Razzle
Frequent Contributor (1K+ posts)
Member # 30398
posted
Apparently, there is a new hotline for Lyme.
1-800-886-LYME (1-800-886-5963)
Saw this posted on another forum and had to share :)
-------------------- -Razzle Lyme IgM IGeneX Pos. 18+++, 23-25+, 30++, 31+, 34++, 39 IND, 83-93 IND; IgG IGeneX Neg. 30+, 39 IND; Mayo/CDC Pos. IgM 23+, 39+; IgG Mayo/CDC Neg. band 41+; Bart. (clinical dx; Fry Labs neg. for all coinfections), sx >30 yrs. Posts: 4166 | From WA | Registered: Feb 2011
| IP: Logged |
Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- Well,
that would depend on who is running it. I can't quite tell. Do you know who they are; what kind of information they are passing along?
I remember decades ago when I found a lyme hotline and it turned out to be from the IDSA for the lyme foundation. They gave me such wrong information but I had no way of knowing that for years afterward.
I hope this group is accurate and on board.
When I tried to go to their website obtained through a Google search of phone / name:
This website has been reported as unsafe: www.lyme.org
It looked "safe enough" so I just typed in the URL and got:
"This site is temporarily unavailable." and "Domain not valid" in the URL tab.
Glad it did not kidnap me, still, I will now clear my cookies and clear computer of any invisible stuff, just in case. -
Posts: 48021 | From Tree House | Registered: Jul 2007
| IP: Logged |
Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- When I called,
it first connected me to some odd business portal ("blue" was in the name but not an insurance) where I could leave a message for .
Second time: "you have dialed a number that is not available from your calling area"
[I'm on the west coast] -
Posts: 48021 | From Tree House | Registered: Jul 2007
| IP: Logged |
Razzle
Frequent Contributor (1K+ posts)
Member # 30398
posted
Sorry, didn't mean to post something not legit... My intention was good, but I didn't check it out first, like I should have... :(
Mods, feel free to delete this thread.
-------------------- -Razzle Lyme IgM IGeneX Pos. 18+++, 23-25+, 30++, 31+, 34++, 39 IND, 83-93 IND; IgG IGeneX Neg. 30+, 39 IND; Mayo/CDC Pos. IgM 23+, 39+; IgG Mayo/CDC Neg. band 41+; Bart. (clinical dx; Fry Labs neg. for all coinfections), sx >30 yrs. Posts: 4166 | From WA | Registered: Feb 2011
| IP: Logged |
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/