LymeNet Flash: Advice appreciated right now on testing as I am seeing my pulmo in 2 hours

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»	LymeNet Flash » Questions and Discussion » Medical Questions » Advice appreciated right now on testing as I am seeing my pulmo in 2 hours

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Topic: Advice appreciated right now on testing as I am seeing my pulmo in 2 hours

HK
LymeNet Contributor
Member # 45290

posted

Sx

Every symptom of bacteremia , septicemia, hypoxia, metabolic disorders, shock, kidney failure, and every auto immune disease there is (most) if I stand up im so dizzy I faint.

N also how can I organize my symptoms/lab work for him so he actually listens to me

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Back At It

Posts: 203 | From NJ | Registered: Feb 2015 | IP: Logged |

Keebler
Honored Contributor (25K+ posts)
Member # 12673

posted

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List how you feel, symptoms.

Do not list diagnoses.

Present yourself and give them a chance to use their knowledge to serve you.

Just be yourself, listen to them first. Then ask follow up questions. Don't jump ahead.

when you "stand up im so dizzy I faint."

You might ask for a tilt table test and assessment for POTS & NMH (neutrally mediated hypotension). There can be other reasons, too, so don't just assume. See what the doctor thinks.
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Posts: 48021 | From Tree House | Registered: Jul 2007 | IP: Logged |

Keebler
Honored Contributor (25K+ posts)
Member # 12673

posted

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You talk about "every auto immune disease there is . . . "

Please be very careful about that assumption - that ANYTHING, actually, is "auto immune" as they could stuff you with steroids and you could be spinning in the wrong direction.

"Auto immune" is a very dangerous assumption for those with any kinds of chronic stealth infections such as lyme and other tick borne diseases that can upset immune signals and throw kinks in testing.

Most with lyme have abnormal ANA tests but that does not mean they have autoimmune disease, more like the immune system is in disarray. In case anyone suggests steroids / prednisone:

http://flash.lymenet.org/scripts/ultimatebb.cgi/topic/1/100984?#000000

Topic: what do STEROIDS actually do to those with lyme? Risks, long term damage discussed. Links.
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Posts: 48021 | From Tree House | Registered: Jul 2007 | IP: Logged |

Lymetoo
Moderator
Member # 743

posted

How did your appointment go, HK?

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--Lymetutu--
Opinions, not medical advice!

Posts: 96223 | From Texas | Registered: Feb 2001 | IP: Logged |

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