posted
I estimate that I've had lymes with babesia,
bartonella, rocky mountain, mycoplasma &
pneumoniae for 15 months. Through many struggles
like everyone else, was finally diagnosed 4
months ago and put on Atovaquone 500mg/day,
Nystatin 1000k/day, Probenicid 1000mg/day, Ceftin
1000mg/day, minocycline 100mg/day. Along with a
ton of vitamins & herbs. I am a typical 39 year
old American male, since the diagnosis, I have
changed my diet to be kefir with fruit in
the morning. 32 oz of fresh green vegetable
juice during the day and some protein with
vegetables with dinner. I cheat on the weekend
and have a few glasses of wine and some minor
amount of carbs. I exercise and do 45min sauna
sessions, 5 times a week. I can deal with the
way my body feels but the brain fog is really
difficult and has certainly gotten worse. I
would really like to feel like I am on the right
track with oral antibiotic or if there is another
alternative. If anyone has a great doctor I'm
located in Northern NJ, Thank you all.
[ 02-29-2016, 11:25 AM: Message edited by: ericous ]
Posts: 1 | From New Jersey | Registered: Feb 2016
| IP: Logged |
Catgirl
Frequent Contributor (5K+ posts)
Member # 31149
posted
Welcome to Lymenet!
You might want to change your diet (food affects the brain). Lyme patients are supposed to eat gluten, dairy, and sugar free (causes yeast, inflammation, brain fog).
Wine or alcohol completely shuts down the detox process. So you're killing lyme with abx and can't detox it out on the weekends. Not a good thing for your brain/body.
That's wonderful you are doing exercise and sauna, keep up the good work!
PS, it is difficult for many of us to read single spacing so you will see posts broken up, double spaced, etc. If you do the same, more people will read your posts as many pass by posts that are single spaced (too hard on the eyes).
-------------------- --Keep an open mind about everything. Also, remember to visit ACTIVISM (we can change things together). Posts: 5418 | From earth | Registered: Mar 2011
| IP: Logged |
posted
Mino works great for neuro lyme. If that does not work, give roxithromycin a try. It's great at also penetrating brain barrier, but you'll have to order overseas to get it. Microbiologist Tom Grier recommends it, he did well on it for his neuro symptoms.
If you haven't tried tindamax or flagyl, these have good penetration too, a lot of thought they were persister cell killers, but they may just penetrate tissue better. Blood brain barrier wise they are ok. Put paired up with mino or doxy, people have done really well on them.
Catgirl
Frequent Contributor (5K+ posts)
Member # 31149
posted
Forgot to mention, there are alternatives to abx, ART practitioners, rife, photons, mild HBOT and more.
-------------------- --Keep an open mind about everything. Also, remember to visit ACTIVISM (we can change things together). Posts: 5418 | From earth | Registered: Mar 2011
| IP: Logged |
posted
Definitely change the diet .. even juicing can be a real problem if it is high in oxalates (spinach, for example)..
Yogurt is high in histamine and can cause brain fog.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
| IP: Logged |
Brussels
Frequent Contributor (5K+ posts)
Member # 13480
posted
yep, the wine, I also like it, but during lyme it made me feel very crap. Even half a glass.
Now I can drink the whole bottle, it just makes me drunk or happy. But during lyme, I felt miserable if I sipped any alcohol (except ripe fruits, never felt any different).
I also felt miserable taking just ONE abx at a time. So for me, no way to do what you do, taking all those drugs. I would feel miserable even if I didn't take any alcohol.
Look certainly into DETOX. Only juicing will not do the whole (it helps with anti oxidatitive effects), but juices will not bind all the heavy toxins coming out from die-off (herxes). Think about binders such as chlorella, MSM, if you can tolerate them.
Taking loads of binders made a WHOLE difference for me. I didn't feel miserable even if I only took herbs for killing lyme. Even herbs made me feel miserable, if I didn't take enough binders, about 5 times a day.
MSM alone does wonderful things, if you tolerate sulphur (people who consume onions, garlic maybe have no problem with MSM as it is organic sulphur).
Posts: 6199 | From Brussels | Registered: Oct 2007
| IP: Logged |
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
UBBFriend: Email this page to someone!
Printer-friendly view of this topic