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» LymeNet Flash » Questions and Discussion » Medical Questions » took treatment in wrong order- will that matter?

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Author Topic: took treatment in wrong order- will that matter?
LisaK
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so my dr was out and i couldn't ask him. I get herbal treatments. the kits are supposed to be in a certain order. the woman that gives them out gave me them in reveresd and I didn't realize until I finished the lyme treatment. bartonella was suppsed to be first.

I sure hope it still works!!!

ugh

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Be thankful in all things- even difficult times and sickness and trials - because there is something GOOD to be seen

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Keebler
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Lisa,

If you are talking about the MOH formulas (that you've discussed before), they are so much alike that it will likely be just fine.

I have taken many of MOH formulas over the years and they are mostly for support, anyway, not all that strongly targeting so whatever help they are seems to be pretty even across the board.

If you are talking about other kits, I can't say but I'm not familiar with any herbal kits that are that strong of a targeting action. Most seem to have a broader supportive range.
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Posts: 48021 | From Tree House | Registered: Jul 2007  |  IP: Logged | Report this post to a Moderator
LisaK
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hmm. I did have varied responses form each kit though. very different. I am talking about the 9 or so I took the last round.

so you don't think cowden can target either?

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Be thankful in all things- even difficult times and sickness and trials - because there is something GOOD to be seen

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Keebler
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I don't know about Cowden. It's just that so many herbs have a nice broad action. If ahead of time, sure, you'd go for the ones more specific to what you want to address but

after the fact, after already taken, I would just be comfortable with the knowledge that there is nothing you can do and be glad that many herbs have a broader effect in a rather supportive way - especially when in combination.

I am not sure any herb is as a direct or strong a target for a particular infection, though, and certainly not so much that a couple weeks is going to make or break the outcome.

Not Cowden, but just look at allicin, it has broad antimicrobial properties so can cover a lot of bases. I've been amazed at some herbs / formulas that I started for one reason but then they also helped me in other ways.

You could research at PubMed and also at plant medicine sites, each herb in the formula you took so you are more familiar with its properties. It's really interesting to do that. But hard to find some of the search sites, just steer away from the ones that sell the product.

But, what's done is done, if you have questions about what order now for what you do to "catch up", ask the doctor who is guiding you.
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LisaK
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o ok, I see what you are saying. my brain is just dtupid again. ugh

yes, I have to call dr tomorrow. or I figured Ill take the next one that I am supposed to do anyway and then worry about it after that. I know what he will say anyway. he will tell me to finish the treatments and then get retested and see if it shows up.

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Be thankful in all things- even difficult times and sickness and trials - because there is something GOOD to be seen

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Keebler
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Retesting will not work like that, though. These rounds are far too short to "eradicate" anything in the time periods suggested - or to even help one achieve a good remission.

To base any action on whether any infection "shows up" on any repeat test could derail success. This may work for some kinds of infections / some tests but not with the kind of chronic stealth infections that are tick or vector borne.

I would not bother with retesting but go on how you feel, detailing symptoms with an ILADS LL practitioner so treatment can be adjusted.

Generally, treatment may require one to several years - and then go at least a two full months after one is feeling well, good and steady. But, if treatment is not specific or assertive enough, it can be ongoing.

There is no test that can accurately show lyme is gone or even that your body has reached remission. Testing is not that good. Too many variables. Same for babesia and bartonella. Just too many variables on various levels.

Be sure to get to where you are feeling good and steady - able to function nearly normally - and then keep going for at least two months before you transition to just supportive measures.
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LisaK
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he does alternative testing. if I get 'cleared' by him then what? I go to a "LLMD" and then what? go on abx again? I can't. so then what?

yes, my tx is ongoing... and I think it will be that way until I die. I have come to accept that. for many reasons. money, genetics, timing, length of my illness, lack of good dr within close prox, etc..

I WAS a tthe point of feeling good and with the most functionality I have had in years, and then I was bitten. and then my sx came back. I was on the cusp of supportive measures and then bam.

if i go to the closest "best " llmd now will they accept my igenex report from 2 years ago after I tell them I was on abx for at least 6 months and then did alt. tx for over a year?

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Be thankful in all things- even difficult times and sickness and trials - because there is something GOOD to be seen

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Keebler
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Yeah, I know the choices aren't great. It's hard to know much from short notes here and my capacity to write is challenged. It's just that some practitioners (especially if not really LL) "declare" a "cure" and then the patient may not know it's more involved than that. I'm not trying to make you feel bad just wanted to be sure you don't stop too soon.

I wasted years and so much money believing some otherwise good NDs who said they knew all about lyme and new next to nothing but I did not know that then. So I may be overly protective of others when it's not clear how much or how assertive their alternative practitioner knows / is.
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LisaK
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yes, I get you.

this alt dr I see for these tx admits he doesn't know everything, and he does know very little about lyme, but he has a good rate of "cure". I talked to someone from lymenet that actually has been sx free for 5 years after the same tx.

some of course aren't so lucky.

I just wanted to be a lucky one so badly. i just think I am doomed to a lifetime of ill health. unless my genetic program really kicks in . and I still have to tackle the heavy metal issue.

it's exauhsting.

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Be thankful in all things- even difficult times and sickness and trials - because there is something GOOD to be seen

Posts: 3558 | From Eastern USA | Registered: Jul 2013  |  IP: Logged | Report this post to a Moderator
   

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