Ellen101
Frequent Contributor (1K+ posts)
Member # 35432
posted
When Gonzo last posted he was feeling pretty awful which was a few weeks ago. Has anyone heard from him since? Gonzo if you see this please let us know how you're doing.
Posts: 1748 | From United States | Registered: Dec 2011
| IP: Logged |
GretaM
Frequent Contributor (1K+ posts)
Member # 40917
posted
Ellen-I'm so glad you posted this.
I've been wondering about Gonzo myself. Haven't heard from him for a while.
Gonzo-where are you, buddy? Are you alright?
Posts: 4358 | From British Columbia, Canada | Registered: Jun 2013
| IP: Logged |
lpkayak
Honored Contributor (10K+ posts)
Member # 5230
posted
He sent me well wishes b4 surg on 9/13
Hope he's ok
-------------------- Lyme? Its complicated. Educate yourself. Posts: 13712 | From new england | Registered: Feb 2004
| IP: Logged |
lpkayak
Honored Contributor (10K+ posts)
Member # 5230
posted
He sent me well wishes b4 surg on 9/13
Hope he's ok
-------------------- Lyme? Its complicated. Educate yourself. Posts: 13712 | From new england | Registered: Feb 2004
| IP: Logged |
posted
Hi all, its been a tough month cant walk much anymore lost about 75lbs cant breath to good and my llnp doesn't Call back. Ive got an appointment with Dr k in nov.if I make it
Posts: 47 | From new england | Registered: Jul 2013
| IP: Logged |
Ellen101
Frequent Contributor (1K+ posts)
Member # 35432
posted
Oh gonzo! I know who you are referring to and its just not right. These LLMDs/LLNPs need to respond to their patients!
I sent you a pm
Posts: 1748 | From United States | Registered: Dec 2011
| IP: Logged |
My name is Heidi, and I'm posting about my dad Dan-- aka GONZO.
My dad started posting on lymenet in 2013, soon after being diagnosed with ALS. My dad was doing research into possible misdiagnosis, which lead him to the similarities between Lyme & ALS. My dad was diagnosed with a strain of Lyme (after being diagnosed with ALS) & with your help was referred to a Lyme literate doctor in our state. He received IV and oral therapies, which unfortunately did not help.
What did help though, was the awesome people whom my dad considered friends on lymenet.
My dad sadly passed away which I saw was posted on the forum on December 1st, 2013 surrounded by his family.
My reason for this post, is to thank all of those who took the time to chat with my dad, give him words of encouragement, share jokes, and give advice. I have really been thinking a lot about my dad the past few days, I try to block out most of his sickness from my memory, but I couldn't get the Lyme forum out of my head recently.
So from the bottom of my family and my heart-- THANK YOU, lymenet for helping my dad.
RIP Gonzo 12/1/13 ❤❤
Posts: 2 | From new England | Registered: Dec 2015
| IP: Logged |
poppy
Frequent Contributor (1K+ posts)
Member # 5355
posted
We are so sorry. Sometimes when lyme looks like ALS, there is a point at which the treatment is too late, and that may have been his situation.
Lymenet has helped a lot of us, and we are glad it made his life somewhat more bearable to have been on the forum.
Posts: 2888 | From USA | Registered: Mar 2004
| IP: Logged |
dbpei
Frequent Contributor (1K+ posts)
Member # 33574
posted
I am so sorry for your loss Heidi. It was so kind of you to write. There was recently another death of someone stricken with Lyme, but misdiagnosed with ALS in RI. His family fought hard for his return to health once they learned he had Lyme disease. But is was too late.
There is a wonderful person I know, who lost her mother the same way. She is an amazing person and started a very successful Lyme support group in her area. If you would like to connect with her, please PM me.
My your dad RIP. He is missed by many here. He was a good soul.
Posts: 2386 | From New England | Registered: Aug 2011
| IP: Logged |
bluelyme
Frequent Contributor (1K+ posts)
Member # 47170
posted
Condolences. ..
-------------------- Blue Posts: 1539 | From southwest | Registered: Dec 2015
| IP: Logged |
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
UBBFriend: Email this page to someone!
Printer-friendly view of this topic