Jordana
Frequent Contributor (1K+ posts)
Member # 45305
posted
Does anyone here think their herxes are like suddenly becoming a zombie?
I'm sort of okay on a higher dose of mino, physically. Usually when I raise the dose I get a day or two of tinnitus that subsides and generally no real improvement in any other physical symptom.
But mentally, I am so checked out there are no words for it. I can only think of one thing at once. It's like someone hit me with a cartoon frying pan.
Does anybody else have this -- or did they have it and does it get better?
Oh -- also I have, periodically, just a wave of misery. It's not coming from any physical place, it's just a sense of feeling really really awful that comes and goes. Normal?
Posts: 2057 | From Florida | Registered: Feb 2015
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bluelyme
Frequent Contributor (1K+ posts)
Member # 47170
posted
What i have learned to accept as normal is atrocious. ..i started uping some tinadazole with my herbs and bee venom and totally relate to frying pan daze.
I dont know if i am getting worse or in a costanst herx..little of both...
Keebs just posted on other mino thread about vestibular toxicity. ..maybe that the tinnitus? ...
my mino should be coming soon just in time for summer sun....you are doing" good" did you get an epipen? 4full stings on the dome cleared fog for a whole day
-------------------- Blue Posts: 1539 | From southwest | Registered: Dec 2015
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- bluelyme,
Thanks for mentioning that. Anyone can feel free to have this link on hand and post as you see fit. I do wish I could streamline it but I just can't. Still, with some scrolling, the important detail is here:
Topic: TINNITUS: Ringing Between The Ears; Vestibular, Balance, Hearing with compiled links - including HYPERACUSIS -
Posts: 48021 | From Tree House | Registered: Jul 2007
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- The feeling awful during treatment is not always a herx, but the state of being ill with multiple infections. Even with treatment, the body is still under great pressure on-going.
Liver support, excellent nutrients, ENOUGH food, nurturing . . . it all matters. And it's never enough but just hold on. Your LLMD is your best source to consult for if your plan is on target.
Also consider OTHER Rx you might be taking. So many can have harsh effects for those with all the stressors on the body as those of TBD. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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Jordana
Frequent Contributor (1K+ posts)
Member # 45305
posted
I did get an epipen!
Now I just have to get some bees. I'm putting it off because I want to get to a good drug level. Apparently venom herxes are intense.
I just keep increasing what it seems like I can tolerate. I was really afraid to up the mino, but being stupid and having tinnitus aren't worse than what I've been through so far.
The tinnitus isn't terrible.It's just really hard to sleep on those days.
Posts: 2057 | From Florida | Registered: Feb 2015
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Jordana
Frequent Contributor (1K+ posts)
Member # 45305
posted
Thanks Keebler. Like I said it really doesn't feel that much different than it did before I started abx. So far anyway.
I don't think the tinnitus is from the mino. It's been a symptom of mine for a while. I've been taking extra milk thistle though on your recommendation Posts: 2057 | From Florida | Registered: Feb 2015
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WPinVA
Frequent Contributor (1K+ posts)
Member # 33581
posted
Sometimes, the feeling awful isn't a herx and can be an intolerance to that med. Not everyone can tolerate mino (or you could insert almost any other drug here). I had to go off of it. Perhaps try another med if you feel this awful on mino. There is always another way to skin the cat.
Posts: 1737 | From Virginia | Registered: Aug 2011
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Jordana
Frequent Contributor (1K+ posts)
Member # 45305
posted
Ugh, I don't want to fail mino. The idea of microscopic worms in my brain gives me the jeebies.
I can be pretty accommodating about every other organ, I think. But since it's my brain, I'll give the best brain drug the shot it deserves.
I can feel it everywhere else, too, bubbling all the way down to my toes. It's like, half excruciating and half fascinating. What I hope I guess is that I never feel this bad again.
Posts: 2057 | From Florida | Registered: Feb 2015
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LisaK
Frequent Contributor (1K+ posts)
Member # 41384
posted
I dd and it would come and go for at least a year or 2. It got better with treatment. good luck!
-------------------- Be thankful in all things- even difficult times and sickness and trials - because there is something GOOD to be seen Posts: 3558 | From Eastern USA | Registered: Jul 2013
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