64 for 20 pills of 10mg. I also think that it could help my sinuses. If it does nothing, I'm out 3 bucks.
If I can get 1% better each time or 2%....It all works for me. I'm not naive enough to think that starving the spirochete alone will cure me. But if it works it'll be one less battle my immune system has to fight.
Sorta like if you are in water up to your nose. If you dip down one inch, you drown. If you go up an inch, you are a normal healthy human that can breathe. It's like we are all in that bubbling, barely breathing stage. Take out one factor at a time and maybe, just maybe, we can be healthy again.
I think your analogy of being in water is accurate.
I also believe that most everyone is infected with a majority of these things, and their immune system just keeps it all at bay.
I am not a believer that all this can be cured, and that we all need to get to remission and let our immune system then take over and just keep it all under control.
EBV would be an example of this. Millions of people get EBV each year, mostly as a child, then it goes dormant and they live their lives. But.....if Lyme or other hell breaks loose then it all becomes an issue.
The entire thing is frustrating to say the least....
I am with you, if you can get 1% here or there and then it all adds up.
Also, i feel everyone's pain that has Lyme and Co. It is impossible for a normal/healthy person to even begin to understand what any of this is like.
As far as the oil goes, just started a week ago, so going to give it months and see what happens.......
Posts: 83 | From East coast | Registered: Jan 2014
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posted
One problem I see is the inability (or limited ability)of loratadine to cross the blood brain (bb) barrier. This is why it is non drowsy. However, it may turn out to be useful in conjunction with antibiotics by attacking biofilm and cyst forms elsewhere in the body. Most microbial cyst or spore forms do maintain some metabolic, albeit very low, activity. Additionally, persisters can often be induced by activators that induce them to take on the vegetative form again. Once vegetative, the cells would be much more amenable to attack from the loratadine. Maybe someday our tax dollars will actually be used at the CDC to actually do research that actually helps people to actually get over the disease.
Posts: 360 | From Massachusetts | Registered: Dec 2012
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posted
Just my wild theory Bob, but I personally believe that since we are the last well armed, freedom loving, private gun owning population in the world, with the exception of the Swiss, that the powers that be want us sick. GMO food, ect.. ect..
For instance, I'm thirty-five years old and I didn't know ANYONE with a peanut allergy. When I was teaching this past decade I saw food allergies increasing EVERY YEAR. Every successive year I was having to be more cautious with what I gave my students.
My five year old sons immune system is totally shot. Why? His mom's immune system is top notch and before I got lyme I was totally healthy.
Anyway, I could go on and on. It doesn't really matter. I'm looking at Red Reishi Mushrooms in order to make tea, and boost all of our immune systems.
-------------------- Lyme flare June, July, August of 2013. Diagnosed September 2014 Lyme, Bartonella, Mycoplasma, Mono Posts: 595 | From Texas Crossroads | Registered: Oct 2014
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posted
One thing to keep in mind is that getting to a concentration in the body to get near 100% kill doesn't mean it couldn't be an effective conjunctive therapy. Lower concentrations over extended periods of time can be effective as well.
Posts: 360 | From Massachusetts | Registered: Dec 2012
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quote:Originally posted by SacredHeart: Just my wild theory Bob, but I personally believe that since we are the last well armed, freedom loving, private gun owning population in the world, with the exception of the Swiss, that the powers that be want us sick. GMO food, ect.. ect.
I am at a loss for what guns have to do with public health or GMOs. The corporate players and politicians accomplish more with keeping us poor and uninformed. Though increased sickness would surely aid their cause (and probably why they are not too concerned with the public access to healthcare).
I support gun ownership, but, it seems the more guns we have, the more excuses the cops have to shoot first ask questions later. Unintended consequence, I suppose. The government can always respond with more violence and firepower.
quote:For instance, I'm thirty-five years old and I didn't know ANYONE with a peanut allergy. When I was teaching this past decade I saw food allergies increasing EVERY YEAR. Every successive year I was having to be more cautious with what I gave my students.
I really wonder, antibiotics were such a godsend, but as someone who was on years of antibiotics for acne, my immune system is toast. Add in all the pesticides and chemicals, its a wonder our immune systems function at all.
-------------------- Sick since 2000 Bulls eye 2005 Dx Babesia, Lyme 2014 Posts: 247 | From New Hampshire | Registered: Aug 2014
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I do appreciate all of the information you have sent me on Bart. I have an excellent LLMD that is keeping tabs on my blood work, including my liver function.
Regarding Bartonella, I'd love to know about this new protocol, but it seems I have to pay money to get it. I have no clue who is selling it, or how they are qualified to tell me about it?
I should hope that if I found a potential, natural cure to something, that I would not try to profit off the information, but share it freely.
Perhaps you already bought the information and began using the protocol yourself, and you have gotten well?
Anyway, please let me know. God Bless.
-------------------- Lyme flare June, July, August of 2013. Diagnosed September 2014 Lyme, Bartonella, Mycoplasma, Mono Posts: 595 | From Texas Crossroads | Registered: Oct 2014
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TNT
Frequent Contributor (1K+ posts)
Member # 42349
posted
How's it going, Droid?
Posts: 1308 | From Eastern USA | Registered: Oct 2013
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'Kete-tracker
Frequent Contributor (1K+ posts)
Member # 17189
posted
I tried the stuff back in '95 in Canada, when it was OTC up there but not down here (quite yet).
It did NOTHING for my hayfever (mostly to grasses), even when I doubled the dose. SO... I went back to Clortrimeton. But I have maybe 20 tablets from past years when I re-tried it (upon recommendation of my PCP) for a particular symptom I was having at the time. Does this stuff... "loratadine", have a shelf life at room temperature? Anyone?
Oh, & here's some interesting stuff- from "Wiki"- on the drug's history:
Schering-Plough developed loratadine as part of a quest for a potential blockbuster drug: a nonsedating antihistamine. However, by the time Schering submitted the drug to the U.S. Food and Drug Administration (FDA) for approval, the agency had already approved a competitor's nonsedating antihistamine, terfenadine (trade name Seldane), and, therefore, put loratadine on a lower priority.[3]
Loratadine was approved by the FDA in 1993.[3] The drug continued to be available only by prescription in the U.S. until it went off patent in 2002.[citation needed] It was then subsequently approved for over-the-counter sales. Once it became an unpatented over-the-counter drug, the price dropped significantly.
(NO surprise there! -M)
Posts: 1233 | From Dover, NH | Registered: Sep 2008
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posted
Keep us informed of any Bay Area Lyme results. The clinical trial is exploratory and hasn't been initiated yet. You would think our government would take a more proactive stance on this kind of research.
Posts: 360 | From Massachusetts | Registered: Dec 2012
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posted
Nah Bob, the government is busy spending money on research to see why many lesbian couples are obese. No joke. Meanwhile we are dying.
-------------------- Lyme flare June, July, August of 2013. Diagnosed September 2014 Lyme, Bartonella, Mycoplasma, Mono Posts: 595 | From Texas Crossroads | Registered: Oct 2014
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WPinVA
Frequent Contributor (1K+ posts)
Member # 33581
posted
I wonder if this could be one of the reasons why some people respond to the first three weeks of abx and some don't. Perhaps the responders are on Claritin (or some other drug that kills lyme that we don't even know about yet!)
Posts: 1737 | From Virginia | Registered: Aug 2011
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posted
The article (from original link) has been removed or moved.
This is fascinating because I also take Loratadine every day and have for years...and I feel awful and have lots of pain, but am not bed ridden and not having troubles with weight loss.
Here's the interesting part - right before I got sick, I stopped taking the Loratadine for a few months. I was feeling at my very best health and had been trying to cut out any chemicals I was taking. So I quit the Loratadine for a few months...then I got really sick and it's been downhill ever since. Hmmmmm...
Posts: 63 | From Columbus, OH | Registered: May 2015
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Also, because I saw it, I gotta say... Please do NOT take more than the maximum recommended dose. It could be dangerous. Always follow the labels directions.
posted
New member with Claritin experience. My son, 23, newly diagnosed with chronic lyme. Our doc had just come back from a conference where Claritin was discussed. The dosage recommended to us was: Claritin non drowsy. 10mg twice daily. Along with this he is using lauricidin and lyme transfer factors. He is also using Hbot and dry sauna 2-3 times/week. This is his 3rd month on Claritin. So far his herxing runs in a timeline similar to the lunar cycle. The first month of Claritin he experienced vomiting, diarrhea and then broke out in hives starting at his feet and traveling upwards. We stopped the Claritin thinking he was having an allergic reaction, took photos to the doc who says this is a good thing. The next month his symptoms were the same but no vomiting. The hives last 3-5 days and then he is good til the next full moon. He goes back for blood work next week.
Posts: 2 | From midwest | Registered: Jul 2015
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posted
Just wanted to post an update and status as a long term Lymie that started Claritin. First of all, after tons of research before I started, Claritin is 110% safe at doses multiple multiple times the 10 mg allergy dose. In one of the published studies required by the FDA, single dose daily doses of 160 mg did absolutely nothing at all to the patients. And by the way, those of you freaking about the dosage, these Claritin tabs are just tiny. Im so used to honkin 500 mg to 1 g antibiotic pills of every type of antibiotic from Zithromax to Amoxi to you name it. Ive been around the block on lyme abs and this claritin is baby stuff.
So on to my update. I am now at 50 mgs Claritin BID (that means twice a day). That means 100 mg per day total. No negative side effectives. Started out with 10 mg once a day, increased to BID, then I went 30 BID, and now Im up to 50 BID. Major massive herxes the first week plus each time I increased doses. This sh- treats lyme. Simple as that. And believe me I know. So from my understanding it cuts off manganese from the Lyme using a metal transporter borrelia has. I also removed all manganese foods from my diet. Im also on a whole host of other antibiotics, so Im not going to say Claritin alone is a magic bullet, but I am doing a controlled test where Claritin is the only thing I added new and so yeah it does work. Good luck yall. Ill keep ya posted, Im on week 2 of 50 BID, will likely go up a bit more
Posts: 173 | From USA | Registered: Aug 2015
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posted
Manganese not Magnesium. Claritin blocks Manganese absorption by Borrelia.
Posts: 173 | From USA | Registered: Aug 2015
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CherylSue
Frequent Contributor (1K+ posts)
Member # 13077
posted
I tried taking a 10mg tablet of regular Claritin today. More tired with brain fog than usual.
At least I tried. Always have been sensitive to meds.
I'll keep taking my nystatin and cefuroxime. They are working slowly, but surely to dig me out from my current relapse. There is no fast fix.
Posts: 1954 | From Illinois | Registered: Aug 2007
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