Topic: CT test on Thursday for me... Scared...and questions.
Silverwolf
Frequent Contributor (1K+ posts)
Member # 9196
posted
Hi there <<<<< LymeNet family and researchers >>>>>,
I try not to worry, but the last test I had at this place, an MRI then, I had a Myoclonus seizure/spasms and cramping.
If it happens this time, TxC' is going to call an Aid car. This CT is abdominal pelvic area, with Barium contrast.
Had something similar,many years back, not fun. Hopefully they've improved the tests and chemicals since then.
How can I minimize the effects of these chemicals,and safely detox? Has anyone here had this test, and was it helpful???
It is a fairly long test,and I cannot lay flat for very long. They will help me move around some,and use some pillows and strapping to get the angles needed,for the CT info'.
Nervous about what they will find, hoping it isn't anything serious. We wanted to do this after TxC's surgery, but there was scheduling conflict.
Right now he has an MRI on his Knee, the 5th,and I have this the 7th. While we both wait to hear,if my dad will finally be buried.
And then TxC's surgery is middle of this month,for his knee repair/replacement.
I'll be so glad when this is all done, and we are mending. I am hoping I don't need mores surgery. I need to be able to help my Hubby.
Jus' Silverwolfi here, trying not to be super-stressed Chick'nWolfi
-------------------- 2006,May-August2006 Dx w/ Lyme/Bartonella/White Matter Lesion Disease on Brain. [ Clinical Dx w/ two positives and several IND's on the tests from Igenex ], Prior Dx of CFIDS/CEBV 1992, and FMS '93-'94 Diabetes*2 Dx 10/'08 Posts: 3581 | From SE Idaho | Registered: May 2006
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me
Frequent Contributor (1K+ posts)
Member # 45475
posted
Do you have a LLMD whom you could ask about this? Iv glutathione pushes greatly help me detox, but they must be prescribed by a doctor. I don't know if it would help in this situation, though. Just a thought.
Many people on here swear by coffee enemas. Not sure if this would help either.
One of my friends with Lyme gets very anxious with tests and has difficulty laying down for a long time during tests-- she takes anxiety medicine prior to such tests. I dunno if that would be better or worse for you.
I'm really not familiar with what you are talking about, but I'm just trying to brainstorm some ideas that you could hopefully discuss with a doctor.
Hopefully others will chime in.
-------------------- Just sharing my experiences, opinions, and what I've read and learned. Not medical advice. Posts: 1431 | From USA | Registered: Mar 2015
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Silverwolf
Frequent Contributor (1K+ posts)
Member # 9196
posted
Hi <<<<< me >>>>>,
Unfortunately, we do not have access to LLMD's/LLND's here, nor do we have the finances at this time.
It would be at least a days drive to find someone,and then the wait times and so on[anywhere from 9 to 18 months wait,as a new patient] . And with TxC's Surgery looming, plus other appointments we must keep, we are sort of on our own.
So that is why I am asking questions here, thanks for the tho'ts,and ideas, hopefully others may have some ideas as well.
Jus' Silverwolfi
-------------------- 2006,May-August2006 Dx w/ Lyme/Bartonella/White Matter Lesion Disease on Brain. [ Clinical Dx w/ two positives and several IND's on the tests from Igenex ], Prior Dx of CFIDS/CEBV 1992, and FMS '93-'94 Diabetes*2 Dx 10/'08 Posts: 3581 | From SE Idaho | Registered: May 2006
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posted
All I know about is Vitamin C .. but you may not be able to take that with your IC.
(I know I can't)
The CT should go much more quickly than the MRI?
Will be praying for you... keep us posted!
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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Silverwolf
Frequent Contributor (1K+ posts)
Member # 9196
posted
Hi <<<<< Lymetoo >>>>>,
Thanks for the tho't,as to Vit.C, I use it but on a limited bases.
Any bit of tenderness in the IC region,and I'm off of anything acidic for awhile.
Will be tapering off supplements over the weekend,just a handful of supps' and my two meds. Thur. will have a light, early breakfast snack, unless instructions say not too. Then a four hour fast except the second Barium Shake at 1 to 2 hours before.
Will not have full info' on the Barium- food and water restrictions ,'til Tuesday p.m., I've had an adhesion for years, that flares up,since several abdominal surgeries. Am wondering if it could be acting as a blockage,or cysted up. PCP is concerned, that something maybe causing one or more blockages.
Urinary retention could definitely cause infections, and cysts or blockages in various areas can cause this. Blockages may include one of more kidney bladders stones as well.
I am praying it is a short test with out complications. They claim around 40 minutes usually, but longer if they need extra info' as to clarity of pics[x-rays?].
I have not lain flat for more than a few minutes in many years. I get sinus issues, that drain and cause problems. So they try to help me keep that calm. Sinus secretion is acidic, and can do damage, as well as stomach acid- reflux [mine appears to be the sinus issues].
So we'll need some sort of help for neck upper back during test. I'll be glad when it is over,and hopefully,prayerfully,it wont be any serious issue.
I'll try to keep updated, as I did below, in my other post on the 'Newest culture of infection'... post [or however I called that].
Right now, I sorta feel like a rock in a gemologists tumbler, getting constantly turned tumbled and sanded from all sides. I have just had to give this whole basket-load to God Our Source of True Love. Without him and the prayers of others too,I couldn't handle anymore.
So trying to keep updated, get Burial info' for Dad, and do medical appointment paperwork for two doctors[thank goodness TxC' helps a lot]. And then getting ready for TxCoords surgery as much as one can.
Thanks for any ideas or thot's from <<<<< You/Lymetoo and me-from USA as well >>>>> . Thanks in advance for tho'ts info' or ideas from any other LymeNet family who may choose to reply here as well.
Our LymeNet family,and Our Church family, are helping me keep it together!!! Y'all are a huge help. Thanks so much ,words are not enough.
Jus' Silverwolfi here
-------------------- 2006,May-August2006 Dx w/ Lyme/Bartonella/White Matter Lesion Disease on Brain. [ Clinical Dx w/ two positives and several IND's on the tests from Igenex ], Prior Dx of CFIDS/CEBV 1992, and FMS '93-'94 Diabetes*2 Dx 10/'08 Posts: 3581 | From SE Idaho | Registered: May 2006
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sammy
Frequent Contributor (5K+ posts)
Member # 13952
posted
I'm sorry you are going through this. I've had this test and others similar.
Usually for any CT of the abdomen they make you lay flat on the table, head in the foam cradle, and they typically put a big foam wedge under your knees to help relieve pressure off your back.
I have very bad back problems, including a more pronounced curve. (This is due to my previous 10 vertebral fractures that did not heal correctly.) So all CT scans and MRIs are torture for me.
With your sinus issues, they might be able to prop your head up more than usual. They could fold towels under your head so that you still fit in the cradle, so your face will not be too close to the top of the scanner when pulled into the machine, and you will get the extra bit of elevation that you need! ( You may have to ask specifically to try this...).
At least the CT scan does not take anywhere nearly as long as an MRI! If you follow the breath holding instructions and the tech gets good images, it can go pretty fast.
Also, I never drink all of the fluids because my stomach is smaller (more would have made me vomit!). The contrast still was enough to fill my whole GI. So they were always able to get good images for my doctor.
Sorry I don't have any detox thoughts. I just always drink a lot to flush the junk out. I like Gatorade and Powerade Zero.
Blessings!
Posts: 5237 | From here | Registered: Nov 2007
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half life of the barium sulfate.
Posts: 764 | From Northwest | Registered: Sep 2014
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Silverwolf
Frequent Contributor (1K+ posts)
Member # 9196
posted
Hi <<<<< sammy,and lookup >>>>>,
Thanks for the tho'ts and info, in your replies! I haven't tried Chlorella, will have to wait awhile to get that,and test is this Thursday.
I'll be keeping up with liquids and fiber too.
Sammy, your description sounds a lot like my MRI from December. I think, I hope the machine circumference for the CT is bigger around,s the MRI was very tight and crowded.
In Sept. I'll be checking in with a new to us Neurologist, to find out what may be causing the Myoclonus[ course I know, but they don't accept the LD Dx,Seronegative and all].
The last Neuro Dr. wouldn't agree with the Medicaid prices so did not do Diagnostic testing,just a blood test, had me walk back and forth, touch my nose ,balance with my eyes closed etc. Then apologized,and dismissed me as his patient.
My PCP,ordered the brain MRI, they both didn't think left Mastoiditis ,or demyleniating brain lesions,were a big deal. Tried to pass it of as 'just aging'. And PCP insisted, that it was not 'Multiple Sclerosis.
Neither Dr. would look at my CT films from 2006, because they weren't on CD/DVD or however it's called. Will see what the next one says.That's in Sept. tho' so trying not to worry.
I am hoping it is the simple form of CT,and over quickly. If they do a longer form with differing angles, that is more involved. Will see when the do the test this Thursday.
Should be okay with the breath holding, as long as I don't choke .If I don't go into Myoclonus episode, it'll go quickly.My hope and prayer,is a quick test, no serious issues discovered, and no Myo' issues.
Hoping if there s a problem it doesn't require surgery,and is something relatively easy,to deal with.
I need to be able to sit up,and to understand the Dr./Surgeon for TxCoords knee surgery coming up next week.
Thanks for tho'ts ideas and prayers !!!
jus' Silverwolfi here
-------------------- 2006,May-August2006 Dx w/ Lyme/Bartonella/White Matter Lesion Disease on Brain. [ Clinical Dx w/ two positives and several IND's on the tests from Igenex ], Prior Dx of CFIDS/CEBV 1992, and FMS '93-'94 Diabetes*2 Dx 10/'08 Posts: 3581 | From SE Idaho | Registered: May 2006
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Silverwolf
Frequent Contributor (1K+ posts)
Member # 9196
posted
Update: test is finally over,and now we wait, it went smoothly,and I hope I don't need another anytime soon.
Thanks to each person who replied, with Ideas, info', suggestions, tho'ts and prayers !!!
Jus' Silverwolfi here
-------------------- 2006,May-August2006 Dx w/ Lyme/Bartonella/White Matter Lesion Disease on Brain. [ Clinical Dx w/ two positives and several IND's on the tests from Igenex ], Prior Dx of CFIDS/CEBV 1992, and FMS '93-'94 Diabetes*2 Dx 10/'08 Posts: 3581 | From SE Idaho | Registered: May 2006
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TF
Frequent Contributor (5K+ posts)
Member # 14183
posted
So happy it went smoothly! That is a blessing.
Posts: 9931 | From Maryland | Registered: Dec 2007
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Silverwolf
Frequent Contributor (1K+ posts)
Member # 9196
posted
Hi there <<<<< TF >>>>>,
Yes,I am relieved to have it over with, still having some minor side effects, mostly getting the Barium out of my system,it seems it can take a bit.
Course stress, from Dads passing,and no burial yet, and TxCoords upcoming surgery, could be keeping some mild IBS symptoms causing issues.
TxC' is trying to find some pieces for our shower, that has decided to leak excessively. And we found out it wasn't repaired right before we rented.
I can try to make do, with the shower bench/chair, in the back restroom tub. But am concerned for TxC' to be able to properly be able to get in and out,safely after his knee surgery.
My CT results should be in about the same time as TxCoords surgery, but who knows when they'll actually tell my PCP,and how soon the staff will get results to him.
So that is where we are at around here at this time.
Jus' Silverwolfi here
-------------------- 2006,May-August2006 Dx w/ Lyme/Bartonella/White Matter Lesion Disease on Brain. [ Clinical Dx w/ two positives and several IND's on the tests from Igenex ], Prior Dx of CFIDS/CEBV 1992, and FMS '93-'94 Diabetes*2 Dx 10/'08 Posts: 3581 | From SE Idaho | Registered: May 2006
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