posted
I took what I consider to be my first step down the road to lyme diagnosis and took a CD57 test. The results came back at 23, which I amtold is very low. I need advise on what to do next and what I can expect. I am still a bit skeptical why my regular Dr missed the diagnosis.
It should be mentioned that 5 years ago I was diagnosed with MS, so if it is a treatable infection, I am all in!
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-------------------- CT Posts: 2 | From Matteson, Illinois | Registered: Dec 2015
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bluelyme
Frequent Contributor (1K+ posts)
Member # 47170
posted
I gor mri said ms like lesions low cd57 as well. It is lyme but also have cpn...look at www.cpnhelp.org. ..protocol using abx is similar...buhner has herbal some where out there ..i am doin bvt but need mor aggro methods..
do not give up..get igenix test ..do live blood. Find llmd if its late stage you may not build antibodies to it...try ordering minocycline and tinidazole...or look at wheldon protocol...
how long have you been ill ? What are your symptoms. ..have you done genitic testing or viruses? It alot welcome and god speed
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-------------------- Blue Posts: 1539 | From southwest | Registered: Dec 2015
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WPinVA
Frequent Contributor (1K+ posts)
Member # 33581
posted
Yep, that's very low, and that number is common with Lyme disease. As to what to do next, please go to "seeking" and/or contact your local lyme disease support group to find a LLMD (Lyme literate MD).
Regular doctors miss Lyme all the time. Happened to most of us too.
Posts: 1737 | From Virginia | Registered: Aug 2011
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posted
Seconding what WPinVA is saying - a low CD57 count is uniquely corroborative of Lyme disease. Lyme disease is misdiagnosed most of the time. You will need to see a Lyme-treating doctor, who knows how to recognize and treat Lyme and co-infections.
Conversely, one can have a higher CD57 count and still have Lyme. Mine was 146, the last time I checked. I spoke with the originator of the test, who confirmed low means Lyme and high doesn't rule out Lyme, just as a higher CD4 count could still mean someone has AIDS.
Posts: 13116 | From San Francisco | Registered: May 2006
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WPinVA
Frequent Contributor (1K+ posts)
Member # 33581
posted
I have been wondering what mine is lately...but I'm not sure it's worth testing for curiosity. When I was first tested new to Lyme, it was 14!
Lyme is no picnic, but as you said, it may actually be good news to find that you have something treatable. And it's always good to know what you are dealing with.
Posts: 1737 | From Virginia | Registered: Aug 2011
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