sutherngrl
Frequent Contributor (1K+ posts)
Member # 16270
posted
Is it possible to relapse after 3 and 1/2 years off antibiotics? If it is a relapse it's coming on slowly. Like over the last several months. I have felt like I relapsed in the past but then I would feel better.
I really don't think I am willing to do antibiotics again. Time will tell. I honestly think that most people never are 100% after chronic Lyme. Although I did feel way better for a while after treatment.
Right now I'm doing some simple detoxing. Don't really know what to do next. Just trying to wrap my mind around it.
The symptoms I have now are fatigue, flu like achyness, a few jerks here and there, and sleepy( insomnia last time). None as bad as last time, but seem to be gradually progressing.
droid1226
Frequent Contributor (1K+ posts)
Member # 34930
posted
Burrascano said if you're symptom free for a couple yrs, you're most likely out of the woods but there's plenty of people here who are back because they relapsed after a long time.
I became ill in high school for a yr & took antibiotics, then got healthy, then out of the blue I got a flu in my early 30s & it triggered lyme(or whatever this is) again. Now I've been sick for a few yrs.
You're doing the right thing by detoxing & trying to nip it in the bud early. I don't blame you for not wanting to take antibiotics now. They don't have a great success rate anymore & they are only a part of treatment.
I think this lyme & co's is different than the one people were getting even 4 or 5 yrs ago. But as the disease gets more complex, people are finding a lot of new ways to get better.
posted
If you bump up immune support maybe your immune system will be able to take care of it.
Are you taking anything like cordyceps?
-------------------- unsure445 Posts: 824 | From northeast | Registered: Jun 2008
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sutherngrl
Frequent Contributor (1K+ posts)
Member # 16270
posted
Blue lyme, right now I'm detoxing and working on gut health. Not sure what else to do yet.
Before it was mainly antibiotics so I don't know a lot about natural remedies. Going to research for a while. A part of me wants to ignore and run the other way.
Posts: 4035 | From Mississippi | Registered: Jul 2008
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I contacted Nutramedix who manufacture the products for the Cowden Protocol several months ago and learned they have a Financial Hardship Program for the Cowden Support Protocol which is available for one patient of a practitioner. The cost is about one-third the regular price!
An application is filled out and they call the practitioner to verify the information. The patient is then notified of approval. The stipulation is is that only one patient in each doctor's practice may get this assistance.
You would have to call them to find out if this is still available to patients.
Posts: 8981 | From Illinois | Registered: May 2006
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TF
Frequent Contributor (5K+ posts)
Member # 14183
posted
sutherngrl, I suggest you start doing the Burrascano exercise program. It will boost your immune system. Do weightlifting for one continuous hour every other day.
Do a full body workout each time--arms, chest, back, abs, buttocks, legs. Use light weights and do many repetitions.
This boosts the immune system like you won't believe. Also, don't drink alcohol or smoke as these will weaken your immune system. And, don't take any steroids until you are past this.
Eat raw garlic or Kyolic. It will also boost the immune system.
This may be all you need.
Posts: 9931 | From Maryland | Registered: Dec 2007
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droid1226
Frequent Contributor (1K+ posts)
Member # 34930
posted
Bluelyme, after yrs of IV abx & supplements I've learned keeping the liver/organs clean is the most important for me. So, eating raw is so important.
Lyme triggered an allergic reaction or an inability to break down processed foods in me. It also triggered my MTHFR gene so I use any means necessary to keep clean internally.
I couldn't agree more with TF. Weightlifting & eating raw has been enough to keep me in maintenance mode. So now I know when I have symptoms, it's my fault.
The Amazing Healing Powers of Mushrooms -
Posts: 48021 | From Tree House | Registered: Jul 2007
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sutherngrl
Frequent Contributor (1K+ posts)
Member # 16270
posted
Thanks for all the info. I'll try the Burrascano exercise program. It makes a lot of sense to me.
The hardest part is changing my diet. I eat pretty healthy, but not as healthy as I should. I have been tweeking my diet the last few months, but I have a long way to go. I'll check out those mushrooms Keebler.
This is all so helpful to me, as it's been a few years and I've forgotten much of this stuff. You guys are helping to jog my memory. Thanks!
Posts: 4035 | From Mississippi | Registered: Jul 2008
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WPinVA
Frequent Contributor (1K+ posts)
Member # 33581
posted
I guess the only good thing about coming back to this after 3 years is that there are some new books out. Definitely recommend "Why Can't I Get Better" by Dr. H. There is info in there on herbal protocols, along with tons of other great stuff.
Posts: 1737 | From Virginia | Registered: Aug 2011
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sutherngrl
Frequent Contributor (1K+ posts)
Member # 16270
posted
Thanks, I will check out that book.
Posts: 4035 | From Mississippi | Registered: Jul 2008
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posted
I really like turmeric - it's a good anti-inflam - it takes down pain in my muscles and joints. I get it in bulk at the health food store and dip 00-size empty capsules into it, take one in the am and pm. I don't think you can OD on it.
Posts: 13116 | From San Francisco | Registered: May 2006
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sutherngrl
Frequent Contributor (1K+ posts)
Member # 16270
posted
Thanks Robin. I have used Turmeric in the past. I actually like using it on food.
Posts: 4035 | From Mississippi | Registered: Jul 2008
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sutherngrl
Frequent Contributor (1K+ posts)
Member # 16270
posted
Well, this is an update. I have come to the conclusion that I'm probably not having a relapse this long after treatment. Most people relapse within a few months not a few years.
I think that I just never totally detoxed properly, which I am working on now. I have to admit I'm a little lazy about it. But I'm doing more than before.
And another thing, I've been gradually withdrawing from an SSRI since last year. After some researching it looks like SSRI withdrawal can cause an inflammatory response, and even autoimmune issues. This seems to fit in with what I am experiencing.
Anyway, I'm going to hang around here for a while, because of the wealth of information that is available. And maybe I can help someone in some way too.
TF
Frequent Contributor (5K+ posts)
Member # 14183
posted
I am so glad for you!
Your analysis makes a lot of sense to me. You have been off antibiotics for so long, a relapse doesn't make sense. So, if you feel pretty sure you did not get a new bite, the SSRI withdrawal is the most likely cause.
Perhaps you need to withdraw from that med more slowly. Hope you are feeling fine very soon!
Posts: 9931 | From Maryland | Registered: Dec 2007
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sutherngrl
Frequent Contributor (1K+ posts)
Member # 16270
posted
TF, it's been a pretty slow withdrawal. I started early last year and then stuck for 6 months at 3/4 my beginning dose. Then I started again after Christmas and just reached 1/2 the dose I was on to begin with. I'm planning on sticking at this dose for several months before proceeding.
I read some things yesterday that makes me wish I never took psych meds, but sometimes you just don't have a choice. Some people develop autoimmune illnesses after taking SSRI's. Or it can just be some kind of immune reaction. I feel like my body is attacking itself.
Just hoping it goes away.
Posts: 4035 | From Mississippi | Registered: Jul 2008
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