just joined the site. a couple of months ago my doctor (he's actually my psychiatrist but he practices integrative medicine) had me get bloodwork done that he first mentioned a few yrs ago. it was for my CD57 levels or whatever.
the reason he'd been wanting me to get different tests done is because i have severe ocd, anxiety, depression, "bdd", all types of debilitating neuropsych symptoms since i was four years old. im 23 mow. and i now have ptsd too.
he had me on benzos on and off, but he thought that the fact that i had a sudden onset of mental illness at such a young age was weird and so he told me about PANDAS, Lyme, other potential medical reasons behind my mental illnesses.
i havent gotten the PANDAS test/s because i dont have the money. same with the heavy metals. i still want to do those, and i think its worth noting that a couple years back i had a stool test due to digestive issues & food intolerances , ibs, etc.,
and my results showed that my gut was infiltrated with strep bacteria. total dysbiosis. so i went on protocols for that, but the doc i was seeing didnt take insurance so i couldn't keep going. i still need a follow up stool test.
anyway, all that stuff being on hold, the past year has been the worst of my life, ive been in and out of mental institutions, getting off of horrible meds, etc.
i got out of another rehab in january and started going back to doctors and whatnot, and my psychiatrist had me finally do the CD57. i had no idea what it was for at first.
i got it done and when i saw him again, the results showed that i was at a level 24? i think. and right then and there everything came crashing down, he said he thinks i have chronic lyme. i had no clue what Lyme actually was. im still learning. while i match some ofnthe symptoms, most are too ambiguous.
the main issue for me had always been mental illness. and then only in the last few yrs did i learn i had digestive issues, allergies, hormone issues.
ive had major acne since i was thirteen, a whole decade of addition trauma from that. because my gut cant handle abx to save my life, my dr. immediately started me on tinctures from Beyond Balance. and im supposed to be on GcMaf, i was months ago before i went to rehab.
so i started with Cognease, CyflaCalm, & Mc-Bab 2 gradually added. he told me to start with a few drops a day of each and then move up a drop daily until i reached 20. then i was supposed to move to Mc-bab 1 and Mc-bar (i may be getting names confused).
But basically after a few weeks of doing what he told me to, I started having crazy symptoms, got mentally worse than ever, developed constant tingling and numbnesa and shooting pains all over my body, red hands and feet, felt flu-like symptoms, worsened Gi issues, had to pee all the time.
so i saw him again and he told me to ease up on the dosage, that i shouldn't have done so much, when i was just doing what he said.
he also didnt tell me about detoxing , i still knew nothing and had to figure it out by reading stuff online.
he said to take less drops til my symptoms improved and then continue. so i did, but my symptoms never improved, so i didnt know when i could continue.
i also had run out of some of the drops, and because i make no money and my family is low income now, i still havent ordered more drops...
so basically, i started the protocol and was on it for about 4 weeks, then decreased it, then ran out and now i havent been on anything for a whole month..and i have to restart the process all over again.
what i don't get is that if i was 'herxing,' howcome after decreasing the dosage and after being totally off the drops for a month, my symptoms are still worse than ever?
he said to restart when symptoms are less intense but they havemt subsided, i feel worse than ever. ive also had severe bloat/distension for 3 weeks straight (I'm afraid part of it's fat tho, I'm constantly panicking because my appearance issues are the worst thing for me).
and before the bloat i already seemed puffy and like i was developing fat in my belly area and upper body at a rapid rate?
i'll add that that's not normal for me, ive always been petite and i had an hourglass figure, i never gained excess fat in my belly or upper body, if anything it would go to my lower body.
i'm only 4'11" and around 110. at another doc i got weighed recently and i didn't have weight gain. but my stomach looks pregnant and my clothes don't fit.
ive been and am going to every specialist possible, and im finally seeing an LLMD in June aside from my psychiatrist.. it takes months to get appointments and i cant wait for months..my body feels like it's given up.
also, I've developed new skin issues. ive always had acne, but i developed weird itchy burning sensations on my skin, an itchy scalp and eyebrows, an oily scalp, pale lips (theyre usually reddish),
and I've suddenly developed nasolabial lines that have a weird redness to them, every time i yawn or floss or open my mouth wide, my skin gets indented easily and the wrinkles pop up and turn red, it looks horrendous...
i guess what i want to know is if all these new issues im having (that sprouted up in the paat 2 months) could be due to the fact that i started the Beyond Balance protocol and then stopped in the middle of it-
could it have brought a ton of inflammation to the surface? and now that i suddenly stopped them, my body is just stuck like this with all these symptoms?
it just doesnt make sense to me because i didn't think herxing could last that long especially uf you currently arent even on anything. but it took a turn for the worst during and after and now a month later..
so if its still this bad now, to where i feel like im gonna off myself every day, i cant imagine how much worse it could get once i go back on the drops???
i just want to go back to two months ago- everything was terrible, but i at least didnt have sudden wrinkles, rashes, and a huge belly that i never had before...
and if its not lyme..all i can think of is candida, sudden hypothyroidism..? i have symptoms of everything- CFS, MS, i feel diabetic, i mean ..everything is wrong. and it could all be due to lyme but it also may not be?
I'm seeing an endo soon too, saw a neurologist and waiting on test results, saw a rheumatologist, have a hormone doctor, a dermatologist, waiting for the LLMD. like. i dont know what else to do.
im really sorry this was so long and a jumbled mess, i rant a lot and this isnmy first time on a forum. i dont own a computer so im on my phone constantly (not good i know) and im just totally desperate
and as awful as it sounds, my main most urgent concerns aside from chronic pain and neuro stuff, are my body and skin changes because they affect my appearancw, and i already hated my appearance.
the number one reason for my suicidal feelings for a long time now has been a mixture of ptsd and my appearance/bdd (i hate calling it bdd though bc im not delusional)
so im trying to find an explanation as to why id suddenly develop wrinkles when im 23 and have oily skin- and sudden fat gain and/or chronic bloat when i never had those areas of my body
posted
I don't have time to respond now - others will. Hang in there! You're basically at the beginning of finding out about diagnoses/treatments. You're in our ballpark, with all your variations.
Posts: 13117 | From San Francisco | Registered: May 2006
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posted
Hi - back again - sorry no one has responded yet -
Be patient - you're at the beginning of figuring out to heal.
Yes, a CD count of 24 is low. This is a Lyme disease marker test.
Lyme disease is a bacterial infection that gets into the brain early on and messes up all body systems. Mental symptoms are par for the course.
Re your gut issues, sounds like you need to heal your gut. Josh Axe and Donna Gates are both experts in that arena. I suggest you google for their websites and read what they have to say. The healing involves starting with simple broths, I think.
I heard on the natural cancer summit I'm currently watching that acne can be a result of too much androgen activity - that's in the hormone arena. I'm not a doctor - just reporting what I heard.
I'm going to private message you and make a referral to someone I think is experienced enough to discuss your med and med reaction questions.
Don't worry about your appearance right now - it's a reaction to what's going on inside you. When you start to heal, your appearance will improve. The important thing is to be learning about what you're going to do to heal.
I heard in the natural cancer summit I'm listening to now that belly fat gets stored as a result of insulin resistance. That can develop if we eat too many foods that load the body with sugar. It's best that we not eat a diet that stresses the body with foods that are sugary - either outright sugar or carbs that turn into sugar.
If you're at all interested, the summit is full of health info, including good diet. Most of what is info for us not getting cancer is also good information for our health in general. www.thecancersummit.com, on for this week.
Itching skin could indicate an attempt by your body to detox. Either that or a mast cell reaction. I'm not a doctor - don't know, just reporting what I've heard goes along with that.
I bet you may need to learn more about how to detox. You can start to read it - just google it, or do a search here, using the Search function at the top of the page to type in any word or phrase, and archived threads will come up that you can read through. Just know we're all different in how we respond to anything.
If you have any way to get a FIR sauna - far infrared - then that's a good way to detox. You need to be able to handle heat.
We sit in it with our head outside the tent, heat up till we sweat, then shower off warm and cool. Far infrared sweating is the only treatment modality that has helped me to get over the hump of my crazy reactions to everything.
Ok, pming you now -
Posts: 13117 | From San Francisco | Registered: May 2006
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bluelyme
Frequent Contributor (1K+ posts)
Member # 47170
posted
The indented skin happened to me..i think itnis angio renin system or hpa axis ...yes lyme can cause all of this and more ...it is like syphilis you cant see.....also with your immune distracted it is easy to grt staph or other skin infections...i get carbuncles since teens .....i was told to do h202 in baths ..
.oil of oregano had helped ..may have to dilute with coconut oil...there is bvt ,rife ,mhbot ,photons and other ways to treat but it sounds systemic and neuro ...bvt is cheep mms and herbs from buhners book healing lyme .there are meds out of country but abx may not work well as you are sensative ...
unfortuantly nothing about thisnis cheap...and yes hormones thyriod ,structual all need yo be supported after during getting the ifections under control... Watch under our skin and justinandcristie. ...pray
-------------------- Blue Posts: 1539 | From southwest | Registered: Dec 2015
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