LisaK
Frequent Contributor (1K+ posts)
Member # 41384
posted
boo hiddley hoo.
I knew it though. sx all coming back. musta been that last tick . sick since then.
I don't know if I want to cry or be mad.
I feel insane and numb. bart reallly gets in to my brain. I already feel schizo.
life is so fun. I guess I will use what worked for me last time- the herb kits from Monastary of herbs. What if they don't work this time?
I hate this
-------------------- Be thankful in all things- even difficult times and sickness and trials - because there is something GOOD to be seen Posts: 3558 | From Eastern USA | Registered: Jul 2013
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- A bump in the road, a blip on the screen . . . try to think of it like that -- there certainly can be a time when you will feel better for real, and it will stick. But it's still very early in the "game" considering the science of lyme & bartonella. It's just not how either one works. Sadly.
It likely never "left" - considering the time line, etc. But any new tick bite certainly can add to the mix, too.
But we can't know all answers and just have to move ahead. After feeling the disappointment, let that be with you in compassion for yourself for little while and then allow it lift, send it on it's way (as if directed by a large chorus of Broadway dancers / singers).
I would do a different - and much more direct - approach and use MOH for support. I used MOH, various sets, years ago and they helped me feel better but did not really do the job I had hoped but I had to stop due to budget considerations.
Also remember that treating lyme & bart, even each, alone, can take many years straight on course (even if rotating, etc.).
I suggest looking into getting an EMEM5 rife machine, if that is at all possible.
Other than biophoton treatment (which by your previous posts seems not financially in reach) . . . maybe HBOT (mild hyperbaric oxygen tank - also can be very costly but do check out ways to rent, etc.) -
Posts: 48021 | From Tree House | Registered: Jul 2007
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
RIFE Machine - Reference LINKS -
Posts: 48021 | From Tree House | Registered: Jul 2007
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LisaK
Frequent Contributor (1K+ posts)
Member # 41384
posted
thanks keebler.
-------------------- Be thankful in all things- even difficult times and sickness and trials - because there is something GOOD to be seen Posts: 3558 | From Eastern USA | Registered: Jul 2013
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- If you could get to an ILADS educated LLMD or LL ND, that would be a good move for consult. If I recall correctly, that's just never been possible for you - but if you could follow a Burranscano protocol (individualized) that is set out to be assertive, that might be one option.
My suggestion for rife is based upon a lot of your past posts (that say the cost of a LLMD / LL ND is just out of the question) so I just didn't talk about that at first - and hands could type only so much at a time.
Do consider all options but the ones that are the most assertive, direct and have worked for others. As good as MOH is with herb quality - and ingredients, I am not confident that they are fully lyme / TBD literate enough to understand the nature / way these infections are so complex.
It may be easier to sell a few things, do a very basic herb rather than full course just to hold down the fort while you save enough to afford an EMEM5 rife. As a basic, I'd suggest Allicin by Hepapro. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- The basics I'd suggest just until you can better determine a fully assertive course of action:
HBOT - Mild Hyperbaric Treatment - a thread started July 2013 by JCarlhelp -
Posts: 48021 | From Tree House | Registered: Jul 2007
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LisaK
Frequent Contributor (1K+ posts)
Member # 41384
posted
ok, I will check this al out.
I have sold everything I own pretty much except my wedding ring. even my grandmothers Stengl bird I loved so much .
MOH really did work for me though. just as good as abx does for those who take that route. I was feeling so great. maybe something didn't leave, but I thought for sure bart did. it has such easy to spot sx for me. they all left 100% for a long time- months and months- and now are back.
lyme sx on the other hand did not fully, but I do have heavy metal issues to address sometime down the road too.
I will check out the oxygen- I have had that on my list long time. and the rife, etc.... thanks again
-------------------- Be thankful in all things- even difficult times and sickness and trials - because there is something GOOD to be seen Posts: 3558 | From Eastern USA | Registered: Jul 2013
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Brussels
Frequent Contributor (5K+ posts)
Member # 13480
posted
Lisa, sorry you gotta go again from 'start'...
Kleeber is right: just don't worry about starting again.
Dr. K. says a new infection can call dormant pathogens to 'wake' up and attack us.
They communicate in groups, as all tick born pathogens have a synergistic action.
They get doomed with right treatment, but when a new problem arises (a new infected bite, an accident, another infection whatsoever, a psychological trauma), they can 'decide' to come back to live again and bother you.
I lived that so many times, I lost count.
It happened after another infected bite (this is the worst scenario, as the new infected bacteria are pretty aggressive). Or for another reason...
Even if the new tick bite didn't have babesia, my old babesia symptoms came back slowly. Not in great power though. My lyme doc could find it in energetic tests.
the good news is that anything that wakes up again is LESS STRONG than the NEWLY infected set of pathogens.
Just keep treating, do not stop, just go step by step, they will eventually go dormant again.
If you have time, try to clean your body from OTHER layers of problems than tick born infections like teeth, gut issues, candida, psycho problems, heavy metals, food allergies, mold ... In the speed you can handle...
One step after another.
Lyme will eventually go dormant and do not come back for longer periods, despite new bites... At least, that is what's happening to daughter and I.
If you stop treating, there is no way out for many of us, very chronic sufferers...
If you keep treating, steadily, step by step, trying new guns, new approaches, cleaning new parts of your body /system, your body will slowly recover.
After 6 years WITHOUT active lyme, only now I feel I could turn the corner of chronic infections. Even without lyme, I still fought other infections (teeth, jaw, gut, skin, joints).
What kept me going was taking LOADS of binders. Despite infections, if I took the right binders, in amazing amounts, I could feel almost well a couple of hours a day.
My head could think clear, my fatigue got better, I even could be in good mood sometimes. If you master your own binders, and are able to choose them, and feel good after taking them, I promise you, that you don't even mind to have all tick born infections, to get bitten again etc.
It's just when you feel crap 24hs /24hs /7 days a week for months on, that you sort of feel like giving up.
My binders really made my life different, and really, the feeling was that I didn't care anymore to have been bitten so many times, to have got so many active infections, etc. As long as I could get a few hours a day of feeling good.
That motivated me to go on, always.
Posts: 6199 | From Brussels | Registered: Oct 2007
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Brussels
Frequent Contributor (5K+ posts)
Member # 13480
posted
Lisa, I tried to send you a PM, but it was full a couple of days ago. I couldn't. Could you clean your PM box?
Posts: 6199 | From Brussels | Registered: Oct 2007
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posted
have you ever thought about bee venom therapy. I'm actually considering it. It's rather cheap too. There's a facebook group called healing lyme with Bee Venom. I know it sounds crazy but i guess i'm desperate!
Posts: 908 | From Albany | Registered: Nov 2008
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LisaK
Frequent Contributor (1K+ posts)
Member # 41384
posted
Brussels, I just emptied a bunch on PMs.
jlcd1 YES! I would try that, but I heard you have to be very aggressive and it is costly.
let me know what you find out.
-------------------- Be thankful in all things- even difficult times and sickness and trials - because there is something GOOD to be seen Posts: 3558 | From Eastern USA | Registered: Jul 2013
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posted
I hope you can get rid of it with the herbs. That would be great!
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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LisaK
Frequent Contributor (1K+ posts)
Member # 41384
posted
yes, it will be a good test to see . once was good and mabe twice will prove that they really do work. I will be trying the herbs since it is cheapest way for now, and only takes a month the finish each, so 2 months I will know if so!
I may take a break between if I get a lot of herxing.
-------------------- Be thankful in all things- even difficult times and sickness and trials - because there is something GOOD to be seen Posts: 3558 | From Eastern USA | Registered: Jul 2013
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posted
join this group if you want to learn more. The bees are maybe 40 a month which is very low compared to a lot of other things. You need a few other things also, like 3000mg of vitamin c a day and a few other things everyday. I'm not sure about everything yet either. Just learning myself. But i know it's not that costly
Posts: 908 | From Albany | Registered: Nov 2008
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LisaK
Frequent Contributor (1K+ posts)
Member # 41384
posted
how do you keep the bees alive?
-------------------- Be thankful in all things- even difficult times and sickness and trials - because there is something GOOD to be seen Posts: 3558 | From Eastern USA | Registered: Jul 2013
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posted
Brussels I'm just curious, which binders worked best for you?
-------------------- Shelly Posts: 73 | From New Jersey | Registered: Apr 2009
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LisaK
Frequent Contributor (1K+ posts)
Member # 41384
posted
I am really having so many sx. it is really scaring me. I think some of the fear is because I have sx now that were probably covered up befroe in my first years of infection because I just had so many sx that they all were just lumped together. does that make sense?
I am not sure if this treatment is herxing me a lot or if I am getting worse by the day, but that is how it feels. so much facial pain and itching and "vibrating" I never had this before, and nasal drainage, and like spider webs all over my face all the time. is that lyme?
-------------------- Be thankful in all things- even difficult times and sickness and trials - because there is something GOOD to be seen Posts: 3558 | From Eastern USA | Registered: Jul 2013
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