Silverwolf
Frequent Contributor (1K+ posts)
Member # 9196
posted
Hi <<<<< LymeNet Family >>>>>,
I'm puzzled, and concerned about what is safe for me to eat, and what may be triggering allergy problems.
For the last month and longer several foods I've not had any issues with,suddenly are an issue.
Symptoms include : diarrhea, scratchy sore throat, headaches, sniffles and so on.
Newest culprits : Pork products[such as roast,or mild sausages], and Salmon.
Recently mentioned issues in another post, were: eggs, tomato, and celery. It was suggested that these could be a Histamine intolerance.
I've been checking/reading some about the Histamine problem. Could it include Meats?
I know, egg, salmon, pork, and to some extent Tomato[has some proteins in right?], are proteins.
Last night I had a burger[beef], it seemed okay,tasted good and such, this a.m. I had some Turkey bacon [regular real bacon hurts my stomach, to greasy I think...].
Today I am fighting diarrhea again, happened a few days ago, after having pork meat also. I tried a bit of salmon in a soup, and some pork roast, along w/ some spinach. I was hoping the meats wouldn't bother me.
I also have to be very careful about peanuts/ peanut butter, tho' that is more a heartburn/burping issue.
I am noticing tho' how much of these foods are proteins and/or have some protein components.
Twice now counting today,salmon has been a problem, and at least three times pork products. After waiting several days and trying again it still seems a problem.
TxC' eats some Gluten product [altho' rarely], I am gluten free. We are careful about cross contamination.
I have heard of the red meat allergy connection and Lyme Disease, is it getting common, and can it include other proteins?
We've had friends that couldn't eat shell fish or tuna, because of allergy problems.
I tend to have ongoing sinusitis, which seems common w/ LD and Co's but this is getting ridiculous. it is one thing to have some sinus issues,which I take meds for low dose only.
Another problem for me, is allergy to most ABX, maybe the meats are being tainted w/ more ABX?? We try to watch for good safe meat that is economical and not loaded with chemicals and junk.
TxC' does most of the shopping, and tries to be watchful checking for Gluten free foods. I can't get out very often at this time.
If it is all allergy, why is it hitting all of a sudden??? We are both going thru some stressful things, but life gets that way sometimes.
I have to eat something, and if I am not really really carb conscious I start gaining weight, and my blood glucose levels go too high.
I do eat apples, and some berries, and now and again almonds too. But, I am careful not to load up on carbs.
We occasionally can have pumpkin, and enjoy a good 'Spaghetti' Squash. And now and again i have GF waffles.
Anyone have any ideas, what could be causing these symptoms 'out of the blue' so to speak?
Thanks for any tho'ts and ideas that you post! I don't know what to do from here out... have to eat.
[Topic Title Edited to hopefully avoid confusion.]
-------------------- 2006,May-August2006 Dx w/ Lyme/Bartonella/White Matter Lesion Disease on Brain. [ Clinical Dx w/ two positives and several IND's on the tests from Igenex ], Prior Dx of CFIDS/CEBV 1992, and FMS '93-'94 Diabetes*2 Dx 10/'08 Posts: 3581 | From SE Idaho | Registered: May 2006
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Silverwolf
Frequent Contributor (1K+ posts)
Member # 9196
posted
Aargh, I hope this is making sense...
Tried to edit, meant to say, after waiting few days,after allergy like symptoms from salmon, and then pork, I had tried them again today, and experienced diarrhea issues.
And I had had a beef burger last evening.
I can't seem to think and type in things right today.
Jus' Silverwolfi
-------------------- 2006,May-August2006 Dx w/ Lyme/Bartonella/White Matter Lesion Disease on Brain. [ Clinical Dx w/ two positives and several IND's on the tests from Igenex ], Prior Dx of CFIDS/CEBV 1992, and FMS '93-'94 Diabetes*2 Dx 10/'08 Posts: 3581 | From SE Idaho | Registered: May 2006
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posted
Silver, I'm glad you've been researching. You might want to check out some of the Facebook groups on histamine intolerance and/or check out Low Histamine Chef.
YES, that includes meats! Big time. Especially salmon and pork and anything ground.
Leftovers can also be a big problem.
Histamine intolerance is basically a gut issue... and those of us on long term antibiotics are prime targets for this.
I'm sorry you may be in the same boat I'm in. It's not fun at all.
posted
I have a lot of the same issues, Silverwolf, right down to being carb conscious. I am very particular about my carb intake, and suddenly having reactions to the main staples of my diet has been very difficult.
I haven't been able to learn much yet from researching this, so many other things I'm focusing on with treatment. What has helped me much in the meanwhile is eating around it.
I was mostly meat, eggs, and veggies before, so I'm a little lost without the meat portion of my plate. I've found that while hemp protein doesn't provide the satisfying mouth feel of a ribeye, it is an awesome protein substitute. Low carb, mixes well, hi protein, high fiber, and tastes inoffensive.
So to get my macronutrients right I've been making a protein shake and loading up on veggies and butter. It's not a permanent solution (I hope!), but it's working for now. Eliminating all the offending foods and adding some digestive enzymes has helped me a lot with digestion issues.
I hope you are able to get this figured out!
Posts: 474 | From US | Registered: May 2014
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That "Cascade of Symptoms" chart at the histamine-intolerance website is terrific. Thanks for posting that, Lymetoo. It's interesting how many the symptoms of histamine intolerance overlap with those of lyme and co's. It seems like if lyme/co's isn't directly causing histamine intolerance, it is affecting all the systems responsible for those symptoms.
I've been having more better days that before, overall. I'll take it any way I can, but it has me wondering if the diet changes have more to do with it than anything else.
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Silverwolf
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Member # 9196
posted
Hi <<<<< Lymetoo, and gz >>>>>,
Thanks for the links and replies, Sorry that you two are going thru this as well.
TxCoord and I are hoping to go check on some more supplements and such the early part of the week.
I'll check prices on some protein supplements too, and we'll see what is gluten free and affordable.There is a nice supplement shop close to us!
A couple of supplements we've found inexpensively thru Amazon. So we'll be checking there as well.
I've been reading a little from the Low Histamine Chef, but didn't notice much about the meats, course sometimes I look right at something and still can't see it... Aarrghghhh.
I'm still searching,and the links are a big help! The Paleo one was interesting and surprising to me. Not only can many foods cause Histamine reaction, but there was quite the list of food that can bring on an issue,even tho' it is low Histamine.
TxCoord and I joke 'bout the' Nirvana Diet = Green beans and water' the state of perfect nothingness, but I am even beginning to wonder if my beloved green beans could cause a reaction... I sure hope not!
I'm trying to get the IBS symptomology to ease,especially cramping right now. The 'Tortoise and Hare' have been racing about and my intestines and colon are not amused.
Well, if it takes cutting out more foods for now, I guess that's what I'll do, and hope I can find a good protein that doesn't hurt my tummy.
Thanks again for tho'ts links,and replies, I'll be checking back in from time to time. Not giving up!!!
Trying to get me,TxCoord and Pup Dog Muad'i back to a healthier state of being...
Jus' Silverwolfi
-------------------- 2006,May-August2006 Dx w/ Lyme/Bartonella/White Matter Lesion Disease on Brain. [ Clinical Dx w/ two positives and several IND's on the tests from Igenex ], Prior Dx of CFIDS/CEBV 1992, and FMS '93-'94 Diabetes*2 Dx 10/'08 Posts: 3581 | From SE Idaho | Registered: May 2006
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quote:Originally posted by gz: It's interesting how many the symptoms of histamine intolerance overlap with those of lyme and co's. It seems like if lyme/co's isn't directly causing histamine intolerance, it is affecting all the systems responsible for those symptoms.
- Exactly.
Silver: Green beans are one of the few green vegetables I'm able to eat! So it's green beans and water for me!
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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Silverwolf
Frequent Contributor (1K+ posts)
Member # 9196
posted
Hi <<<<< Lymetoo, and gz >>>>>,
Searching and reading, I find myself wondering, just how many folks immune systems are breaking down from LD and co-infections, and if the Histamine Intolerance and so many other problems are the result?
[oh joy, I think I just did a run-on sentence question...sorry].
How many folk have LD and Co's and don't have a clue? I've had all sorts of health issues since I was a child,and only found out about the LD in 2006.
I'm off to check more info' on the Histamine Intolerance [in between restroom visits , rough night lastnight]
Jus' Silverwolfi here
-------------------- 2006,May-August2006 Dx w/ Lyme/Bartonella/White Matter Lesion Disease on Brain. [ Clinical Dx w/ two positives and several IND's on the tests from Igenex ], Prior Dx of CFIDS/CEBV 1992, and FMS '93-'94 Diabetes*2 Dx 10/'08 Posts: 3581 | From SE Idaho | Registered: May 2006
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Silverwolf
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Member # 9196
posted
Jus' me again,
Should we start the Nirvana Diet-Green Beans and Water club here? Aaarrgghhh.
I was looking at those two links more, how does one tell the difference between Lyme and Co's, Yeast issues, Histamine Intolerance, Heavy Metals issues, and Mold-Mildew issues.
This goes way beyond scarey. And right now,around here in the desert we've got grasses and other things blooming that cause allergy reactions too.
Now where did I put that map to my Hibernation cave?? Have to find some non-trigger foods to take with me, and a good pure water source.
I'll be back later on...
Jus' Silverwolfi
-------------------- 2006,May-August2006 Dx w/ Lyme/Bartonella/White Matter Lesion Disease on Brain. [ Clinical Dx w/ two positives and several IND's on the tests from Igenex ], Prior Dx of CFIDS/CEBV 1992, and FMS '93-'94 Diabetes*2 Dx 10/'08 Posts: 3581 | From SE Idaho | Registered: May 2006
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posted
When I first broke out in hives I began searching and not knowing what was wrong, I ate a diet to avoid both problems (salicylates and histamine)... There wasn't much left to eat!
So far I have not starved .. so all is good!
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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Silverwolf
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Member # 9196
posted
Hi <<<<< Lymetoo >>>>>,
Wow, I was looking up the salicylate food lists, I'm glad you were able to find something safe for you to eat.
I didn't realize so many foods had salicylates in them, and then to add in the Histamine Intolerance list. That has to be very limiting.
If I read correctly pealed Pears don't have Histamaines and Salicylates in,so maybe we could modify the Nirvana diet and add Pears.
Is there a chance of you being able to eventually add a few things back into your diet? Or is it usually once Histamine resistant, and Salicylate restricted always?
I know there are Aspirin allergy problems or like *penicillin allergy, which *I have. That is disconcerting to say the least,if one has the Salicylate intolerance, no aspirin, and watch skin lotions and make-up.
I have to check all skin and beauty products for Oat/Aveenen. A lot of lotions,and powders. eye shadows have Oat product,and some foundations too.
Well,I better go offline for now, TxCoord has a program lined up for us to watch on TV.
BBL... Jus' Silverwolfi
-------------------- 2006,May-August2006 Dx w/ Lyme/Bartonella/White Matter Lesion Disease on Brain. [ Clinical Dx w/ two positives and several IND's on the tests from Igenex ], Prior Dx of CFIDS/CEBV 1992, and FMS '93-'94 Diabetes*2 Dx 10/'08 Posts: 3581 | From SE Idaho | Registered: May 2006
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Oat was one of my early offenders. I started into a bowl of oat bran and immediately felt itching and swelling in my facial tissues.
That's about when I experienced a whole slew of crazy immune reactions, I guess that is when the biggest part of my histamine intolerance really bloomed, along with the worsening of other lyme symptoms.
If I strictly avoid the foods that I know give me histamine reactions, then I can usually get away with little bits of stuff here and there, like a smear of guacamole of sprinkling of cheese. The bad thing about doing that is I believe consuming these foods will contribute to the reaction happening eventually.
I might not be mounting enough histamine with little bites here and there, but I think it can build up if it's not clearing. Like if I eat chicken and have a full blown reaction, a small bite of anything offensive will keep it going or cause another reaction.
So I just try to avoid all the stuff that aggravates my histamine if I can. I figure it's better to try and not irritate my immune system, otherwise I might end up with worse issues. While I can't address this stuff now, I am really hoping my body heals from it as I am rid of lyme and co's.
I must confess I couldn't help myself by not eating a bit of steak I made last night. It ended up making me fell so sick I couldn't go near the kitchen until my husband put it away and cleared the dishes up . I've done that enough times, hopefully I've learned my lesson. Taking it easy with the kind and gentle hemp protein today.
Posts: 474 | From US | Registered: May 2014
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gz .. Supposedly, the salicylates will build up in the body... and if you think of histamine as your histamine "bucket" .. You will understand that the more you put in that bucket the more likely it will "overflow."
Here is a great link that discusses sals and histamine:
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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ukcarry
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posted
I am going to try a first six hour colostrum that is said to reduce histamine and allergies amongst other things.
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-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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Silverwolf
Frequent Contributor (1K+ posts)
Member # 9196
posted
Hello <<<<< gz,Lymetoo, and ukcarry >>>>>,
I'm curious to know about the colostrum, I hope it will help! <<<<< ukcarry >>>>>.
<<<<< Gz >>>>>, I am seriously allergic to oats, I don't eat them in any form, be watchful of beauty and skincare products which may have Aveenen/oat in them.
And some Taco companies use *Isolated Oat Protein*. I got really ill after eating Taco Bell food because of the hidden *IOP*. It is used as a preservative.
If you use oil pastels, or charcoals in drawing and art work beware of textured papers, some use Oat tag.
I like the analogy about the bucket <<<<< Lymetoo >>>>>, Mine seems to be overflowing w/ Histamine unpleasantness at the moment,so I am home near the restroom.
I'm wondering if a short term elimination diet might help, if I can find two safe foods to eat,I'm going to see if I can find what all is triggering this mess.
I was reading the safe foods lists to TxCoord, he's trying to figure out a budget,so we can both find safe foods to eat.
There was some good helpful hints, use the freshest meats possible,and be sure to refrigerate,or freeze meat leftovers promptly. Also skin any chicken one cooks.
It looks like pork products are out for me, I like good fish but will need to try to find fresh caught when possible [we do have a friend who fishes now and again], so we'll see.
That Low Histamine Chef advised checking the safe list carefully,and adapting it to our needs,as some may have a reaction to things on it too. Also some folk can eat some of the foods on the 'NO NO' list.
Not sure I want to chance that, my intestines are still letting me know they are in misery. Trying to be watchful,and mind our super tight budget. Have to eat,so we'll see what happens.
Will check in later on...
Jus' Silverwolfi
-------------------- 2006,May-August2006 Dx w/ Lyme/Bartonella/White Matter Lesion Disease on Brain. [ Clinical Dx w/ two positives and several IND's on the tests from Igenex ], Prior Dx of CFIDS/CEBV 1992, and FMS '93-'94 Diabetes*2 Dx 10/'08 Posts: 3581 | From SE Idaho | Registered: May 2006
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Carol in PA
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Member # 5338
posted
For sources of protein, can you have sardines, almond butter, or pea protein?
Sardines are low in mercury, as they are at the bottom of the food chain. Salmon is at the top of the food chain, and accumulates mercury because it eats other fish. Fish from local streams and lakes has mercury too.
I have not tried pea protein, but when I looked it up at iHerb.com, it gets many enthusiastic reviews.
Posts: 6947 | From Lancaster, PA | Registered: Feb 2004
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posted
No sardines for me .. high histamine. No almonds due to salicylates. Peas are OK.. I'm sprouting peas, which are supposed to help with the DAO enzymes that help combat histamine.
I'll go look at the pea proteins, but I'm sure there are additives in the preparations that will likely X it out.
I don't do any fish. Too big a risk. I'd love to have some fresh fish though!
Silver .. Have you tried Zyrtec or Zantac? Zantac is a good stop-gap remedy. Don't over-use either one.
An elimination diet is a very good idea. Get yourself calmed down and then add one food at a time.
Oats contain gluten .. I hope you are also avoiding gluten??
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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Silverwolf
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Member # 9196
posted
Hi <<<<< Carol', and Lymetoo >>>>>,
As a modified low-carb, diabetic dietary person, I am seriously restricted food wise already.
After checking the links that were posted here and a couple others I am even more restricted now.
Other than an occasional Maize tortilla shell,no corn, carrots, peas ,or beets, they are all loaded with sugars and carbs. When i eat such things the blood glucose gets to high.
And I cannot take the lab created meds such as Metformin,or Glipizide ,they do a number on my Liver. Instead I am using GlycoX-berberine product and modified low carb diet with my Drs. okay.
I will check the Pea proteins and see about that,maybe the sugars are lower?
Almonds and most all nuts can be a Histamine trigger or release to be avoided [and darn I like almonds.]. And unfortunately Sardines and several other fish are considered High Histamine.
Supposedly, most fresh caught fish,as well as fresh meats properly cooked are 'okay'. As you pointed out Carol, there can be Mercury issues with fish, even fresh water fish.
And add to it, the drug and ABX pollution in lakes,streams and so on... one wonders if any food is safe???
Canned meats,cold cuts,sausages and so on,are on the -Avoid List- too.
And also Histamine Triggers to avoid are: strawberries, pineapples, bananas, avacados, chocolate, milk, nuts and shellfish. Chocolate is ...well I am basically addicted to dark chocolate.
On what is the -Good Low Histamine Food list is Oats among several things, and oats even oatmeal soap can cause me to go into anaphylactic shock.
Lymetoo, , you warned me back in 2006 that Oat/Aveenen was a Gluten,and I went Gluten Free. I have unwittingly got gluten w/o knowing it, because of hidden gluten. But I stay as far from gluten as possible.
Just learning about all these High Histamine-and food triggers, and it is hard to find things that are safe for me to eat.
I will have to ween off Dark chocolate now,most likely. I never know what will trigger,the IBS and IC. And even many supplements have Histamine producing things in them.
Top it off, w/ TxC's VA Disability Finance Wait Listing, My aged Dads failing health, and many other issues I wont go into, and I am/we are fighting stress big time. I stay close to the restroom, and don't get out really.
It's getting discouraging...as we try to keep our chins from scraping the ground. I am trying to figure out whats safe to eat and so on.
I'll try to check back in again soon...
Jus' Silverwolfi here
-------------------- 2006,May-August2006 Dx w/ Lyme/Bartonella/White Matter Lesion Disease on Brain. [ Clinical Dx w/ two positives and several IND's on the tests from Igenex ], Prior Dx of CFIDS/CEBV 1992, and FMS '93-'94 Diabetes*2 Dx 10/'08 Posts: 3581 | From SE Idaho | Registered: May 2006
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posted
I know, Silver. It's really hard finding things to eat. I worry about not being able to rotate my diet very much since I only have a few foods I can eat.
Stress is what sent my problem into a downward spiral last year. It was a temporary stressful event that was compounded by several other factors and away it went.
I ended up with hives and was close to anaphylaxis myself. Now I'm extremely sensitive to meds and never know when one will set me off.
I hope you guys get some good news from the VA soon.. it's criminal that they are making you wait so long.
Be sure to try Zantac for that stomach. It has an antihistamine effect and it will help.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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Silverwolf
Frequent Contributor (1K+ posts)
Member # 9196
posted
Hi <<<<< Lymetoo >>>>>,
The Diet rotation factor has us concerned as well. TxC' found out about a little shop that does meat butchering,so he's checking prices,and hoping to find some lamb, inexpensively. Not sure how that will work.
Lamb was a recommend on a couple of elimination diets,so I'll try that w/ green beans, and we'll see what happens. {drat TxC' just called they don't have lamb right now, he'll check back in a few days w/ the shop].
I lost my reply to this yesterday,and had to start over. I tried Zyrtec pre LD diagnosis, and it didn't do anything for me. Haven't tried Zantac yet, we'll have to check that out.
The anaphylaxis is frightening, I used to have an EPI-pen but it expired. I've had a Hobo spider bite[similar to brown recluse,I think]a few years back, and w/ the weird allergies that hit me, there's been some concerns.
I stay far from Oats, because I came so close to the Anaphylaxis from that, I literally couldn't breathe,and my chest tightened up,and was spasming.
Also wondering about some sort of Genetic issues MTHRFR or something similar. I get such odd reactions to medicines,so I know what you mean there.
As to the VA and disability benifits, Our Congresspersons VA Liaison has been trying to help. They told her we are probably looking at another 18 months or more,to even get an answer.
Right now,it seems like they are bouncing our file between a judge, the BVA,and the *American Legion* [ *A L* tries to help when VA/Govt. keep dragging Vets' files and procedures on and on].
I'm probably not explaining that the best, but it's a mess. We know many other veterans who are going thru this.
And don't get me started on 'Choice cards' [for outside medical treatment when there aren't enough specialists ] that they will not let the Veterans use... and then complain that no one uses them. Aaargh.
All I can say,is those that are delaying medical treatment,and proper funding for the Veterans will have to stand before God someday to answer.
Yes, It is in fact criminal, for certain. The loss of TxC's sister, and my dads heart condition aren't helping, the stresses. But what can one do??? So We pray... a lot!!!
Thanks for the reply and the commiseration, it helps to be able to talk it out a bit.
Jus' Silverwolfi here
-------------------- 2006,May-August2006 Dx w/ Lyme/Bartonella/White Matter Lesion Disease on Brain. [ Clinical Dx w/ two positives and several IND's on the tests from Igenex ], Prior Dx of CFIDS/CEBV 1992, and FMS '93-'94 Diabetes*2 Dx 10/'08 Posts: 3581 | From SE Idaho | Registered: May 2006
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Carol in PA
Frequent Contributor (5K+ posts)
Member # 5338
posted
Silverwolf, what happens when you eat sardines? Have you tried them? I don't understand how eating them is different than eating salmon, except for the lower mercury.
I am not familiar with the histamine problem. How were you diagnosed with this. Perhaps you mentioned earlier, but I can't recall.
Regarding pea protein powder, peas are a good source of protein. I don't think they would affect your blood sugar, as they are high in fiber, which delays absorbtion.
As Lymetoo pointed out, pea protein likely doesn't taste like much just mixed with water. However, if mixed into soup or broth, it would be tasty. I guess that's why they also sell it with chocolate and vanilla flavorings.
How much Berberine are you taking daily? If this is keeping your blood sugar within normal range, what happens when you eat peas, carrots, or beets. Does your blood sugar go out of control?
If you are having continuous loose stools, have you looked into trying kefir? I know when I was drinking kefir a while back, my digestion improved, I had much less flatus and even the aroma improved.
Several people here have commented that they wouldn't even try kefir because they can't eat dairy. That shouldn't be much of a problem, because the bacteria that culture the milk convert the lactose into another form.
I think kefir costs about $4 per quart at the stores, but you can make it for half the price using powdered starter. You can also make it with fruit juice or sugar water...the bacteria convert the sugar.
Posts: 6947 | From Lancaster, PA | Registered: Feb 2004
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posted
Fish, any meat, as soon as it dies certain bacteria start converting the amino acid histadine into histamine. Depending on how it was handled between harvest and canning can affect histamine content a lot.
I immensely enjoy kefir, but it is one of my worst offenders. The microbiological activity of anything fermented causes a much higher histamine content.
quote: Histamine and its precursor, histadine (along with other bioactive substances) are present in almost all foods in varying concentrations. However, foods that have been matured or fermented tend to have higher histamine contents.
This is due to the bacteria and yeasts that are involved in this maturation and/or fermentation process have the HDC enzyme required for the conversion of histadine (an amino acid – contained in any food with a significant amount of protein) to histamine.
High histamine concentrations are found in microbiologically produced foods such as mature cheese, sauerkraut, wine (particularly reds), or microbially contaminated protein-rich food such as fish, meat, and sausages.
Pea protein looks like a good alternative, priced about the same as hemp and whey. I read that it goes down very easily if mixed with extra water. The NOW brand has a lot of good reviews, but I would double check before purchasing as it appears the peas are sourced from China.
Fibers can cause blood sugar spikes in some people. No matter what is it, it's always a good idea to check it by the blood glucose meter.
Silverwolf, you may want to consider going "grain free" if you haven't already. Anaphylactic reactions are no joke, and there is tons of cross-contamination in the grain industry.
I also hope you get good news soon from the VA. My family members and their friends who go through VA have difficulties with nearly everything, it seems. Echoing Lymetoo, it is criminal.
Re the antihistamine effect of Zantac... the last time I got hives was the worst, I was covered from head to toe and thought I had a communicable rash! I'd never seen them so bad before. A round of prednisone with benadryl did nothing. As soon as I started the Zantac they disappeared!
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Silverwolf
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Member # 9196
posted
Hi there <<<<< Carol’ ,Lymetoo , and gz >>>>>, Lymetoo, thanks again for the links posted in reply #2 and reply #4, and the pea protein link in reply #19.
Gz, thanks for the link in reply #24 and the information on Histamine and meats. I am Gluten free, which includes most all grains, the cross contamination problem, is real, but gluten free product producers try to be aware of that to avoid cross contaminants in their products.
An even safer option is if one can find, the Celiac Foundation emblem on a product. It’s a guarantee of non- cross contamination. I also make sure there are no oats, even steel cut oats that some Gluten free folk can eat.
I am allergic to any form of oat. And sorry to hear that you are as well, it is scary. Welcome to the ‘Nirvana Diet’club, the no Oats Chapter. I will be doing more research on Gluten free ‘flour mixes’,such as chick pea and rice.
-------- Carol’, I usually find your comments, questions, and tho’ts very helpful, this time however, I think you have, perhaps, misunderstood the general gist of this topic and the conversations w/in it.
I have been reading on other LymeNet Topic posts about, Allergy/and Histamine Intolerance. And I had another post up from March 11th, about “foods I can’t eat,and allergies“, or similar wording.
If you are able to find the time, please read the links in the replies for this current topic that you are reading this on. It will clear up a lot of things for you, I think. You will see we are referring to a literal list of foods that are high in histamines, and cause a whole host of allergy type symptoms ,as well as diarrhea, indigestion and so on.
Also if you read back thru the replies,you’ll see various mention such things as Salicylate intolerance, and oat allergies. Of the protein sources you mention in your reply # 17, two of the three are on the Histamine Intolerance lists of foods to avoid.
There’s a couple of lists of foods to avoid, one is High Histamine level foods, the other is Low histamine foods that release or liberate the histamines [in this case releasing the histamines is not a good thing].
Then there is a third list, that is usually safe foods for those who might be, or are, Histamine intolerant. I have allergies to even some of those foods. I do not have a formal DX at this time, I have personal observation and experience, that I am going by. Obviously something is not good to eat, if it causes one allergy symptoms, diarrhea, and indigestion/heartburn every time it is consumed.
Per your question in reply#23, I never mentioned anything about sardines, or sardines and salmon together. I tried to answer back in reply #20, as per your protein sources mention in reply #17, that sardines were high in Histamine level.
If you will read carefully, Lymetoo explains in reply #18, that She does not eat sardines because of the high Histamine levels.
Now as to foods that I don’t eat on the restricted diet, TxCoord and I are on a Special Low Carb diet. We are instructed not to eat corn, carrots, peas or beets.
We do not eat/or use, sugar or sugar substitutes, with a few exceptions on my part, my diet is modified to meet my needs. TxCoord will explain more about this in a separate reply.
I have been on GlycoX /Berberine for at least a year and am still taking it. I take enough for my body, enough that my non LL Doctor is seeing the difference[in last blood tests], and wants me to continue. Dr is in the know and on board w/ my modified Low Carb diet as well.
The kefirs that we found while shopping are too high a sugar content, even for my modified diet. I do have a limited amount of natural sugars, in some fruits, and some dark chocolate[very limited], all carefully monitored. Fruit juices are too high in sugars, so I wouldn’t be making or using Kefirs per my dietary instructions of no sugars.
Back to Salmon and sardines for a moment, I have had sardines maybe 9 or 10 times in my life this starting in 2013. I do not know if they cause problems for me as yet. Much of my food problems, meats, fish, celery, eggs etc. started/in the last two months.
So I am trying to find out, from information here and elsewhere on the net, what might be causing allergy like symptoms.
Again if you are willing to go back thru this all ,and read the topic ,the links and the replies,it will hopefully clear things up for you. As you stated, “ I am not familiar with the histamine problem.”
TxC’ is helping me check on Pea protein, to see if the sugar content would be a problem for my diet. I know I skip back and forth, in the replies, and subject matter. I have ADD type issues [probably Lyme related],I obviously am not a good editor, and Autism spectrum disorder in my family, and in TxCoords as well.
I am doing the best I can to make sense of things, to learn what I can ,to help me recover my health as much as is possible. We are doing so on very limited income, My husband, TxCoords‘ SSDI.
All my medical expenses are out of pocket, we have tried to get insurance, and have others helping us look for a way to afford it.
So far we fall between the cracks, and I literally cannot afford health insurance. Professionals who are trying to help us, are at a loss, and agree we have fallen thru the cracks. We are literally that one pay check away from disaster at this point. And yes, we are trying to carefully manage our monies, difficult when keep a roof over head takes up almost half our monthly income.
This is getting too long, so I’ll get it posted, and TxC’ will come in later and explain more about the special diet, and over a thousand graduates of the diet plan, who are living a healthy life and diet style,now. Many of whom are no longer on prescription meds. Jus’ that Silverwolfi
-------------------- 2006,May-August2006 Dx w/ Lyme/Bartonella/White Matter Lesion Disease on Brain. [ Clinical Dx w/ two positives and several IND's on the tests from Igenex ], Prior Dx of CFIDS/CEBV 1992, and FMS '93-'94 Diabetes*2 Dx 10/'08 Posts: 3581 | From SE Idaho | Registered: May 2006
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I would stay away from ALL fish unless it is caught FRESH.
Kefir and anything fermented is really really bad for those with histamine issues. I found out the hard way .. eating sauerkraut.
I'm not sure lamb is OK, Silver. Maybe. I do OK with "cornish game hens" because they are not filled with antibiotics and junk. I buy mine at WalMart ..
I am hoping to find some locally that would be fresher and cleaner.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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Just an update on the life style change we are in. I am being medically supervised by two doctors, 3 R.N.’s, 2-3 nutritionists and a nutritional med tech. I weigh in at the most every 3 weeks usually more often. At the weigh in, my temp, pulse and B/P are also logged.
Silver’s doctor is not only aware of the life style change we are in, but approves because of the improvement in her B/P and Blood sugar count. Women are allowed a higher carb count per day (20 and a little over depending on the person) and she tries to stay within it.
Every 4 months or so I visit with my dietary doc and she gives me a fairly good once over including a BMI. She wants to know what my problem areas are and how I am handling the change and if there are any other physical issues cropping up.
We are on a low carb diet (I’m under 15 carbs a day) that is a modified Atkins. I do not eat rice, taters, or noodles (unless it is Shiratake – GF and no carb) or bread with typical grains (all of these turn to starch which is not good). No sugar or sugar substitutes as the body does not differentiate when it comes to converting.
I am allowed 5-6 blueberries a day. Not ounces, individual blueberries. I can have 24 almonds, again 24 individual almonds. No other fruit (sugar) and no other nuts (carb count too high).
No corn, peas, beets, carrots – sugar issues.
It is a high fat diet, ergo butter is good, meat with marbling, bacon, eggs, fish, etc. Green leafy veggies are good too, but in the list that was given for histamine issues, spinach is in it – that makes our “can have” list a little shorter.
Silver’s issues with allergic reactions are so new that we did not know where to turn for answers so she posted her question here. Fortunately, we have checked the links provided for the histamine issue and it fits so we are adjusting her intake accordingly.
Like Lymetoo said, we don’t know if lamb will be suitable for the elimination diet and I spent a bit of time yesterday trying to find a butcher shop here that sells any. You can find lamb at the regular stores, but the price, per pound is astronomical and cost prohibitive.
It may just boil (no pun intended) down to maybe a chicken breast with the green beans (for Silver) and hope to get the issues under control.
-------------------- I have a good time wherever I go! Posts: 665 | From Lost Wages, NV | Registered: May 2006
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I am going to try cornish game hens! Never eaten them before. Always see them frozen, maybe they are frozen quickly after slaughter, which might halt the accumulation of histamines in the tissues?
I am seriously missing meat. Thanks Lymetoo! Do you have a favorite way to prepare them ?
Posts: 474 | From US | Registered: May 2014
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TxCoord and Silverwolf, your diets are how I've been eating for the last 5 years. Love my shirataki noodles! But add histamine intolerance and take carbs off the menu and things get a little tricky. I am very new to histamine intolerance myself.
Silverwolf, it's so great you are controlling blood glucose without meds! The pea protein is very low in carbs (Now brand has 1 gram) so probably okay. Sometimes protein can cause a glucose spike in some people, sometimes hours later, never know until you try it and test a bit.
Whey protein tends to spike insulin, something to keep in mind. Good for delivering nutrients before/post workout, but can mess with your glucose/insulin levels. Undenatured whey has immune boosting properties, so I add small amounts to my hemp protein shakes.
Posts: 474 | From US | Registered: May 2014
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WPinVA
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I am sorry to hear others are going through this. I started developing allergies out of the blue last year and I thought I was going to lose my mind. First to Bactrim, then to shellfish (but reacted to fish too), then tested positive to xanthum gum. And I had already cut out gluten.
At this point I was terrified to eat. I cut way, way, back to a very basic diet. Chicken, rice, turkey, kale, grapes were on it and not much else. Then I slowly added in foods one by one. I didn't have any more full-on allergic reactions but some foods didn't feel right (oats, bananas, blueberries and some others). Dairy is something I can handle in small doses and only when I don't have a cold or anything.
Still, one year later, I eat a very restricted diet. There are still a lot of things I haven't added back in, either just haven't had a chance yet or am too scared to try. I avoid ALL additives in foods, and try to either avoid processed foods or eat ones with real ingredients I can understand. I am also very careful with the ingredients in my meds and supplements.
I also take SyAllgen daily.
Interestingly, we just redid my allergy test for xanthum gum and now my #s are normal. I haven't had a chance to talk with my allergist yet, so I have no idea what that means.
I've been interested in the posts about histamine and salicylates, and wondering if perhaps this is the common thread for me as well. How did you come to realize this was the issue for you? Is there a test or just going by what you react to?
Posts: 1737 | From Virginia | Registered: Aug 2011
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Silverwolf
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Hello to <<<<< Lymetoo,gz, and WPinVA >>>>>,
Lymetoo, the last link you posted is really info' packed, Thank you!! We are still investigating about Lamb, not sure if it will work,hard to know how fresh it is.
Gz, hope the Cornish Game hens work out,glad Lymetoo mentioned that another possible meat to try.
Since I had to go off Metformin, because of my liver I've been using GlycoX/berberine to help control Blood sugar,as well as a second formula that contains Gymnema.
It takes the special diet,and a combo of things for me to keep it under control. Thanks for the kudos!! We are checking into the pea proteins,and the hemp protein as well. Much will depend on our finances.
WPinVA,sorry to hear that you've been fighting this allergy/histamine mess too. It's no fun. For me,as I am just learning about it, and I don't have access to specialists, and so on, I am going on the basis of personal observation and experience.
My hubby,TxCoord, is a Veteran, and he's got some great Doctors helping w/ the diet. I am not VA so I don't qualify, but he asks questions for me. I go to a Slide Fee Clinic about every four months now.
Unfortunately, The Veterans Admin',is a mess right now,and 10's possibly 100's of thousands of Veterans and their families,are not getting the medical treatment they need,
and 10's of thousands, are being denied compensation for their disabilities. Sadly it hits us in the pocketbook. We are fighting back, but it takes years in most cases.
We feel fortunate, that TxCoord got into the Low Carb diet group, that he describes above.
Those of us, here ,on this topic thread, have been jokingly calling this 'the Nirvana Diet =Green Beans and Water'. Welcome to the club, it's not fun.
Extra hugs for us all <<<<< Lymetoo, gz, UKCarry, WPinVA, Hubby-TxCoord and me-Silverwolfi >>>>>, and anyone else trying to figure this all out.
Jus' Silverwolfi
-------------------- 2006,May-August2006 Dx w/ Lyme/Bartonella/White Matter Lesion Disease on Brain. [ Clinical Dx w/ two positives and several IND's on the tests from Igenex ], Prior Dx of CFIDS/CEBV 1992, and FMS '93-'94 Diabetes*2 Dx 10/'08 Posts: 3581 | From SE Idaho | Registered: May 2006
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gz .. I just throw the chicken in a 9X9 glass pan with water and bake for an hour and 15 min .. give or take a few.
I haven't tried just boiling them because it doesn't appeal to me. I'd really like to get a pressure cooker to do it.
Regarding the proteins, I think it would be safer to go with pea protein than hemp.
I just happened upon the information when I got hives last year. From there I just did a lot of research and realized I had an issue with either salicylates or histamine.
Now I know I have both. My doctor was clueless... as most are. He's very good and very good at finding natural things to help instead of drugs but he knows nothing about all of this.
All of you responding here also need to research Mast Cell Activation Disorder. I have found MANY people on FB pages who have this AND LYME. Evidently Lyme can cause it. (same with the salicylates and histamine)
I have only had a test for histamine thus far and of course it came back "normal." That's the story of my life.
At the root of all of this is the condition of our gut. I know that most of my troubles began when I fell off my candida diet .. though I think I've had this for many many years.
PS .. I'm currently being treated by my allergist who is also clueless but considers this to be an auto-immune problem so at least he treats the symptoms.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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Carol in PA
Frequent Contributor (5K+ posts)
Member # 5338
posted
Silverwolf, I didn't mean to upset you with my questions about your diet. In working with patients, I learned to ask a lot of questions about all aspects of the problem.
Asking questions helps the nurse or doctor figure out all the symptoms, what the patient has done so far that helped (or hurt), and how much they understand about the suggestions they are given.
I couldn't figure out why you were deleting so many foods from your diet when you didn't know if they were actually causing a problem. That's why I asked
===== How much Berberine are you taking daily? If this is keeping your blood sugar within normal range, what happens when you eat peas, carrots, or beets. Does your blood sugar go out of control?
=====
I think I misread what you wrote about salmon, and I thought you were able to eat it, but didn't want to try sardines. I see now that canned fish are included in lists of foods that may be high in histadine.
I did some reading at thatpaleoguy.com and all I can say is yikes.
You asked if tomatoes have protein.....no, they don't. Several people mentioned cornish game hens. Be sure to read this: http://en.wikipedia.org/wiki/Cornish_game_hen It's a small chicken!
Posts: 6947 | From Lancaster, PA | Registered: Feb 2004
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Yes, I know it's a young chicken. It seems to be cleaner than the other crummy chicken in the stores. I figured that because they don't fatten the chickens, they are not "as full" of chemicals and junk.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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Silverwolf
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Member # 9196
posted
Hi there <<<<< Carol', Lymetoo, gz, WPinVA, and anyone else who may be reading >>>>>,
Lymetoo, thanks for the link info', I'll be checking more things shortly!! I greatly appreciate the help finding info', Lately I can't seem to connect things very well.
I actually just had a brief interview, for getting hearing aids, which usually takes about 18 months,so we'll see what happens.
There are a couple of Groups here that are trying to help fill in the gaps for those of us that don't qualify for SSDI/SSI medicare/medicaid ,and so on. So hopefully I can get the hearing aids,and maybe upgraded glasses[mine are over ten years old]. I don't know if it will help the brain fog go away?!
Carol, thanks for coming back in an reading some of the info'! Hubby TxCoord's reply ,will tell you what we do and don't eat in general,on our specialized dietary lifestyle.
As a Diabetic,both hubby and myself, we were counseled not to eat the veggies that I mentioned.The paternal side of my family is riddled w/ Diabetes, the Maternal is not,but Maternal Grandmothers para-thyroid glands literally rotted, after surgery she was treated w/ Diabetic meds and diet, tho' she was not diabetic.
Most of us were told, no corn,peas,beats,or carrots, even with meds or in my case supplements to help keep it under control. My diet and TxC's is a Low Carb Diet, mine is more modified than TxCoords. He can explain more if you need,but his reply should give you the basics.
I will still be checking into pea protein,and a few other things, checking carb counts,sugars and so on.
Carol, Your questions,were seeming almost like an interrogation to me, and it puzzled me.[ My cousin is an RN,as is a friend of ours.].
I am slowly checking learning, and finding out what is causing me issues, and if a food, causes me issues, I will be giving it up. That's why I'm going to do an elimination diet.
Lyme Disease Neuroborellosis[sp?],Bartonella, and Babesia,w/ Diabetes; IBS, IC, FMS/CFIDS symptomologies, tendon issues, and much more have given me an overflowing platter to deal with, like many others here on LymeNet.
Again,I am glad you came back in to check on all this! I've always found your replies helpful before this. Lyme Disease and it's co-infections, can cause so many problems. Sometimes it is discouraging to say the least.
Gz, and WPinVA, hope y'all are doing okay, and can find answers that will help !!!
I'm sure my posts and replies must all be clear as mud,as the old saying goes. Between brainfog, and Neuro' issues w/ brain lesions on my Limbic system area ,among other things ,I am a bit scrambled.
Onward I go, trying not to trip over invisible lint... or as some folk from my former adopted state would say : 'Squirrel... because I'm a Potato.'. Now tho', I live amongst cactus and palm trees so I might be a Coconut, and other random tho'ts.
Back to the allergy/high histamine issues, I'm hoping that I can find helpful answers,and don't have to give up too many foods. Off to research,read,and rest. BBL...
Jus' Silverwolfi here
-------------------- 2006,May-August2006 Dx w/ Lyme/Bartonella/White Matter Lesion Disease on Brain. [ Clinical Dx w/ two positives and several IND's on the tests from Igenex ], Prior Dx of CFIDS/CEBV 1992, and FMS '93-'94 Diabetes*2 Dx 10/'08 Posts: 3581 | From SE Idaho | Registered: May 2006
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Silverwolf
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posted
Jus' me again, the stresses,and 'Lyme ADD' are in full swing for me today... sorry the reply is so long. I can't express things as succinctly as I would like.
Editing in for a moment: Lymetoo, I was just checking on that leaky gut link... wow... definitely gotta research this more. I noticed a lot about proteins.
-------------------- 2006,May-August2006 Dx w/ Lyme/Bartonella/White Matter Lesion Disease on Brain. [ Clinical Dx w/ two positives and several IND's on the tests from Igenex ], Prior Dx of CFIDS/CEBV 1992, and FMS '93-'94 Diabetes*2 Dx 10/'08 Posts: 3581 | From SE Idaho | Registered: May 2006
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ukcarry
Frequent Contributor (1K+ posts)
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posted
I think an elimination diet may help you, eapecially if you make sure that food's high in histamine are also excluded. When I did an elimination diet though, I was so varied as to how ill I was with the Lyme that I couldn't decipher what were food reactions and what weren't!
It may be worth trying out a test period of avoiding the worst histamine culprits and making sure that any meat or fish you eat is bang fresh....and no leftovers. Then, if histamine is involved, you may have 'emptied the bucket' enough to try some of the foods out one by one.
By the way, unless my memory serves me badly, kefir and other fermented foods are very high in histamine.
[ 03-31-2015, 11:04 AM: Message edited by: ukcarry ]
Posts: 1647 | From UK | Registered: Nov 2008
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(yes, fermented foods are high in histamine, ukcarry)
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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Silverwolf
Frequent Contributor (1K+ posts)
Member # 9196
posted
Hello <<<<< ukcarry, and Lymetoo, and Any one else who may be reading >>>>>,
TxC' had to do an errand and a little shopping, but he and I are discussing possible safe alternatives for me,for an elimination diet. Green beans will be a part of it.
Lymetoo, thanks for the newest link, I'll be checking it shortly, as I had an attack of what seems to be 'MCS flu' its been an Imodium couple of days.
And this morning I was checking hair and skin care products... it is scary what is in supposedly safe products. Mine had Salicylates, and also Sorbitol. The Sorbitol can cause diarrhea if one gets much of it.
When I was firts DX'ed w/ Diabetes , some of the Sorbitol and Manitol candies had warnings about diarrhea, if one got to much of the candies. I don't do sugar substitutes at all now w/ the Low carb' Lifestyle diet we're on.
It got me thinking tho', and now I wonder, i'm figuring that maybe Histamine Intolerance and MCS might just be a hand in hand type of thing, w/ Each problem worsening the other.
Gotta check that link... BBL
Jus' Silverwolfi
-------------------- 2006,May-August2006 Dx w/ Lyme/Bartonella/White Matter Lesion Disease on Brain. [ Clinical Dx w/ two positives and several IND's on the tests from Igenex ], Prior Dx of CFIDS/CEBV 1992, and FMS '93-'94 Diabetes*2 Dx 10/'08 Posts: 3581 | From SE Idaho | Registered: May 2006
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Silverwolf
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Member # 9196
posted
Hi there <<<<< Allergies/ and Histamine Intolerance folk >>>>>,
After reading thru lists of symptoms, Good foods,and bad foods ,for allergies and intolerances, I am trying to find some way to balance everything.
For many of us w/ budgetary constraints, this can be/could be very challenging.
I am still blown away w/ all the things that have salicylates in them. Why pray tell,does this aspirin type chemical need to be added to hair care products for instance??
Or why do they add sorbitol [ can cause diarrhea in those who may be sensitive ] to so many things? Chemicals can enter our systems thru our skin and hair too.
And why don't they make safer products,and foods at a lower more economical price? I don't get to get out to go shopping or much of anything else right now. So Hubby/TxC' gets what he can find as afford-ably as possible.
He checks labels,but misses things sometimes as he is totally blind in his right eye. And Neuropathy issues can make holding on to some things difficult for him.
Life is getting more and more challenging, but we keep on keeping on. It's certainly not boring.
Just thinking out loud/in type here. I do hope each one who has been following this topic thread is finding help and answers. I'd love to know what you find that helps,and I will try to share things we find helpful too.
I'll check in later again...
Jus' Silverwolfi
-------------------- 2006,May-August2006 Dx w/ Lyme/Bartonella/White Matter Lesion Disease on Brain. [ Clinical Dx w/ two positives and several IND's on the tests from Igenex ], Prior Dx of CFIDS/CEBV 1992, and FMS '93-'94 Diabetes*2 Dx 10/'08 Posts: 3581 | From SE Idaho | Registered: May 2006
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ukcarry
Frequent Contributor (1K+ posts)
Member # 18147
posted
Lymetoo, are you still following a diet for histamine and salicylate intolerance? Have you seen improvements?
I did cut out histamines as far as possible for a couple of months and am still avoiding some of them, but was not sure how much it helped.
At the moment, however, I am getting more and more eczema, burning mouth syndrome as well as continued gastro problems and am thinking of trying out a low histamine AND low salicylate diet for a period.
Posts: 1647 | From UK | Registered: Nov 2008
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Yikes, looks like there's lots of everyday stuff with salicylates. I think I'm sensitive to those also, most certainly if I ingest them. I saw coconut oil mentioned as something high in it. I used to eat it often straight on an empty stomach and get flushed, I thought it was from it's possible effects on metabolism . Aspirin definitely gets me.
For WPinVA, my histamine intolerance is all observation. I became aware of it four years ago when I started reacting to chicken. I thought it might be one of the aminos in it. Now practically everything sets me off.
Years before that I should have had a clue, when I used to drink at one point I suddenly could not tolerate a single sip of wine or beer, instant histamine intolerance. That was around when I developed fibromyalgia and other lyme sx.
Lymetoo, can you say why some think we shouldn't restrict for too long? I think if we eat foods that cause immune irritation even on occasion, we just add to the inflammation and set ourselves up to having even worse reactions to said foods. Perhaps I'm missing something really important?
I've read some about mast cell activation, that's what got me so worried about all of this to begin with. I have MCS also. Right now I am trying to not irritate this stuff while I get lyme and co's out of the way, I'm really hoping getting rid of lyme will get rid of the histamine issues.
I had dinner the other day and ate a plate of food without having any reactions. Fresh roasted turkey, fresh asparagus, and just a tiny bite of sweet potato. Too bad that with turkey there are always leftovers!
Posts: 474 | From US | Registered: May 2014
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ukcarry
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Sorry to hear that you haven't (yet) reached a point where you can make small deviations from time to time, Lymetoo I suspect that I may be like that. Many of my warning symptoms have been around for years, but are worsening.
Silverwolf, I so agree with you about the unnecessary ingredients added to things. Why does a beta blocker have to have lactose in it? Why do so many medications and foodstuffs add aspartame, known to be one of the most risky sweeteners?
I hope everyone manages to find something to treat themselves with for Easter!
Posts: 1647 | From UK | Registered: Nov 2008
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quote:Originally posted by gz: Lymetoo, can you say why some think we shouldn't restrict for too long? I think if we eat foods that cause immune irritation even on occasion, we just add to the inflammation and set ourselves up to having even worse reactions to said foods. Perhaps I'm missing something really important?
- I believe it's because the green foods are healing .. but it depends upon how severely the foods are affecting you.
The Low Histamine Chef (Yasmina) was healed by adding green foods and foods that are natural anti-histamines. (for example: broccoli)
It's really complex and I don't see how I can do what she did. I just haven't been able to see a way to do it since I react too severely.
Also, if you over-use anti-histamines, you run the risk of making things worse because anti-histamines reduce the DAO enzyme which is needed to stop the histamine reaction. (sheesh!)
So I have been sprouting my own pea sprouts because they provide natural DAO. You can also take DAO supplements but I don't tolerate Vit C and all of them contain C.
One thing I've been using is Living Clay .. it's a bentonite clay. It seems to be helping.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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Silverwolf
Frequent Contributor (1K+ posts)
Member # 9196
posted
Hello <<<<< Lymetoo, ukcarry, gz, and any other Lyme Family reading >>>>>,
Lymetoo, was trying a sample of Zantac, when this round of chemical flu hit, had a strange rash on my chest show up. So I've been getting things under control as best I can,and will try again in a day or so. i hope it will help.
Thanks for the new links, I'm collecting and reading the different links, to try to understand what's up and how to treat this mess.
Ukcarry, About added ingredients and fillers, I want to know too,why do they put lactose, sorbitol, and other stuff. There are odd things in skin care/hair care products too.
That sorbitol is even in a cream that TxC' and I use to fight heat rash,and athletes foot. Why does it need to be in that product. LOL, we're certainly not going to need it to taste good. It's not for ingesting!
Gz, how are you doing? Are you feeling any better? I know the Lyme and Co-infections is difficult to fight, and sometimes what helps one or two folk wont help the next one.
The foods lists are, a handful and a half to deal with, what is safe, will something else affect us suddenly that was okay before?? At least they are a starting point.
I am also going hunting for links on safe hygiene products, skin and hair care and so on. Way to many of the products I've been using have ingredients that just are not good for us. We've tried to use caution,but they keep adding in junk.
Lymetoo, aging and reduced finances is scary, I fall in between ,on many things. To young to get this benefit,to old to qualify for that one. TxC' is 4 years, 11 months and one day older than I am.
We've been looking into options since we moved, and there aren't many available. I will be on a list for hearing aids soon, but it can take up to 18 months. And it will depend on if available vendors can meet the need.
Tinnitus/Hyperacusis and Musical Ear Syndrome w/ worsening Nerve deafness issues can be hard to work around. I've heard that the specialty aids to cancel-out/equalize some of the tones that ring in the ears are very expensive.
Figured it is worth taking a chance ,if they can find something that helps any. We cannot afford it on our own at this time.
Gotta go, TxC' is back from clinic and working on a late lunch for us. BBL...
Jus' Silverwolfi
-------------------- 2006,May-August2006 Dx w/ Lyme/Bartonella/White Matter Lesion Disease on Brain. [ Clinical Dx w/ two positives and several IND's on the tests from Igenex ], Prior Dx of CFIDS/CEBV 1992, and FMS '93-'94 Diabetes*2 Dx 10/'08 Posts: 3581 | From SE Idaho | Registered: May 2006
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Silverwolf
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posted
Just Silverwolfi here,
Wow, that link- slide share on Working with Histamine overload has lots of info', even chemicals to avoid in hygiene skin care products and such.
The other one on mast cells, from Natural Nutmeg link is also very interesting!!! Thanks again for finding these <<<<< Lymetoo >>>>> !!!
Jus' me
-------------------- 2006,May-August2006 Dx w/ Lyme/Bartonella/White Matter Lesion Disease on Brain. [ Clinical Dx w/ two positives and several IND's on the tests from Igenex ], Prior Dx of CFIDS/CEBV 1992, and FMS '93-'94 Diabetes*2 Dx 10/'08 Posts: 3581 | From SE Idaho | Registered: May 2006
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You are welcome .. Have you been able to figure out if you are reacting to the salicylates?
I know I am for sure and found out that what I put on my skin is way worse than what I eat.
In other words, making sure there are no salicylates in my shampoo or skincare makes me way more functioning than just avoiding them in foods. Hope that makes sense.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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Silverwolf
Frequent Contributor (1K+ posts)
Member # 9196
posted
Hi <<<<< Lymetoo, and Others Fighting the Histamine Intolerance and Allergies Issues >>>>>,
Happy Easter and Passover to All !!!
Lymetoo, I'm still not sure what all is causing this, but am suspicious it is a combination of things. And I agree,it is wise to use caution w/ skin and hair products, cleaning products as well.
I am highly suspicious, that certain combo's of chemical may set off the problems. I am eating carefully,and trying to note any problems and symptoms that show up.
Really suspicious of a texturizing spray I used, it has salicylates in it, as well as oils of several herbal plants. I had some rashes show up, still some on my arm. Behind my ears and on my sternum-chest area is better, it was broken out a bit.
I'm gonna have to print up the foods, safe and not safe, and chemicals lists, so we can check when we purchase items. Then we can find safe foods and hygiene products.
I've even had problems w/ women's sanitary napkins/incontinence liners. So had to go to using cloth products [a friend made them].
I think it is the bleaches and chemicals they use to make the products. The symptoms can be exceedingly uncomfortable to say the least.
Have to get control over all these issues tho', else I'm stuck in the house most days W/ 'IBS'/IC and food poisoning like symptoms.
So I will continue to search and see what I can find that I can tolerate, and is economical.I am going to try Zantac again this evening, and hope for a good response, if it helps that'll be fantastic!
Here's hoping that all Lyme folk who are suffering with the HI/ and Allergy attacks can get some relief.
Jus' Silverwolfi
-------------------- 2006,May-August2006 Dx w/ Lyme/Bartonella/White Matter Lesion Disease on Brain. [ Clinical Dx w/ two positives and several IND's on the tests from Igenex ], Prior Dx of CFIDS/CEBV 1992, and FMS '93-'94 Diabetes*2 Dx 10/'08 Posts: 3581 | From SE Idaho | Registered: May 2006
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WPinVA
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posted
For skin products, you may want to check out the Free & Clear line. It's worked for me.
Posts: 1737 | From Virginia | Registered: Aug 2011
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WP ... I have the Free and Clear shampoo but I am reacting to it. I think it has coconut in it, which is high in salicylates. (sigh) I have yet to find a shampoo I can safely use.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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Silverwolf
Frequent Contributor (1K+ posts)
Member # 9196
posted
Hello <<<<< WPinVA, and Lymetoo >>>>>,
The next time I am able to get out, I'll see what I can find that is, hopefully, safe, and economical.
I had heard of Free and Clear shampoo, but have not used it. Have to check more on what is safe, and hope I don't react to anything else.
Lymetoo, that Healthy Pixels link is really info' packed, all tho' some of it seemed almost contradictory. it truly is a complex problem.
The various links are really full of information tho'. So that is why we want to print some of the lists of safe/unsafe foods and chemicals.
That will give us a guide to refer to,and maybe help identify some of the problems.
I'll be glad to get this puzzle figured out, hopefully fairly soon. Between Lyme and Co's, Histamine Intolerance, Allergies, Diabetes, and general stresses. I feel like a prisoner in my own home.
I appreciate the information links greatly!!! Here's hoping that each of us, suffering w/ these problems can find an answer to help us toward healing and betterment of our health.
Jus' Silverwolfi here
-------------------- 2006,May-August2006 Dx w/ Lyme/Bartonella/White Matter Lesion Disease on Brain. [ Clinical Dx w/ two positives and several IND's on the tests from Igenex ], Prior Dx of CFIDS/CEBV 1992, and FMS '93-'94 Diabetes*2 Dx 10/'08 Posts: 3581 | From SE Idaho | Registered: May 2006
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posted
Lymetoo, are there conditioners you tolerate well? Many hair types do well being washed with conditioner instead of shampoo. I use a cheap silicone-free conditioner for scalp washing, I had to give up sha mpoo a long time ago.
Sensitivity to topical salicylates easily explains the raging dermatitis I'd get from exposure to certain lotions! Now I mostly use pure oils or make my own skin care products because of the reactions and sensitivities.
Posts: 474 | From US | Registered: May 2014
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posted
Silver.. I found it a bit confusing too. I need to read it again.
gz .. I never use conditioners. I doubt I would have any better luck finding a clean one. Last year I sent back the shampoo from Cleure, but I may need to order it again!!
I didn't like it because it didn't lather at all. Just really wasn't happy with it, but I didn't realize how sensitive I was... or at least how sensitive I would become.
I use safflower oil on my skin. That is all I use.
gz .. What is the conditioner you use?
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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posted
It's a cheap one from the Dollar Tree. Spa Haus I think, comes in a green bottle. Sometimes I get scared it's discontinued because it disappears for long stretches. Tried lots of conditioners, it's the only one my scalp agrees with.
Conditioner doesn't lather like shampoo, but it is very cleansing. Another alternative for hair might be washing with Indian herb powders like shikakai and aritha, can add others like brahmi, tulsi, etc. Aritha is soapberry, or soapnut, which is what I use for laundry. Soapnuts are very gentle, can use them for washing body, hair, or even general cleaning in the home. They are also extremely cost efficient.
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Silverwolf
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posted
Hi there <<<<< Lymetoo, gz, and any others on the quest to stop the Histamine Intolerance problem >>>>>,
Gz, the Spa Haus conditioner,at least may give an option, I've heard of soap nuts before,but don't know much about them. Have to investigate and see what we can find here.
I hope you're feeling better, and getting some helpful options for treatment! I'm hangin' in here, trying to figure out for sure the causes for me.
Hey, Lymetoo, I am starting the search for skin and hair products that wont break me out, or make dandruff- eczema flare. So I've been watching for ideas here.
Are you feeling better? Sorry to hear that you were having issues over Easter. I don't get out in the mornings, so TxCoord let me know about services. Lately I haven't been out in the afternoons either, since this HI/allergy mess has gotten bad.
We are looking in to recorded messages from our church services. They had some sort of problem awhile back but I think it's up and running again. Until I can get out a bit more often, that will have to do.
I am hopeful that changing what I eat and the products I use will calm all this down. It is taking some time for us to find out what is setting it all off.
This is a great thing about LymeNet, we can come and ask questions and share information. it's a huge huge help!!!
Jus' Silverwolf here
-------------------- 2006,May-August2006 Dx w/ Lyme/Bartonella/White Matter Lesion Disease on Brain. [ Clinical Dx w/ two positives and several IND's on the tests from Igenex ], Prior Dx of CFIDS/CEBV 1992, and FMS '93-'94 Diabetes*2 Dx 10/'08 Posts: 3581 | From SE Idaho | Registered: May 2006
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quote:Originally posted by gz: Aritha is soapberry, or soapnut, which is what I use for laundry. Soapnuts are very gentle, can use them for washing body, hair, or even general cleaning in the home. They are also extremely cost efficient.
- Oh, thank you!!! I have soap nuts! I love them. Not sure they are salicylate free though. Hmmm.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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Silver, yes I'm feeling better. I was not happy about having to miss Easter Sunday! GRRRRR
Sorry you haven't been able to go to services. I absolutely HATE missing. I did find some good services on TV that morning.
Here is the link to the soap nuts. I bought a 2 lb bag more than 2 yrs ago and it is still half full!!! Now that is cheap!!
Be sure to order extra bags (the small ones) since the soap nuts last so long and you don't want to pay shipping to order new bags. They don't wear out very quickly, but I like to share with friends sometimes to introduce them to the nuts. I ordered 5 or 6 bags.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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Silverwolf
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posted
Hi <<<<< Lymetoo, gz, WPinVA, and Any Other Readers too >>>>>,
Thanks for the Soap-Nuts Link, Lymetoo!! I'm glad your feeling better!!
I am hopeful, that finding out what foods/chemicals are causing me/us issues will ease the IBS/IC issues,enough that I can go to services,I miss it a lot.
I don't go, because I wouldn't be able to stay in service I'd be in the restroom. Same thing with movie going. We just wait till the movie comes out on DVD now. When we can find a decent movie that is.
I am excited to have the food and chemicals lists listed in this thread, gives us a starting point. Awhile back I was at a church supper, and the cleaning chemicals for the restrooms got to me. Just Pine-sol type stuff, but it was hard to breathe.
Well, I'm off to check other links and info' for now...BBL
Jus' Silverwolfi
-------------------- 2006,May-August2006 Dx w/ Lyme/Bartonella/White Matter Lesion Disease on Brain. [ Clinical Dx w/ two positives and several IND's on the tests from Igenex ], Prior Dx of CFIDS/CEBV 1992, and FMS '93-'94 Diabetes*2 Dx 10/'08 Posts: 3581 | From SE Idaho | Registered: May 2006
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posted
The SpaHaus does contain preservatives, the evil "MI," I think, but I do okay with it. Any conditioner can be used, they can work quite well diluted 50/50 or more. Not sure about the salicylates, that's more for me to learn.
Silver, so far I seem to be doing okay with lyme tx. Many symptoms much better, traded for new stuff like histamine issues! A little nervous, going to start treating bart in the near future.
Posts: 474 | From US | Registered: May 2014
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posted
gz .. I would not be able to use something like that. Isn't it made in China? If it has ANY fragrance then it's OUT for me.
I went ahead and ordered the Cleure shampoo today.
Good luck with the bart treatment.. yuck.
Silver.. I would do an elimination diet and go from there. I eliminated sals and histamine (nothing left, trust me). Then added foods that I might be able to eat. You have to get things calmed down first.
I just found out that nearly all water filters have coconut instead of charcoal. Since drinking only bottled water the past few days, I'm feeling better and my eczema is better too.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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posted
Lymetoo, it's made in Canada but it does have fragrance :/. I feel like I'm walking on thin ice with many of the products I use, since I seem to keep developing worse sensitivities out of nowhere.
I often wonder if a modified fast would help my gut heal enough to blunt any more reactions, except I'm pretty active and restricting my diet to liquids would be too much torture right now.
Thanks for good luck, I just need to get it started and get it over with!
Agree with Lymetoo on the elimination diet. That was/is how I'm able to figure the foods I'm sensitive to. If I slip or have a histamine reaction I go back to my protein powder and veggies and start all over again.
Little slips are causing me smaller reactions, so I know eating clean is helping me clear histamine. But even little slips still tickle the immune system, even if there is no immediate reaction, so best to abstain from offending foods so gut can rejuvenate with rest.
Posts: 474 | From US | Registered: May 2014
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Silverwolf
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posted
Hi there <<<<< gz, Lymetoo, and anyone else researching this *HI/and-allergy issue >>>>>,
TxC' and I are gearing up for me to do an elimination diet. We are waiting on our payday,and will see what we can do.
I'm doing a shorter version elimination diet right now, green beans,and skinless chicken breast. I'm temporarily weaning off supplements,and hoping I wont have problems with any of them when I go back on.
I have tried Zantac twice a couple days at a time. I keep getting the diarrhea, trying to figure it out . Some years ago I had the same thing happen w/ Prilosec. I'm gonna wait awhile and then try the Zantac one more time.
I am somewhat at a standstill regarding treatment of Lyme and Co's, and not a whole lot better. So if I can figure this HI/allergy mess out, maybe the supplements I will use will work better in my system.
Oh, Lymetoo, you mentioned drinking bottled water. We by bottled water here,as the tap water isn't safe to drink [unless you are in the resorts]. That actually brings our water bill, from $13 up to $23 dollars a month. Still that's not terrible.
I just wish they'd get the water issues fixed, water was off again recently. That's 30 times now between Nov.2012 and the last part of March 2015.
[Just seeing water in the gutter on our side of the street is stressful.We start checking faucets and filling containers.]
I found it interesting that coconut is used in most filters now. I had thought most were doing charcoal. That's scary, how many folk w/ allergy or HI problems may be getting ill from it.
Thinking here, I still need to check on the pea proteins,hemp and such after payday. Somehow,I've got to get this under control.
Aaaarghh....OwoooWoooooo , it's frustrating but, I'm not gonna give up.
Jus' Silverwolfi
-------------------- 2006,May-August2006 Dx w/ Lyme/Bartonella/White Matter Lesion Disease on Brain. [ Clinical Dx w/ two positives and several IND's on the tests from Igenex ], Prior Dx of CFIDS/CEBV 1992, and FMS '93-'94 Diabetes*2 Dx 10/'08 Posts: 3581 | From SE Idaho | Registered: May 2006
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I often wonder if a modified fast would help my gut heal enough to blunt any more reactions, except I'm pretty active and restricting my diet to liquids would be too much torture right now.
- Yes, a modified diet will help. No need for a liquid diet .. no need for hemp. I would be leery of that one, Silver. If you will back off the chemicals, salicylates and high histamine for about 6 wks you will see a huge difference provided that is the problem for you.
You will then know. Then start adding back foods one by one to see how you react.
Silver, saccromyces boulardii will stop me up in no time.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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posted
How green smoothies can devastate your health:
Indeed true for me .. and add in the issue of their being high in salicylates.
-
Green smoothies are all the rage these days with many people consuming them every day or at least several times a week in an attempt to get healthy and “alkalize” the body.
Whenever I visit the cafe of my local healthfood store, there are usually several people in gym clothes lined up to order a green smoothie to sip after their workout.
Green smoothies are made by blending large amounts of raw leafy green vegetables with fruit to soften and sweeten the taste. Typical vegetables included in green smoothies are kale, spinach, swiss chard, collard greens, celery, broccoli, and parsley.
Is the green smoothie fad a truly healthy habit over the long term or can consumption of these seemingly healthy drinks in fact contribute to serious health problems? Raw Leafy Greens Contain High Oxalate Levels
Frequent consumption of large quantities of raw, leafy green vegetables as occurs when a person drinks green smoothies can be deceiving at first as a person will probably initially feel great after adopting this habit particularly if he or she is coming off a highly processed, nutrient poor diet.
The vegetables used in green smoothies are almost without exception high oxalate foods. Over time, a high oxalate diet can contribute to some very serious health problems particularly if you are one of the 20% of people (1 in 5) that have a genetic tendency to produce oxalates or if you suffer from candida or other fungal challenge. In those cases, a high oxalate diet can deal a devastating blow to health. Oxalate Toxicity Not a New Problem
Humans have suffered the effects of oxalate toxicity since ancient times. A 2000 year old mummy from Chile was discovered through x-ray analysis to have an oxalate kidney stone about the size of a golf ball!
Oxalates can be deposited almost anywhere in the body and wherever they land, pain or worse is the result.
75-90% of kidney stones are oxalate related with 10-15% of Americans afflicted at some point during their lives. As the star shaped crystalline stones pass from the kidney, they cause pressure and pain in the bladder and urethra and can actually tear up the walls of the urinary tract. Oxalate Stones Can Form in Any Tissue
Oxalate stones can show up in any body tissue including the brain and even the heart.
Oxalate crystals resembling shards of glass which become lodged in the heart cause tiny tears and damage to this vital muscle with every single contraction pumping life giving blood to the rest of the body.
Oxalate crystals which end up in the thyroid can cause thyroid disease by damaging thyroid tissue.
A frequent location for oxalates to end up is skeletal muscle which will cause pain with even normal movement and make exercise nearly impossible. Dr. William Shaw, Director of The Great Plains Laboratory for Health, Nutrition and Metabolism who has studied oxalates extensively, is convinced that oxalate toxicity is a factor in fibromyalgia the pain of which can absolutely devastate a person’s life. Vulvodynia – Painful Sex
Cases of women experiencing painful sex are on the rise with oxalates a possible culprit.
Vulvodynia, a condition causing pain in and around the vagina, is linked to oxalates deposited in this delicate reproductive tissue. Oxalate crystals are very acidic and they cause irritation, burning, and stinging sensations for affected women with an accompanying feeling of rawness whenever they engage in sexual relations. Oxalates Are Fungal in Origin
A surprising finding is that oxalates are produced in large amounts by fungus. Large stones have been found in the sinuses and lungs of people suffering from systemic fungal infections such as candida or Aspergillus.
Therefore, anyone who suffers from any sort of candida or other fungal challenge like fungus nails or dandruff would be wise to be very concerned about oxalate intake via the diet.
Consumption of green smoothies would not in any way contribute to improvement of health in these situations. Given that the majority of people today suffer from gut imbalance/fungal issues caused by antibiotic and prescription drug use along with consumption of processed foods, a high oxalate diet which includes green smoothies is an unwise practice for virtually everyone. Does Cooking Destroy Oxalates?
Would it be safe to prepare green smoothies with leafy greens that have been lightly steamed first?
Not really, because oxalates are extremely stable and while cooking high oxalate foods like leafy greens (and discarding the cooking water) does reduce the oxalate level, it remains quite high.
Since green smoothies are consumed so frequently by those who swear by them, a light steaming of the veggies first would not make a significant difference over the long term. Healthier Alternatives to Green Smoothies
The best course of action for health, then, is to opt out of the green smoothie fad.
If you enjoy green leafy vegetables, enjoy them in moderation in salads or cook them and carefully drain and discard all the cooking water – never use it in soups and sauces! Be sure to serve cooked leafy greens with a healthy, traditional fat like butter (not margarine or any factory fats synthesized with rancid and/or GMO vegetable oils) for maximum absorption of minerals.
Another option is to drink raw cultured vegetable juice or eat raw cultured vegetables. Not only will you get enhanced nutrition from the culturing process which adds enzymes and nutrients, but you will also get a beneficial and therapeutic dose of probiotics to help balance gut function and improve digestion.
Another option is to do shots of fresh, green wheatgrass juice. Wheatgrass juice is very low in oxalic acid. Click here for my favorite green juice recipe using wheatgrass juice.
If you already are suffering from some of the ailments described in this article and suspect a high oxalate diet which includes green smoothies or a daily spinach salad may be the cause, stop this practice immediately and consult with a holistic physician who can guide you on the road to recovery and how to best rid your body of the oxalate crystals that are potentially irritating one or more of your body tissues.
Sarah, The Healthy Home Economist
Author, Get Your Fats Straight
Sources:
The Role of Oxalates in Autism and Chronic Disorders, William Shaw PhD
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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Silverwolf
Frequent Contributor (1K+ posts)
Member # 9196
posted
Hi there <<<<< Lymetoo,and any Readers learning like we are! >>>>>,
Thanks for the 'green smoothy' dangers link, I could only read a page of it, have to try again later.
I have always been leery about any drink that looks like it came from scraped lawnmower blades. Not a fan of the green stuff in smoothy form.
I was checking for something to use, on occasion, milk shake like,low cost w/o milk and a bunch of chemicals and No Soy,
The info' on Pea protein that I found,said there is not enough DAO in most of them,or no way to measure amounts to keep it consistent.
Still learning here, but the nutritionist dieticians that are working w/ TxC' and others in the low carb program,said please don't juice everything. We need the chewing action, and for our bodies to break down the fibers.[TxC' could explain it better, don't think I explained it well].
Not saying never to juice anything,but try to use a balanced approach. Right now,I am not adding anything new. Just finishing a mini- elimination diet,and trying to be gentle w/ my tummy and intestines.
Have a bit longer to wait for our payday, then TxC' can check on more safe foods. I'll wait a couple weeks and then try again, on elimination diet. But for my next meal,I get to try one thing I haven't been eating for a bit, probably some beef.
I am trying to be careful to stay away from chemicals, anything I don' have to use, I don't. I may end up getting gloves for dish washing at the very least.because anymore I never know what will set things off.
Pine cleaners,and *lemony perfumes, are a no go,no do, for me...had to many reactions to them. I don't know if it is *lemonine, salicylates or??? I am hoping that it isn't a salicylate problem, but on my next elimination diet...I hope to find out.
My other issue, the diarrhea, I will try that s. boulardii , part of the issue, is if it stops, then it backs up to severe constipation, which sets the IC going crazy. And cramps my intestines fiercely. So I am looking forward to identifying the causes.
We continue to pray for a decent answer from the VA, so many Vets and their families are fighting to get their proper disability benefits. It would make life a lot easier for us, if we had a better financial situation.
I'm going to try that don't drink the 'green smoothies' link again. if it wont work right I'll let TxC' see if it's our laptop,or the site. I saw something recently but don't usually drink green smoothies so hadn't checked it closely.
Jus' Silverwolfi here
-------------------- 2006,May-August2006 Dx w/ Lyme/Bartonella/White Matter Lesion Disease on Brain. [ Clinical Dx w/ two positives and several IND's on the tests from Igenex ], Prior Dx of CFIDS/CEBV 1992, and FMS '93-'94 Diabetes*2 Dx 10/'08 Posts: 3581 | From SE Idaho | Registered: May 2006
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posted
True about the DAO and the powdered protein. I'm still trying to sprout my own peas. I keep ruining the batches, one way or another.
I use Dr Bronner's UNSCENTED for cleaning. I add baking soda if I need to scrub something.
I have the same issue with diarrhea and constipation. It's a balancing act.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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Silverwolf
Frequent Contributor (1K+ posts)
Member # 9196
posted
Hello <<<<< Lymetoo, and any Folk following this Thread as well >>>>>,
Sorry to here you have this 'IBS' symptomology too. Hard to balance it all sometimes.
I'll be looking up the info' on the Dr. Bronner's in a bit, and we'll see what's affordable for us come payday.i want to check out those soap nuts and bags too.
I tried a bit of a favorite beverage, after my mini-elim' diet, it didn't go well. So TxC' and I will plan some more elim' diet for me soon.
Have to figure out a safe way to take my herbal sugar control meds, for awhile until I know if that will behave. I can get away w/ a couple days off the meds, but I don't like to mess w/success.
Need to check on a couple more things before TxC' heads back here from church.
Jus' Silverwolfi here
-------------------- 2006,May-August2006 Dx w/ Lyme/Bartonella/White Matter Lesion Disease on Brain. [ Clinical Dx w/ two positives and several IND's on the tests from Igenex ], Prior Dx of CFIDS/CEBV 1992, and FMS '93-'94 Diabetes*2 Dx 10/'08 Posts: 3581 | From SE Idaho | Registered: May 2006
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WPinVA
Frequent Contributor (1K+ posts)
Member # 33581
posted
Thank you for posting the link on green smoothies. that was fascinating.
I don't have most of the ailments mentioned, but I was drinking a lot of green smoothies when all these new allergies/sensitivities popped up. Do you think it might be related?
Posts: 1737 | From Virginia | Registered: Aug 2011
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Silverwolf
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posted
Hi there <<<<< WPinVA, and other Reader/Repliers >>>>>,
I'm not in the medical field, but it wouldn't surprise me, if the green smoothies might trigger a Histamine Intolerance/or-allergy attack type problem.
I finally got to read it on Facebook, Thanks <<<<< Lymetoo >>>>>, it wouldn't move past the first page on the link here,for us.
The whole problem can be disconcerting with HI issues, and what to eat/avoid. It can be difficult, especially, to figure out specifically what one can eat and how to vary the diet somewhat, without triggering a problem.
I hope each one wading thru the puzzle of these issues, is able to find help and relief soon!
BBL jus' Silverwolfi here
-------------------- 2006,May-August2006 Dx w/ Lyme/Bartonella/White Matter Lesion Disease on Brain. [ Clinical Dx w/ two positives and several IND's on the tests from Igenex ], Prior Dx of CFIDS/CEBV 1992, and FMS '93-'94 Diabetes*2 Dx 10/'08 Posts: 3581 | From SE Idaho | Registered: May 2006
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![[Frown]](frown.gif)
, rough night lastnight]![[lol]](graemlins/lol.gif)
![[bonk]](graemlins/bonk.gif)
. I've done that enough times, hopefully I've learned my lesson. Taking it easy with the kind and gentle hemp protein today.
![[Smile]](smile.gif)
, you warned me back in 2006 that Oat/Aveenen was a Gluten,and I went Gluten Free. I have unwittingly got gluten w/o knowing it, because of hidden gluten. But I stay as far from gluten as possible.![[Big Grin]](biggrin.gif)
?
![[group hug]](graemlins/grouphug.gif)
![[Roll Eyes]](rolleyes.gif)
. Aspirin definitely gets me.
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