posted
I am currently waiting for the results of my igenex lab work and praying I get a positive result.. As much as I wouldn't want this disease im basically 100% sure I just need some evidence to give to my family so I can start treatment.
As my symptoms progress, I am starting to become scared for my life... Esp with the heart palpitations. I am getting an echo on Monday so hopefully ill see if my heart is ok.
All that has been founded so far from all the diagnostic tests was the small lesion on my brain that my neurologist said is a mini stroke ... No chance in hell. I didn't have this lesion 4 months ago at my first mri scan and now seeing how much
Sicker I am it only makes sense that the Lyme has now entered my CNS. It would take entirely too long to list all my symptoms and my eyes are in so much pain
But I was just wondering if any of you guys also have a lesion or multiple lesions as a result from Lyme. Thanks guys
Posts: 123 | From New jersey | Registered: Oct 2015
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- " if any of you guys also have a lesion or multiple lesions as a result from Lyme." you asked.
Lesions, or white matter -- very common with lyme.
yes. My MRI showed some small white matter lesions. Often, with proper treatment, the lesions will disappear -- inflammation is at the root of that but also amyloid so antioxidants can help, too - along with treatment for infections.
Mini-stroke is not all that uncommon in anyone, really. My MRI showed that, too. And, yes, there is a way no matter one's age.
Anyone with lyme for more than 12 hours has lyme in their CNS, it's just the way it works. Sorry. This can all get better, really. Good luck. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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posted
My four brain MRIs' have demonstrated multiple foci, areas of hyperintensity. They also revealed cerebral atrophy unusual for my age.
After 6 months of a potent abx combo, the foci and hyperintensities dissipated.
The brain atrophy remains. I suspect if I decline abx long enough, the lesions will reappear, and the atrophy will accelerate. Fortunately, I don't know that for certain.
Incidentally, the NIH Lyme team did some snapshots of my brain with their MRI, and the first time it barely even noted slight atrophy. The second time, it claimed normal results.
I had another discrete NIH agency - the Alzheimer research team - run the MRI, and it uncovered multiple foci and areas of hyperintensities, and brain atrophy unusual for my age. I also hired a respected independent lab, and it found significant atrophy as well.
My understanding is that foci and lesions can be resolved with proper abx regimen sometimes. But they may also return - along with friends - if the s'chetes are not totally eradicated. I'm not sure if enough late stage NB controlled studies have been conducted to know with any sort of confidence.
TF
Frequent Contributor (5K+ posts)
Member # 14183
posted
Yes, when I was first diagnosed with lyme, I had an MRI of the brain which showed two UBOs (unidentified bright objects). These are generally from hypoperfusion (decreased blood fow through the brain).
I was happy to have evidence that there was something wrong with my brain.
I got good treatment and was cured of lyme, babesiosis, and bartonella. I finished my treatment over 10 years ago.
Now, when I get a brain MRI, there are no UBOs. I have the same great brain function now that I had before lyme disease. Good lyme treatment (meaning with a Burrascano type doctor) restored my brain completely, and it didn't take long at all.
AND, I had undiagnosed lyme disease for at least 10 years before a smart doctor thought to test me for lyme. So, even after having the disease all this time, I got my normal brain back through good treatment.
Lyme causes inflammation. In the brain, that stops the proper blood flow. That is why our brains don't work properly when sick with lyme.
Good treatment gets rid of the inflammation and the brain comes back to normal.
Posts: 9931 | From Maryland | Registered: Dec 2007
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